Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. End-of-life experiences in individuals with dementia with Lewy bodies and their caregivers: A mixed-methods analysis

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. PloS one 2024-08-29 End-of-life care

    Individuals with DLB (n = 50) died 3.24 ± 1.81 years after diagnosis, typically of disease-related complications.

  2. Informal caregiver and healthcare professional perspectives on dementia and nutrition

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of human nutrition and dietetics : the official journal of the British Dietetic Association 2024-06-27 Prevention and risk

    Four major themes emerged: forgetting to eat, developing food aversions, strong preferences for sweets and weight changes.

  3. Caregiver Experiences with Dementia-Related Feeding/Eating Difficulties

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Healthcare (Basel, Switzerland) 2024-01-07 Caregiving

    This cross-sectional study explores caregivers' perceptions of feeding/eating difficulties in persons living with dementia, their support provisions, and the associated burdens.

  4. The Effects of Neuropsychiatric Symptom Clusters in People with Dementia on Family Caregiver Burden

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of Alzheimer's disease : JAD 2024 Caregiving

    Adjusted for functional impairments and sociodemographic variables, neuropsychiatric symptoms were associated with more caregiver burden (p < 0.001).

  5. Determining Evidence for Family Caregiver Communication: Associating Communication Behaviors With Breakdown and Repair

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The Gerontologist 2023-09-02 Caregiving

    Breakdown (coded as 0) was associated with caregivers changing topic (median = -11.45, 95% credibility interval [CrI; -24.34, -4.37]), ignoring (median = -11.49, 95% CrI [-24.49, -4.72]), giving commands (median = -10.74, 95% CrI [-24.22, -3.38]), and taking over the task (median = -4.06, 95% CrI [-7.28, -1.77]).

  6. Characteristics and Predictors of Sleep Among Spousal Care Dyads Living With Chronic Conditions

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2023-03-13 Caregiving

    Sleep was correlated more among dyads living with dementia than those with other chronic conditions.

  7. A voice recognition-based digital cognitive screener for dementia detection in the community: Development and validation study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Frontiers in psychiatry 2022-07-22 Cognitive tests and assessment

    A total of 103 participants completed all investigations and were included in the analysis.

  8. Fear of Incompetence in Family Caregivers and Dementia Care Transitions

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. International journal of aging & human development 2022-06-09 Caregiving

    Research on interpersonal interaction dynamics in relationships between persons with dementia and their family caregivers has been limited.

  9. Identification of Dementia in Recent Medicare Claims Data, Compared With Rigorous Clinical Assessments

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The journals of gerontology. Series A, Biological sciences and medical sciences 2022-06-01 Costs and economics

    Recent Medicare claims perform reasonably well in identifying dementia; however, there are consistent differences in cases of dementia identified through claims than in rigorous cohort evaluations.

  10. Nursing Home Residents' Positive Behavioral Responses to Individualized Music Predict Improvements in Sundowning Symptoms After Music Listening

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of aging and health 2022-04-23 Health systems and care delivery

    As hypothesized, residents who exhibited a greater number of positive reactive behaviors while listening to music also evidenced more improvements in their confusion, disengagement, unresponsiveness, and restlessness after their music-listening session.

  11. Longitudinal Associations of Mental Disorders With Dementia: 30-Year Analysis of 1.7 Million New Zealand Citizens

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. JAMA psychiatry 2022-04-01 Digital health tools

    In this study, mental disorders were associated with the onset of dementia in the population.

  12. Prevalence, content and significance of advance care planning in nursing home patients

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Scandinavian journal of primary health care 2022-02-16 End-of-life care

    Of the study population, 97% had a limited care plan (ACP I) documented.

  13. Co-design of a Smartphone App for People Living With Dementia by Applying Agile, Iterative Co-design Principles: Development and Usability Study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. JMIR mHealth and uHealth 2022-01-14 Cognitive tests and assessment

    We found patient and care partner input to be critical throughout the development process for early identification of design and usability issues and for identifying solutions not previously considered by our research team.

  14. An App-Based Mindfulness-Based Self-compassion Program to Support Caregivers of People With Dementia: Participatory Feasibility Study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. JMIR aging 2021-11-26 Cognitive tests and assessment

    Although there were no significant changes in caregiver burden, we were encouraged by the increased emotional well-being of our participants following the completion of our program.

  15. Total cost of care increases significantly from early to mild Alzheimer's disease: 5-year ALSOVA follow-up

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Age and ageing 2021-11-10 Caregiving

    Total cost of care in early stage AD (CDR-SB ≤ 4) was 16,448€ (95% CI 13,722-19,716) annually.

  16. Neuropsychiatric symptoms associated with family caregiver burden and depression

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Dementia & neuropsychologia 2021 Caregiving

    Among the 12 neuropsychiatric symptoms investigated, 10 were significantly associated with caregiver burden, while 8 showed significant correlations with depressive symptoms.

  17. Importance of loneliness in behavioral and psychological symptoms of dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. International journal of geriatric psychiatry 2020-10-29 Risk factors

    The revised UCLA loneliness scale score was not significantly associated with age, years of education, mini-mental state examination (MMSE) score, gender, living status, visual impairment, hearing impairment, and marital status.

  18. Black-White Disparities in Moves to Assisted Living and Nursing Homes Among Older Medicare Beneficiaries

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2020-10-16 Health systems and care delivery

    Black older adults are less likely to move to assisted living and are more likely to move to a nursing home compared to white older adults.

  19. Continuity of care and health care cost among community-dwelling older adult veterans living with dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Health services research 2020-08-19 Costs and economics

    Mean BBC in FY 2014 was 0.32; mean total cost in FY 2015 was $35 425.

  20. Applying the Health Belief Model to Quantify and Investigate Expectations for Computerized Cognitive Training

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of cognitive enhancement : towards the integration of theory and practice 2020-08-01 Cognitive tests and assessment

    Despite the demonstrated benefits of computerized cognitive training for older adults, little is known about the determinants of training behavior.

  21. Early Cognitive Decline and its Impact on Spouse's Loneliness

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Research in human development 2020-07-01 Risk factors

    Individual's loneliness was stable when their spouse's cognition remained normal, but increased with the spouse's TCIND.

  22. Co-occurrence of positive staff interactions and positive affect in memory-care residents: An observational study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. International journal of geriatric psychiatry 2020-04-15 Health systems and care delivery

    The most observed resident affect type was neutral (53.1% of all minutes observed), followed by positive affect (44.5%).

  23. Clinical and Bacterial Markers of Periodontitis and Their Association with Incident All-Cause and Alzheimer's Disease Dementia in a Large National Survey

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Journal of Alzheimer's disease : JAD 2020-01-01 Costs and economics

    Microbial agents including periodontal pathogens have recently appeared as important actors in Alzheimer's disease (AD) pathology.

  24. Hearing impairment and the risk of neurodegenerative dementia: A longitudinal follow-up study using a national sample cohort

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Scientific reports 2018-10-15 Risk factors

    This study aimed to explore the risk of dementia in a middle- and older-aged population with severe or profound hearing impairments.

  25. Advance Care Planning in a Geriatric Primary Care Clinic: A Retrospective Chart Review

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. The American journal of hospice & palliative care 2018-08-02 End-of-life care

    The authors plan to reevaluate ACP statistics in the same office following a future intervention.

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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