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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Home as mind: AI extenders and affective ecologies in dementia care

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Synthese 2025-02-03 Caregiving

    I consider applications of “AI extenders” to dementia care.

  2. The Number Of Family Caregivers Helping Older US Adults Increased From 18 Million To 24 Million, 2011–22

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Health Affairs 2025-02-01 Caregiving

    The evolving composition and experiences of the family caregiver workforce have profound ramifications for public policy but are not well understood.

  3. Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of Family Nursing 2025-02-01 Caregiving

    Family caregivers provide essential care and support for individuals living with dementia, yet their contributions and needs are often unrecognized within formal health care systems.

  4. On average, surveyed caregivers (n = 431) were 78.3 years, had 16 years of education, and were mainly White (88.5%).

  5. Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Journal of Palliative Medicine 2025-01-28 Disparities

    Key reflections from advisor meetings guided cultural adaptation: lived experiences on dementia caregiving; patient, caregiver, and clinician interactions in the health care system; and limited knowledge and misconceptions of palliative care.

  6. Up to 60% of people living with dementia who reside in care homes will ‘wander’ at some point.

  7. Dementia Friendly Buildings—Approach on Architectures

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Buildings 2025-01-26 Caregiving

    Dementia’s escalating incidence, coupled with its economic burden, highlights the need for architectural designs and forms that benefit people living with dementia.

  8. Relationships Among Caregiver Burden, Psychological Flexibility Processes, and Depressive Symptoms in Family Caregivers of People with Dementia: Path Analyses

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of Applied Gerontology 2025-01-24 Caregiving

    This study examined relationships among caregiver burden, depressive symptoms, and key processes related to psychological flexibility (experiential avoidance, cognitive fusion, values-driven actions, and mindfulness) in 157 family caregivers of individuals with dementia in the United States.

  9. Repercussions of abuse by caregivers in the elderly population with dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. Psychogeriatrics 2025-01-22 Caregiving

    Due to the ageing population throughout the world, the rates of older adults suffering from dementia are increasing, requiring a closer look at this population.

  10. Using consumer wearables to estimate physical activity of nursing home residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Exploration of Digital Health Technologies 2025-01-16 Digital health tools

    We showed that consumer wearables are a valid tool for long-term data collection in this vulnerable patient population.

  11. Barriers and facilitators to implementing person-centred dementia care in long-term care facilities in Western and Asian countries: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. Frontiers in Psychiatry 2025-01-14 Caregiving

    Thirty-three studies were included. Over half were conducted in Western countries (n =20).

  12. Service delivery and the role of clinical pharmacists in UK primary care for older people, including people with dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. BMC Family Practice 2025-01-14 Caregiving

    A total of 30 articles were included. These detail the multifaceted responsibilities of clinical pharmacists in primary care for older people.

  13. Designing for those who are Overlooked - Investigating long-term Impacts of Social Robotics for People with Advanced Dementia, Caregivers and Relatives in a Secured Care Environment

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Proceedings of the ACM on Human-Computer Interaction 2025-01-10 Caregiving

    This paper presents the results of a long-term exploratory study that examined the social and emotional impact of using a social robot with a variety of applications to promote activities for people with advanced dementia and their caregivers.

  14. The family caregivers of PwD exhibited a fair QoL, with a score of 29.01 ± 4.059.

  15. Validation of Wellbeing Scales Among Informal Caregivers of Latinos With Alzheimer’s Disease and Related Dementias

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Hispanic Journal of Behavioral Sciences 2025-01-10 Caregiving

    All concurrent validity correlations followed the expected directionality, with 19/21 inter-scale correlations in the total sample reaching statistical significance (p<0.05), and 17/21 reaching at least a low correlation (0.3).

  16. Implementing Namaste Care in nursing care homes for people with advanced dementia: a systematically constructed review with framework synthesis

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. BMC Geriatrics 2025-01-09 Caregiving

    Twenty-five studies met the inclusion criteria.

  17. A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC Palliative Care 2025-01-08 Caregiving

    The Shifting Expectations narrative indicated that PwD's needs shifted to co-constructed needs with their family as PwD's independence declined.

  18. Time to nursing home admission and death in people with dementia: systematic review and meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 73 out of 100. BMJ 2025-01-08 How common it is

    The average life expectancy of people with dementia at time of diagnosis ranged from 5.7 years at age 65 to 2.2 at age 85 in men and from 8.0 to 4.5, respectively, in women.

  19. Understanding Challenges and Emotions of Informal Caregivers of General Older Adults and People With Alzheimer Disease and Related Dementia: Comparative Study

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of Medical Internet Research 2025-01-08 Caregiving

    In total, 3028 posts were retrieved, including 1552 from older adult-related subreddits and 1476 from Alzheimer disease-related subreddits; 18 key topics were identified, with the most frequent topics being expressing feelings (2178/3028, 71.93%) and seeking advice and support (1982/3028, 65.46%).

  20. Dissemination of the Care Ecosystem Collaborative Care Model for Dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Journal of the American Geriatrics Society 2025-01-06 Caregiving

    Implementation efforts resulted in the adoption of the Care Ecosystem at 28 health systems and eight community-based organizations, including 22 participants in Medicare's Guiding an Improved Dementia Experience (GUIDE) payment model.

  21. Two-year follow-up of dementia caregivers after a digital health intervention WECARE: a mixed-method study

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Aging & Mental Health 2025-01-05 Digital health tools

    Eighteen of 24 participants completed the survey and 15 participated in interviews.

  22. A qualitative study on the impact and participation in the AGELESS multidomain intervention: Insights from older adults with cognitive frailty and their caregivers

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. BMC Public Health 2025-01-02 Prevention trials

    The analysis revealed five distinct themes: (1) impact of the program, (2) facilitators enhancing participation, (3) barriers hindering participation, (4) suggestions for improving participation and (5) challenges to adopt digital platforms.

  23. A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Digital Health 2025-01-01 Caregiving

    Website goals were: providing ACP information and facilitating ACP conversations.

  24. Access to Neighborhood Amenities and Services and the Risk of 2-Year Nursing Home Placement Among Persons Living With Dementia

    ✓ Peer-reviewed alzhub usefulness score 31 out of 100. Innovation in Aging 2025-01-01 Risk factors

  25. Clinical Practice Guidelines for Dementia: Recommendations for the Pharmacological Treatment of Behavioral and Psychological Symptoms

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Dementia and Neurocognitive Disorders 2025-01-01 Caregiving

    Recommendations vary by medication type and symptom severity.

  26. Comprehensive Dementia Care Models: State of the Science and Future Directions

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Research in Gerontological Nursing 2025-01-01 Caregiving

    The rising prevalence of Alzheimer's disease and Alzheimer's disease–related dementias has led to renewed public discourse and policy changes in response to the care needs of persons living with dementia and their care partners.

  27. Dementia in palliative care

    ✓ Peer-reviewed alzhub usefulness score 26 out of 100. Medycyna Paliatywna 2025-01-01 End-of-life care

    Otępienie to zespół objawów wywołany postępującymi chorobami neurodegeneracyjnymi mózgu, które prowadzą do znacznego pogorszenia funkcji poznawczych, a w końcowym etapie do całkowitej zależności pacjenta od otoczenia.

  28. Effect of comprehensive nursing interventions on psychological well-being and treatment adherence in dementia patients

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. American Journal of Translational Research 2025-01-01 Cognitive tests and assessment

    The observation group had significantly lower Self-Rating Anxiety Scale (SAS) and Self-Rating Depression Scale (SDS) scores than the control group (both P<0.001).

  29. Emergency department use and responsiveness to the palliative care needs of patients with dementia at the end of life: A scoping review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Palliative & Supportive Care 2025-01-01 End-of-life care

    Twenty-four studies were identified and confirmed that patients with dementia frequently resort to the ED near the end of life, frequently more than once in their last year of life.

  30. Exploring advance care planning discourses in scottish dementia policies: A critical discourse analysis

    ✓ Peer-reviewed alzhub usefulness score 30 out of 100. Social Sciences & Humanities Open 2025-01-01 End-of-life care

    Advance Care Planning (ACP) is a continuous process that enables individuals to discuss and document their preferences for future care in the event of terminal illness or incapacitation.

  31. Factors associated with family caregiver burden of patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Dementia & Neuropsychologia 2025-01-01 Caregiving

    Regression analysis identified three different models as predictors of caregiver burden.

  32. Impact of Kolb’s experiential learning theory-based nursing on caregiver burden and psychological state of caregivers of dementia patients

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Open Medicine 2025-01-01 Caregiving

    Kolb’s experiential learning theory has a positive impact on alleviating the caregiving burden and reducing anxiety and depression among family caregivers of dementia patients.

  33. Informal care for people with dementia in Europe

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Journal of Prevention of Alzheimer s Disease 2025-01-01 Caregiving

    Daily informal care time was 0.5 hours higher in moderate compared to mild and 1.3h higher in severe compared to mild cognitive impairment.

  34. New VSED Advance Directive: Improved Documentation to Avoid Late-Stage Dementia

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. The Journal of Law Medicine & Ethics 2025-01-01 Brain tissue and pathology

    People use advance directives to express preferences that direct their future care when they lack decision-making capacity.

  35. Relationship between caregiver characteristics and the reported quality of life of people with mild and moderate dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Revista CUIDARTE 2025-01-01 Caregiving

    The study found significant correlations between caregiver competence, QoL, and burden/stress with the QoL of individuals with dementia.

  36. Self- versus caregiver-reported apathy across neurological disorders

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Brain Communications 2025-01-01 Caregiving

    Apathy is a prevalent and persistent neuropsychiatric syndrome across many neurological disorders, significantly impacting both patients and caregivers.

  37. Shaping a knowable event or embracing a mysterious journey: A mixed methods study on palliative care clinician views on voluntary assisted dying

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Palliative & Supportive Care 2025-01-01 End-of-life care

    Of 142 respondents, 53% supported, 10% were uncertain, and 37% opposed legalizing euthanasia for terminal illness with severe symptoms.

  38. Suffering and loss in Lewy body dementia: Applying a palliative care lens to a longitudinal narrative study

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Palliative & Supportive Care 2025-01-01 End-of-life care

    Participants with Lewy body dementia described losses associated with communication, continence, and energy leading to a progressive loss of independence.

  39. The Aging Population and Dementia: The Need for Comprehensive Palliative Care

    ✓ Peer-reviewed alzhub usefulness score 27 out of 100. Acta medica Indonesiana 2025-01-01 End-of-life care

    Dementia is a progressive condition that gradually impairs cognitive function, memory, and daily living skills.

  40. An innovative model of behavioral healthcare for older adults with serious mental illness, substance use disorders, and dementia

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Journal of the American Geriatrics Society 2024-12-17 Health systems and care delivery

    A total of 2301 patients completed an intake from January 2023 to March 2024.

  41. The Effect of the "Safety in Dementia" Online Tool to Assist Decision Making for Caregivers of Persons With Dementia and Access to Firearms: A Randomized Trial

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Annals of Internal Medicine 2024-10-22 Caregiving

    The online SiD decision aid increased preparation for decision making about firearm access in this sample of ADRD caregivers in the United States.

  42. Effect of a Financial Incentive Scheme for Medication Review on Polypharmacy in Elderly Inpatients With Dementia: A Retrospective Before-and-After Study

    ✓ Peer-reviewed alzhub usefulness score 28 out of 100. Journal of patient safety 2024-10-18 Health systems and care delivery

    Polypharmacy is an important healthcare issue, especially in elderly patients with dementia.

  43. Study findings will reveal the feasibility of delivering an 8-week multidomain health education intervention for primary prevention of dementia in midlife and will provide preliminary evidence of mechanisms of change.

  44. Phase 3 (NIH stage 1B) is a feasibility randomized controlled trial of the intervention versus the Health Education Program control.

  45. Between Feb 24, 2021, and March 5, 2023, 377 dyads were randomly assigned (1:1), 189 to usual treatment and 188 to intervention.

  46. Factors associated with the place of death of persons with advanced dementia: A systematic review of international literature with meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Palliative medicine 2024-08-02 Health systems and care delivery

    Many individuals with advanced dementia die in hospital, despite preferring home death.

  47. Care management improves total cost of care for patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. American Journal of Managed Care 2024-08 Costs and economics

    A collaborative dementia care program demonstrated significant financial benefit in a managed Medicare population.

  48. Clinical Outcomes and Cost-Effectiveness of Collaborative Dementia Care: A Secondary Analysis of a Cluster Randomized Clinical Trial

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. JAMA Network Open 2024-07-01 Costs and economics

    Participants receiving CDCM showed significantly fewer behavioral and psychological symptoms (adjusted mean difference [AMD] in NPI score, -10.26 [95% CI, -16.95 to -3.58]; P = .003; Cohen d, -0.78 [95% CI, -1.09 to -0.46]), better mental health (AMD in SF-12 Mental Component Summary score, 2.26 [95% CI, 0.31-4.21]; P = .02; Cohen d, 0.26 [95% CI, -0.11 to 0.51]), and lower caregiver burden (AMD in BIZA-D score, -0.59 [95% CI, -0.81 to -0.37]; P Conclusions and relevance In this secondary analysis of a cluster randomized clinical trial, CDCM was associated with improved patient, caregiver, and health system-relevant outcomes over 36 months beyond the intervention period.

  49. Medicare Advantage enrollment and outcomes of post-acute nursing home care among patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health Affairs Scholar 2024-05-30 Health systems and care delivery

    Enrollment in Medicare Advantage (MA) has been rapidly growing.

  50. Loneliness and social isolation among informal carers of individuals with dementia: A systematic review and meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. International Journal of Geriatric Psychiatry 2024-05-16 Caregiving

    This study underscores the substantial prevalence of loneliness and social isolation among informal carers of individuals with dementia.

From across this tag

9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

All topic tags with their study counts