Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. 2008 Alzheimer's disease facts and figures

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2008-03-01 Costs and economics

    Alzheimer's disease is the seventh leading cause of all deaths in the United States and the fifth leading cause of death in Americans older than the age of 65 years.

  2. A prognostic model for 1-year mortality in older adults after hospital discharge

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. The American journal of medicine 2007-05-01 Digital health tools

    Reasonable prognostic information for 1-year mortality in older patients discharged from general medicine services can be derived from administrative data to identify high-risk groups of persons.

  3. An estimate of the total worldwide societal costs of dementia in 2005

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2007-04-01 Caregiving

    Worldwide costs for dementia are enormous, and informal care constitutes a major cost component, in particular in less developed regions.

  4. Prevalence of depression and depression recognition in nursing homes

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Social psychiatry and psychiatric epidemiology 2001-12-01 Health systems and care delivery

    The prevalence of depressive disorders among nursing home residents is high; depression recognition is relatively low, with only 37%-45% of cases diagnosed by psychiatrists recognized as depressed by staff.

  5. Accuracy of administrative data to assess comorbidity in patients with heart disease. an Australian perspective

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of clinical epidemiology 2001-07-01 Digital health tools

    The objective of this study was to determine the accuracy of administrative data (by use of hospital discharge codes) for measuring comorbidity in patients with heart disease.

  6. Predictors of nursing home placement in Parkinson's disease: a population-based, prospective study

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Geriatrics Society 2000-08-01 Risk factors

    Both motor and neuropsychiatric symptoms contributed to institutionalization, but the presence of hallucinations was the strongest predictor.

  7. Visual impairment in nursing home residents: the Blue Mountains Eye Study

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. The Medical journal of Australia 1997-01-01 Risk factors

    These data confirm earlier reports of a substantial number of treatable eye diseases, particularly advanced cataract, in nursing home residents, and indicate a need for increased surveillance of these communities.

  8. The impact of market and organizational characteristics on nursing care facility service innovation: a resource dependency perspective

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Europe PMC (PubMed Central) 1996-04-01 Costs and economics

    Finally, organizational characteristics (e.g., size and proprietary status) appear to be important enabling factors influencing the propensity to provide specialty care in dedicated units.

  9. Pain evaluation and management in the nursing home

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Annals of internal medicine 1995-11-01 Health systems and care delivery

    As many as 45% to 80% of nursing home residents have pain that contributes materially to functional impairment and decreased quality of life.

  10. The problems of pain and its detection among geriatric nursing home residents

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Geriatrics Society 1993-05-01 Health systems and care delivery

    Chronic pain is a common problem among geriatric nursing home residents and is frequently undetected.

  11. Substituted judgment: how accurate are proxy predictions?

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Annals of internal medicine 1991-07-01 Getting a diagnosis

    Substituted judgment has been proposed as a method of promoting the autonomy of the mentally incapacitated patient, but little is known about the accuracy of surrogate decision makers in reflecting the true wishes of patients.

  12. The Homestead: Developing a Conceptual Framework through Co-Creation for Innovating Long-Term Dementia Care Environments

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. International journal of environmental research and public health 2020-12-23 Health systems and care delivery

    Alternative care environments for regular nursing homes are highly warranted to promote health and well-being of residents with dementia that are part of an age-friendly and dementia-friendly city and society.

  13. Revisiting the Role of Physicians in Assisted Living and Residential Care Settings

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Gerontology & geriatric medicine 2020-12-10 Health systems and care delivery

    As the United States population ages, a higher share of adults is likely to use long-term services and supports.

  14. Palliative and end of life care for people with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Nursing older people 2020-12-09 End-of-life care

    Despite growing understanding in recent years of the biological, psychological, social, environmental and spiritual aspects of dementia, people with advanced dementia continue to experience inequalities in accessing healthcare capable of improving their lives.

  15. Clinical nurse specialist's role in young-onset dementia care

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. British journal of community nursing 2020-12-02 Caregiving

    Post-diagnostic care in young-onset dementia (YoD) varies, from something that is occasionally structured, to improvised, to frequently non-existent depending on geographic region.

  16. Social Frailty in the COVID-19 Pandemic Era

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Frontiers in psychiatry 2020-11-03 Risk factors

    Special attention and efforts to protect from or reduce health-related outcomes of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), the virus triggering coronavirus disease 2019 (COVID-19), should be applied in susceptible populations, including frail older people.

  17. Advance care planning and decision-making in dementia care: a literature review

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Nursing older people 2020-07-15 End-of-life care

    Dementia is the leading cause of death in England and Wales, but traditionally it has not been considered a terminal or life-limiting condition.

  18. Mitigating the Effects of a Pandemic: Facilitating Improved Nursing Home Care Delivery Through Technology

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. JMIR aging 2020-05-26 Health systems and care delivery

    The coronavirus disease (COVID-19) pandemic has been particularly challenging for nursing home staff and residents.

  19. Medical Ethics Issues in Dementia and End of Life

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Current psychiatry reports 2020-05-09 End-of-life care

    I review ethical and legal challenges for end of life (EOL) care in dementia.

  20. Green spaces, dementia and a meaningful life in the community: A mixed studies review

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Health & place 2020-04-28 Risk factors

    Engagement in green spaces impacts positively on wellbeing and quality of life.

  21. Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of palliative medicine 2020-03-04 End-of-life care

    Four themes regarding caring for PWD in hospice.

  22. [Assisted living facilities in inpatient and outpatient settings]

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Zeitschrift fur Gerontologie und Geriatrie 2020-02-19 Health systems and care delivery

    Despite a formal inpatient or outpatient classification, the residents living in AL facilities showed significantly higher values for well-being and showed significantly less agitated, challenging behavior compared to the nursing home.

  23. Future Directions for Dementia Risk Reduction and Prevention Research: An International Research Network on Dementia Prevention Consensus

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of Alzheimer's disease : JAD 2020 Prevention trials

    In the past decade a large body of evidence has accumulated on risk factors for dementia, primarily from Europe and North America.

  24. BESI: Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment-Phases 1 and 2

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. American journal of Alzheimer's disease and other dementias 2020 Caregiving

    Phases 1 and 2 results facilitated targeted changes in BESI, thus improving its overall usability for the final phase of the study, when real-time notifications and interventions will be implemented.

  25. Using Policy to Improve Access to Care for Persons With Alzheimer's Disease

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of gerontological nursing 2019-12-01 Costs and economics

    As Americans increase life expectancies, one disease that has captured federal attention is Alzheimer's disease.

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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