Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

These counts and lists are worked out from the library itself each time the page loads. A score rates how much weight a study can bear — its design, journal, evidence and recency — not whether its result is good news. How we score a study.

The 20 highest-scoring studies

  1. Palliative care interventions in advanced dementia The Cochrane database of systematic reviews · 2021-09-28 · · Peer-reviewed
  2. Default Palliative Care Consultation for Seriously Ill Hospitalized Patients: A Pragmatic Cluster Randomized Trial JAMA · 2024-01-01 · · Peer-reviewed
  3. Advance Care Planning Video Intervention Among Long-Stay Nursing Home Residents: A Pragmatic Cluster Randomized Clinical Trial JAMA internal medicine · 2020-08-01 · · Peer-reviewed
  4. An Advance Care Planning Video Decision Support Tool for Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial JAMA internal medicine · 2018-07-01 · · Peer-reviewed
  5. Video decision support tool for advance care planning in dementia: randomised controlled trial BMJ (Clinical research ed.) · 2009-05-28 · · Peer-reviewed
  6. Palliative care interventions in advanced dementia The Cochrane database of systematic reviews · 2016-12-02 · · Peer-reviewed
  7. Educating Dutch General Practitioners in Dementia Advance Care Planning: A Cluster Randomized Controlled Trial Journal of the American Medical Directors Association · 2019-11-20 · · Peer-reviewed
  8. Emergency Medicine Palliative Care Access (EMPallA): protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness BMJ open · 2019-01-25 · · Peer-reviewed
  9. Improving comfort around dying in elderly people: a cluster randomised controlled trial Lancet (London, England) · 2017-05-16 · · Peer-reviewed
  10. Effect of the Goals of Care Intervention for Advanced Dementia: A Randomized Clinical Trial JAMA internal medicine · 2017-01-01 · · Peer-reviewed
  11. Level of Care Preferences Among Nursing Home Residents With Advanced Dementia Journal of pain and symptom management · 2017-08-08 · · Peer-reviewed
  12. Triggered Palliative Care Consults: A Systematic Review of Interventions for Hospitalized and Emergency Department Patients Journal of pain and symptom management · 2020-02-12 · · Peer-reviewed
  13. Concordance Between Proxy Level of Care Preference and Advance Directives Among Nursing Home Residents With Advanced Dementia: A Cluster Randomized Clinical Trial Journal of pain and symptom management · 2018-09-29 · · Peer-reviewed
  14. Discontinuation of Preventive Medicines in Older People with Limited Life Expectancy: A Systematic Review Drugs & aging · 2017-10-01 · · Peer-reviewed
  15. Cannabis in Palliative Care: A Systematic Review of Current Evidence Journal of pain and symptom management · 2022-06-12 · · Peer-reviewed
  16. Patient and caregiver characteristics associated with caregiver burden in Parkinson's disease: a palliative care approach Annals of palliative medicine · 2019-11-14 · · Peer-reviewed
  17. Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial JAMA internal medicine · 2020-02-01 · · Peer-reviewed
  18. Interventions for improving palliative care for older people living in nursing care homes The Cochrane database of systematic reviews · 2011-03-16 · · Peer-reviewed
  19. Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties The patient · 2019-04-01 · · Peer-reviewed
  20. Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement) BMC medicine · 2020-07-22 · · Peer-reviewed

See all 855 studies in End-of-life care, with filters →

Newest additions on this subject

All 855 studies in End-of-life care, newest first →

From across this subject

9 of the 850 studies in this subject, picked by a fixed rule (a hash of each study's address), not by score or date. The same 9 appear here every time.

What the library holds on this subject

By review status

StatusStudies
Peer-reviewed839
Preprint — not yet peer-reviewed13
Report — not peer-reviewed2
Regulatory decision — not a study1

By usefulness score

Score bandStudies
70+59
50–69214
30–49549
Under 3033

By strength of evidence

Rated in our summaryStudies
low623
moderate139
high93

Most frequent journals

JournalStudies
Journal of the American Geriatrics Society62
Palliative medicine45
Journal of pain and symptom management33
Journal of the American Medical Directors Association32
Journal of palliative medicine30
BMC palliative care20
PloS one18
International psychogeriatrics17
The American journal of hospice & palliative care16
JAMA14

Studies by year published

End-of-life care studies in the library by year published
YearStudiesBar
202661
2025123
202415
202312
202220
202129
202048
201948
201856
201757
201648
201542
201437
201336
201226
201125
201028
200918
200818
200712
200613
200513
200412
200310
20029
20017
200012
19992
19983
19972
19962
19953
19941
19932
19922
19901
19861
19771

Counts the 855 studies with a usable publication date. The library is a large sample of published work, not a complete index, so these counts describe the library, not the whole field.

Other subjects in the library

All subjects, side by side →