alzhub.org
Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Home › Research › Topic

Health services, long-term care and technology

1,022 studies in this group. A computer grouped them by what their titles and summaries are about, not by a hand-made list. The name describes most of the group, not every study in it.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-28 Caregiving

    Four main themes emerged from the data: 1) the unseen challenges of caregiving; 2) knowledge and experiences lead to stronger self-confidence; 3) the power of peer influence on caregiving; and 4) pursuing better support for carers.

  2. Navigating young-onset dementia caregiving: A qualitative study of unmet needs, support, and resilience

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-27 Caregiving

    Although caregivers demonstrated resilience and adaptive coping, YOD caregiving in Singapore remained constrained by limited access to visible, tailored, and age-appropriate support.

  3. Edge-Based ADL Recognition Using Room-Specialized Mixture-of-Experts

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-27 Digital health tools

    Activities of daily living (ADLs) provide important indicators of functional decline in people living with dementia, motivating the need for continuous in-home monitoring.

  4. Bedside screening and assessment tools for sarcopenia, dysphagia and malnutrition in older adults with dementia: a scoping review

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-25 Prevention trials

    From 12,770 records, 3,636 duplicates were removed and 9,134 titles and abstracts were screened.

  5. Eligibility for shingles vaccination and hospital-coded dementia in England and Wales: a regression discontinuity analysis in England

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-21 Getting a diagnosis

    We used the September 2013 age-based rollout of the live-attenuated shingles vaccine in England as a natural experiment to estimate the effect of vaccine eligibility on shingles and dementia diagnoses in linked hospital records.

  6. Effects of Practice Testing with Corrective Feedback on Long-Term BPSD Knowledge in Dementia Caregivers: Randomized Controlled Trial

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-20 Clinical trials

    Practice testing with detailed, corrective feedback is an effective intervention for targeting caregivers’ dementia-related knowledge.

  7. Caring in the Shadows: The Lived Experiences of family Caregivers of Older Adults with Dementia in Fragile and Conflict-Affected Setting in Ethiopia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-20 Caregiving

    Caregiving for older adults with dementia in Northern Ethiopia is a totalizing and demanding experience that profoundly affects caregivers’ lives.

  8. Death in People with Down syndrome: Mortality statistics and novel predictors in US Medicaid and Medicare enrolled adults

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-20 Costs and economics

    People with Down syndrome have higher age-specific mortality rates compared to the general population as well as peers with other intellectual and developmental disabilities.

  9. Real-World Outcomes of a Telephone-Based Virtual Cognitive Rehabilitation Therapy Program: A Retrospective Cohort Analysis

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-14 Disparities

    Changes in four outcome measures from initiation of treatment to discharge were evaluated for statistical significance: quality of life and three therapist-rated Functional Communication Measures (FCMs) of overall cognition, language expression, and language comprehension.

  10. Differential association of step count with depressive and anxiety symptoms in older adults at risk of dementia

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-13 Clinical trials

    This provides the first evidence in older adults with cognitive concerns that higher step counts are associated with fewer depressive but more anxiety symptoms.

  11. Seven routine blood markers predict five-year mortality in older Indians: a risk score from the LASI-DAD cohort

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-09 End-of-life care

    Among 2144 participants (540 deaths over a median 4.4 years of survivor follow-up; 25% mortality), the seven-marker score plus age and sex achieved an apparent C of 0.74 (optimism-corrected 0.74), versus 0.68 for age and sex alone (Δ ≈ 0.06); the blood panel alone reached C 0.72.

  12. Understanding end-of-life multimorbidity: An analysis of multiple causes of death in Denmark

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-07 End-of-life care

    We examined how often each diagnosed disease appeared on the certificate, its location and selection as the UCD, factors associated with its appearance (logistic regression), disease-specific mortality (multiple decrement life tables), and disease associations (Cause of Death Association Indicator, CDAI).

  13. Clinical Efficacy of Comprehensive Geriatric Assessment in Patients Undergoing Hemodialysis: A Retrospective Observational Study

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Preprints.org 2026-07-06 Health systems and care delivery

    Functional decline, as assessed by CGA, was more prominent in patients undergoing hemodialysis than in those not undergoing hemodialysis.

  14. Turkish Adaptation of the Supportive and Palliative Care Indicators Tool (SPICT): A Validity and Reliability Study

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-06 End-of-life care

    The SPICT-TR is a culturally adapted, valid, and reliable assessment tool for identifying patients with palliative care needs within the Turkish healthcare system.

  15. Person-Centredness in Dementia Diagnosis & Detection: A Scoping Review

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-07-01 End-of-life care

    We included 23 studies with qualitative (73.9%) or quantitative/mixed-methods (26.1%) designs.

  16. Mapping Digital and Assistive Technologies for Dementia and Related Neurodegenerative Conditions: A Scoping Review

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-07-01 Disparities

    Neurodegenerative conditions increasingly adopt digital and assistive technologies in community and home-based settings to support independence, symptom management and quality of life.

  17. How and why adult day programs influence admissions to long-term care homes for persons living with dementia: A program theory based on a realist review

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-06-30 Health systems and care delivery

    Contexts and mechanisms associated with attendees’ and caregivers’ social determinants of health, and system-level contexts and mechanisms that influence ADPs are important knowledge gaps to be addressed by studies and to be incorporated in our program theory in the future.

  18. Functional–behavioral patterns associated with care-related risk in hospitalized patients with Alzheimer’s disease: a real-world clustering analysis

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-06-30 Clinical safety

    Functional–behavioral subtypes can be identified in hospitalized AD patients, supporting multidimensional risk stratification and individualized care planning.

  19. Transitional care needs of persons with dementia and their care partners: a secondary analysis using Transitions Theory

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-06-29 End-of-life care

    Persons with dementia (PWD) and their care partners experience multidimensional care transitions across the illness trajectory.

  20. MinderCare: protocol for a mixed-methods evaluation of a digitally enabled dementia care service

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-06-22 Health systems and care delivery

    Strengths and limitations of this study This study evaluates a digitally enabled remote monitoring model for people living with dementia that integrates passive in-home sensors and algorithm-derived digital biomarkers to detect clinically relevant changes such as infection risk, behavioural disturbance and physiological deterioration.

  21. Connecting the Dots in Parkinson’s care: A Rapid Review and Qualitative Synthesis of Multidisciplinary Patient Passports for Parkinson’s disease

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. Research Square 2026-06-08 End-of-life care

    Forty‑two studies published between 1997 and 2025 were included.

  22. Dementia and Frailty Impact Postoperative Care Trajectories and Burden among Older Adults Undergoing Radical Cystectomy for Bladder Cancer

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-06-06 Costs and economics

    Patients with dementia were more likely to be frail, comorbid, and not receive standard-of-care neoadjuvant chemotherapy.

  23. Small palpebral fissure as a significant risk factor for glaucoma surgery failure

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-05-28 Risk factors

    Small palpebral fissure is an independent and previously unnoticed risk factor for glaucoma surgical failure, affecting both minimally invasive and filtration procedures.

  24. Disease Burden and Direct Health-Care Spending on Brain Conditions in Switzerland: Findings from the Global Burden of Disease 2023 Study for the Implementation of the Swiss Brain Health Plan

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-05-03 Costs and economics

    In fixed-effects panel models that accounted for spending persistence, lagged DALYs were not statistically associated with subsequent spending.

  25. The Alzheimer’s disease Burden in China (ABC) study: protocol for a nationwide multicentre cross-sectional and prospective cohort study

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv 2026-05-01 Costs and economics

    Previous studies have shown that AD-related costs are mainly driven by long-term informal care.

Other topics