Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Barriers to Optimising Prescribing and Deprescribing in Older Adults with Dementia: A Narrative Review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Current clinical pharmacology 2015-01-01 End-of-life care

    Older adults with dementia commonly have multiple chronic conditions that prompt clinicians to prescribe medications.

  2. The positive aspects of caregiving in dementia: A critical review of the qualitative literature

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia (London, England) 2014-12-29 Caregiving

    Positive aspects of caregiving in dementia have been identified as important in understanding the experiences of carers, yet the research base lacks clear definitions of key concepts.

  3. Persistence and adherence with dementia pharmacotherapy: relevance of patient, provider, and system factors

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Canadian journal of psychiatry. Revue canadienne de psychiatrie 2014-12-01 Digital health tools

    This paper provides a comprehensive review of studies examining adherence and (or) persistence with dementia pharmacotherapy during the past decade, including a summary of the key patient-, drug-, system-, and provider-level factors associated with these measures.

  4. Advance care planning in primary care, only for severely ill patients? A structured review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Family practice 2014-11-07 End-of-life care

    ACP does not seem to have a systematic place in the care for all community-dwelling older people.

  5. Relationship between loneliness, psychiatric disorders and physical health ? A review on the psychological aspects of loneliness

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of clinical and diagnostic research : JCDR 2014-09-20 Risk factors

    Human beings are social species which require safe and secure social surroundings to survive.

  6. American Geriatrics Society feeding tubes in advanced dementia position statement

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 2014-07-17 Health systems and care delivery

    When eating difficulties arise, feeding tubes are not recommended for older adults with advanced dementia.

  7. Hospital and ED use among Medicare beneficiaries with dementia varies by setting and proximity to death

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health affairs (Project Hope) 2014-04-01 Costs and economics

    Hospitalizations and emergency department (ED) visits for people with Alzheimer's disease and related disorders are of particular concern because many of these patients are physically and mentally frail, and the care delivered in these settings is costly.

  8. What is the current state of care for older people with dementia in general hospitals? A literature review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia (London, England) 2014-01-23 Costs and economics

    This paper summarises a literature review focusing on the literature directly pertaining to the acute care of older people with dementia in general hospitals from 2007 onwards.

  9. Who knows, who cares? Dementia knowledge among nurses, care workers, and family members of people living with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of palliative care 2014-01-01 End-of-life care

    The number of people with dementia is increasing rapidly worldwide.

  10. Introducing dyadic interviews as a method for collecting qualitative data

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Qualitative health research 2013-08-07 Caregiving

    In dyadic interviews, two participants interact in response to open-ended research questions.

  11. Dying with dementia: symptoms, treatment, and quality of life in the last week of life

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of pain and symptom management 2013-07-31 End-of-life care

    Symptoms are common in dementia at the end of life, despite the large majority of residents receiving opioids.

  12. Changes in mortality and causes of death in the Swedish Down syndrome population

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. American journal of medical genetics. Part A 2013-02-22 Down syndrome and Alzheimer's

    During the past few decades age at death for individuals with Down syndrome (DS) has increased dramatically.

  13. Deaths: preliminary data for 2011

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. National vital statistics reports : from the Centers for Disease Control and Prevention, National Center for Health Statistics, National Vital Statistics System 2012-10-01 Disparities

    The age-adjusted death rate decreased from 747.0 deaths per 100,000 population in 2010 to 740.6 deaths per 100,000 population in 2011.

  14. Sinking, Swimming, or Learning to Swim in Medicare Part D

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. American Economic Review 2012-10-01 Costs and economics

    Under Medicare Part D, senior citizens choose prescription drug insurance offered by numerous private insurers.

  15. Aging in correctional custody: setting a policy agenda for older prisoner health care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. American journal of public health 2012-06-14 End-of-life care

    An exponential rise in the number of older prisoners is creating new and costly challenges for the criminal justice system, state economies, and communities to which older former prisoners return.

  16. Caregiver care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. American family physician 2011-06-01 End-of-life care

    In 2009, nearly 66 million Americans (three in 10 U.S. households) reported at least one person providing unpaid care as a family caregiver.

  17. Deaths: preliminary data for 2009

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. National vital statistics reports : from the Centers for Disease Control and Prevention, National Center for Health Statistics, National Vital Statistics System 2011-03-01 Disparities

    The age-adjusted death rate decreased from 758.7 deaths per 100,000 population in 2008 to 741.0 deaths per 100,000 population in 2009.

  18. Physical and mental health of homebound older adults: an overlooked population

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 2010-11-10 Health systems and care delivery

    There are currently more than 38.9 million people aged 65 an older in the United States.

  19. Review of effects of physical activity on strength, balance, mobility and ADL performance in elderly subjects with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia and geriatric cognitive disorders 2010-10-28 Prevention trials

    Multicomponent interventions can improve physical functioning and BADL in elderly subjects regardless of the stage of dementia.

  20. The assessment of frailty in older adults

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Clinics in geriatric medicine 2010-05-01 Prevention trials

    No clear consensual definition regarding frailty seems to emerge from the literature after 30 years of research in the topic, and a large array of models and criteria has been proposed to define the syndrome.

  21. Assessment and management of pressure ulcers in the elderly: current strategies

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Drugs & aging 2010-04-01 End-of-life care

    If the ulcer has become chronic, the ultimate goal changes from healing the wound to controlling symptoms (such as foul odour, pain, discomfort and infection) and preventing complications, thereby contributing to the patient's overall well-being; providing support for the patient's family is also important.

  22. Comfort feeding only: a proposal to bring clarity to decision-making regarding difficulty with eating for persons with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the American Geriatrics Society 2010-03-01 End-of-life care

    Feeding and eating difficulties leading to weight loss are common in the advanced stages of dementia.

  23. Clinical and cost effectiveness of services for early diagnosis and intervention in dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of geriatric psychiatry 2009-07-01 Costs and economics

    The new services would cost around pound sterling 220 million extra per year nationally in England.

  24. Assessment of pain

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. British journal of anaesthesia 2008-05-16 Risk factors

    Valid and reliable assessment of pain is essential for both clinical trials and effective pain management.

  25. The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of geriatric psychiatry 2007-09-01 Health systems and care delivery

    Psychiatric and behavioural symptoms are frequent in nursing homes and the rate increases with the progression of the dementia.

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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