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Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program
KOO FK, Wong L, CHANG H(, Chenoweth L, Tang C, Kwok C.. Research Square, 2026-07-28
Topic: Health services, long-term care and technology
Aim This study aimed to explore Chinese Australian carers’ experiences of participation in a culturally and linguistically adapted Carer Support Program (CSP). Background In Australia the majority of care for Chinese people living with dementia is provided by family members and other informal carers. Chinese Australian carers experience substantial stress, owing to cultural obligations, social issues and the complex dementia symptoms they face on a daily basis. There is a critical need for culturally and linguistically tailored support for Chinese carers. Design A descriptive design was chosen to obtain qualitative data from Chinese Australian carers. Methods Purposive sampling method was used to recruit 43 females and 5 male Chinese Australian carers of people living with dementia who had completed the 8-session culturally and linguistically adapted CSP. Data were collected using focus group interviews to identify carer perceptions of the CSP. Thematic analysis was used to interpret findings. Findings Four main themes emerged from the data: 1) the unseen challenges of caregiving; 2) knowledge and experiences lead to stronger self-confidence; 3) the power of peer influence on caregiving; and 4) pursuing better support for carers. Conclusion A co-designed Chinese version of CSP was considered beneficial for improving self-efficacy and enhancing carer confidence in fulfilling the caregiving role. Carers identified an urgent need for culturally and linguistic appropriate support services for immigrant Chinese carers to address complex caring issues and unmet health needs.
Key findings
- Data were collected using focus group interviews to identify carer perceptions of the CSP.
- Thematic analysis was used to interpret findings.
- Findings Four main themes emerged from the data: 1) the unseen challenges of caregiving; 2) knowledge and experiences lead to stronger self-confidence; 3) the power of peer influence on caregiving; and 4) pursuing better support for carers.
- Conclusion A co-designed Chinese version of CSP was considered beneficial for improving self-efficacy and enhancing carer confidence in fulfilling the caregiving role.
- Carers identified an urgent need for culturally and linguistic appropriate support services for immigrant Chinese carers to address complex caring issues and unmet health needs.
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Study details
- Evidence strengthLow
How this study scored 16/100
Preprint — not yet peer-reviewed. It scored 21 on the same rubric, but non-peer-reviewed sources are capped at 16, so it shows as 16. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record and multi-centre collaboration, so those were left out: it earned 13 of the 62 points we could judge it on, which is 21 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 2 / 10 | Tier 4 — not a peer-reviewed journal (Research Square) |
| Journal's citation record | 0 / 4 | Not a journal article, so the journal's record does not count |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 4 / 10 | Preprint — not yet peer-reviewed. Hosted on a preprint server. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Points | 13 / 62 | Scored on 12 of 20 parts. We have no data for the rest, so they are left out: 13 of the 62 points we could judge it on is 21 out of 100. |
| Total | 21 / 100 | Capped to 16 because this is not a peer-reviewed article. |
What each of these 20 components measures, and what this score is not →
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Cite this study APA, Vancouver, BibTeX · download .bib or .ris
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APA 7th
KOO, F. K., Wong, L., Chenoweth, L., Tang, C., & Kwok, C. (2026). Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program. Research Square. https://doi.org/10.21203/rs.3.rs-10491834/v1
Vancouver
KOO FK, Wong L, Chenoweth L, Tang C, Kwok C. Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program. Research Square. 2026. doi:10.21203/rs.3.rs-10491834/v1.
BibTeX
@article{koo2026-959b7dea,
author = {KOO, F. K. and Wong, L. and Chenoweth, L. and Tang, C. and Kwok, C.},
title = {{Building confidence in dementia care: The experience of Chinese Carers in participation in culturally and linguistically appropriate Carer Support Program}},
journal = {Research Square},
year = {2026},
doi = {10.21203/rs.3.rs-10491834/v1},
url = {https://doi.org/10.21203/rs.3.rs-10491834/v1}
}
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