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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Innovation in Aging 2026-09-17 End-of-life care

    Participants described AI tools as potentially helpful for obtaining information, monitoring patients, managing medications and appointments, providing companionship, and conducting logistical tasks.

  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv (preprint) 2026-09-07 Caregiving

    Prior work suggests that perceived value may shape online support use, yet practical and trust-related barriers may still impede uptake even when beliefs are favorable.

  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers

    ⚠ Preprint — not yet peer-reviewed alzhub usefulness score 16 out of 100. medRxiv (preprint) 2026-08-17 Caregiving

    BackgroundAlzheimers Disease and Related Dementias (ADRD) is a growing global public health challenge, and caregivers experience high rates of burden, unmet needs, and system failures.

  4. Attitudes and Decisional Conflict in Family Caregivers of Persons With Dementia: A Mediating Role of Perceived Benefits of Advance Care Planning

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Journal of Applied Gerontology 2026-07-27 End-of-life care

    More positive attitudes were associated with lower decisional conflict directly and indirectly through perceived benefits.

  5. Voluntary assisted dying views and experiences of Australians living with dementia: a qualitative study

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. Mortality 2026-07-23 End-of-life care

    This study explored the views and experiences of Australians living with dementia relating to voluntary assisted dying (VAD) as an end-of-life care option.

  6. End-of-life and Palliative Care in Dementia: An Overview for Clinicians

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Current Treatment Options in Neurology 2026-07-17 End-of-life care

    Awareness of caregiver distress, burnout, and early grief, as a result of the loss of their loved one’s personhood, has increased.

  7. Guiding the Ethics of Locator Devices in Dementia Care: Tutorial on Developing a Question-Based Ethical Framework

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of Medical Internet Research 2026-07-07 Clinical safety

    The resulting framework is organized around 3 themes-vision, process, and impact-each containing guiding questions that encourage dialogical reflection and decision-making.

  8. Clinical outcomes after antipsychotic discontinuation in nursing home residents with dementia: a nationwide cohort study

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Alzheimer's Research & Therapy 2026-07-06 Treatments

    Among nursing home residents with dementia, discontinuing long-term antipsychotic medication use was associated with lower risks of hospitalization, pneumonia, and urinary tract infections, suggesting clinical benefits in this population.

  9. Efficacy of a language-concordant community health worker intervention to improve community-to-clinic linkage for dementia care: results of the randomized trial PLAN

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2026-06 Caregiving

    Longer follow-up and testing across diverse LEP communities are needed to assess diagnosis, treatment initiation, and caregiver trajectories.

  10. Perceptions of Dementia Threats and Related Advance Care Planning among Adults in Central Vietnam

    ✓ Peer-reviewed alzhub usefulness score 31 out of 100. VNU Journal of Social Sciences and Humanities 2026-06-01 End-of-life care

    Understanding dementia beliefs among Vietnamese people is crucial for the development of evidence-based interventions to promote positive help-seeking behaviors when facing the risk of dementia for themselves and their relatives.

  11. Institutional Special Needs Plans and End-of-Life Outcomes for Nursing Home Residents With Dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. JAMA Health Forum 2026-05-31 Health systems and care delivery

    The study cohort included 1 415 265 long-stay nursing home residents with dementia who died between 2013 and 2022.

  12. How bereaved adult-children of parents with dementia use end-of-life caregiving experiences to inform their personal advance care planning

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Journals of Gerontology Series B 2026-05-20 End-of-life care

    Participants actively contemplated ACP following their parents' death, referring to their end-of-life caregiving experiences as guideposts for issues to anticipate and opportunities to enhance receipt of healthcare during serious illness or incapacitation.

  13. Emergency Departments Leading the Transformation of Alzheimer's and Dementia Care

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of the American Geriatrics Society 2026-05-07 End-of-life care

    More than 50% of older adults with AD/ADRD visit the emergency department (ED) each year [3, 4] and those who do are seriously ill, have significant healthcare costs (e.g., hospital admissions, repeat ED visits) and mortality [4-6].

  14. Stakeholder Perspectives on Integrating ADEPT Into End‐Of‐Life Care for Nursing Home Residents With Dementia: A Qualitative Descriptive Study

    ✓ Peer-reviewed alzhub usefulness score 26 out of 100. International Journal of Older People Nursing 2026-05-01 End-of-life care

    Current processes for identifying hospice-eligible residents rely on regular assessments and interdisciplinary collaboration but reveal significant gaps, including delays in referrals and inconsistent practices.

  15. Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Journal of Pain and Symptom Management 2026-04-30 End-of-life care

    Four attributes distinguished situations in which either approach is preferred: understanding, trust, readiness, and momentum.

  16. Advance care planning for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 29 out of 100. Nippon Ronen Igakkai Zasshi Japanese Journal of Geriatrics 2026-04-25 End-of-life care

    認知症を有する人のためのアドバンス・ケア・プランニング(ACP)では,意思決定能力の揺らぎを前提に,「過去」の意思と「現在」の意向を統合し,非言語的サインも含めて本人の推定意思をくみ取ることが重要である.家族を本人の想いを伝える代弁者として位置づけ,その心理的負担を医療・ケアチームが支える必要がある.また,関係依存性自律を踏まえ,多職種協働で本人中心の対話を継続することが求められる.さらに,想いのかけらを情報通信技術(ICT)等で共有し,ACPを組織的に実施する体制整備が重要である.

  17. Stage of Disease Among Hospitalized Persons Living With Dementia: A Multisite Study

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of the American Medical Directors Association 2026-04-24 End-of-life care

    Among 6303 hospitalized patients with ADRD, 39.3% had mild dementia, 57.8% moderate, and 2.9% severe.

  18. The Impact of Dementia Caregiving on the Health of the Spousal Caregiver

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Medicina 2026-04-21 Clinical safety

    Evidence suggests that chronic caregiving stress contributes to biological changes such as immune dysregulation, inflammation, acceleration, aging, and potential cognitive decline in caregivers themselves.

  19. Assisted Living Staff Perspectives on End-Of-Life Care for Residents Living With Dementia: A Qualitative Study

    ✓ Peer-reviewed alzhub usefulness score 31 out of 100. American Journal of Hospice and Palliative Medicine® 2026-04-19 End-of-life care

    BackgroundAlzheimer's disease and related dementia (ADRD) affect nearly half of assisted living (AL) residents, the majority of whom have palliative care (PC) needs at the end of life (EOL).

  20. Healthcare provider adoption of cognitive assessment and care planning services associated with uptake among peers

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Alzheimer s & Dementia Behavior & Socioeconomics of Aging 2026-04-13 Health systems and care delivery

    Being exposed to a peer who adopted CACP was a strong predictor of providers’ own uptake of CACP.

  21. The role of spirituality among nursing home staff caring for residents with advanced dementia: a qualitative descriptive study

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. International Journal of Palliative Nursing 2026-04-02 End-of-life care

    Four themes described how staff perceived spirituality to influence their work to comfort, guide, protect and make meaning.

  22. Barriers and facilitators to home-based end-of-life care for people with dementia: A meta-ethnographic study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International Journal of Nursing Studies 2026-04-01 End-of-life care

    Six core themes were identified through the synthesis of data from 17 studies.

  23. Digital Reminiscence for Predeath Grief Among Family Caregivers of Patients With Dementia: A Pilot Randomized Clinical Trial

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. JAMA Network Open 2026-04-01 Caregiving

    This pilot randomized clinical trial demonstrated the feasibility, acceptability, and preliminary efficacy of LMH-4-DCP in reducing caregiver grief, with improvements in caregiver-care recipient relationship quality.

  24. Stigma, isolation, and depression in Chinese and Korean American dementia caregivers

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring 2026-04-01 Caregiving

    These findings identify affiliate stigma as an important risk factor for dementia caregivers’ depressive symptoms, operating through both objective and emotional forms of social disconnection.

  25. Burnout severity in residential dementia care: individual demands and institutional-level variation in a Hungarian cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. BMC Nursing 2026-03-30 Risk factors

    Caregiving difficulties showed excellent reliability (α = 0.928) and yielded three components explaining 73.19% of variance.

  26. Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. ACM Transactions on Computing for Healthcare 2026-03-24 Caregiving

    Family caregivers of individuals with Alzheimer’s Disease and Related Dementia (AD/ADRD) face significant emotional and logistical challenges that place them at heightened risk for stress, anxiety, and depression.

  27. Annual Wellness Visits and Timing of Advance Care Planning Among Medicare Beneficiaries With Cognitive Impairment

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Journal of the American Geriatrics Society 2026-03-17 End-of-life care

    Among 118,174 beneficiaries who received an AWV, 27.62% initiated ACP within 4 years compared with 17.46% of nonrecipients (HR, 1.86; 95% CI, 1.84-1.89).

  28. Advance Care Planning Intention and Associated Factors Among People With Dementia: A Mixed‐Methods Study

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. Journal of Advanced Nursing 2026-03-13 End-of-life care

    The overall advance care planning behavioural intention was at a moderately high level.

  29. Healthcare Utilization Among Older Adults With Dementia in France: A Comparative Analysis of a Dementia Village and Traditional Nursing Homes

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Value in Health 2026-03-10 End-of-life care

    VLAHE residents had fewer hospitalizations and shorter stays (10.5 vs 15.2 days, P = .0004) than comparable NH residents, particularly for acute care.

  30. Understanding the family caregivers’ needs in late-stage dementia: a qualitative perspective to inform policy action

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. BMC Geriatrics 2026-03-10 Brain tissue and pathology

    Family caregivers had information, psychosocial, and self-care needs that were deeply intertwined and frequently coexisted at the same time.

  31. Additional file 1 of Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Figshare 2026-03-07 End-of-life care

  32. Additional file 1 of Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study

    ✓ Peer-reviewed alzhub usefulness score 31 out of 100. Figshare 2026-03-07 End-of-life care

  33. Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. BMC Palliative Care 2026-03-07 End-of-life care

    Individuals with dementia were more likely to have staff or family members present at death, to receive documented decisions to shift to EOL care, have symptom assessments made the final week of life and prescription of injectables.

  34. Ethical Tensions in the Use of Real-Time Location Systems in Dementia Care: Balancing Safety, Privacy, and Autonomy

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. The American Journal of Bioethics 2026-03-05 Caregiving

    With the increased use of technological supports in residential care homes, there is growing interest in the use of real-time location systems (RTLS) to enhance safety and streamline care.

  35. Cost-effectiveness of a music therapy intervention for people living with dementia: a model for a UK-based economic evaluation

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Aging & Mental Health 2026-03-04 Cognitive tests and assessment

    Over a three-month period, MT+CST was more effective than CST alone in improving cognitive function but was not cost-effective due to higher initial costs, including setup and equipment.

  36. Mental health of caregivers for people with dementia and cerebral palsy as a key determinant of caregiver burden: a multivariable analysis

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Frontiers in Public Health 2026-03-04 Caregiving

    = 0.049, respectively), followed by musculoskeletal pain in the back and lower limbs.

  37. What are the best practices for providing end-of-life care to patients with coexisting COPD, dementia, and cancer?

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Zenodo (CERN European Organization for Nuclear Research) 2026-03-04 End-of-life care

    Providing end-of-life care for patients with COPD, dementia, and cancer involves a focus on symptom management, integration of palliative care, and respecting patient preferences, while engaging families in the care process.

  38. What are the best practices for providing end-of-life care to patients with coexisting COPD, dementia, and cancer?

    ✓ Peer-reviewed alzhub usefulness score 28 out of 100. Zenodo (CERN European Organization for Nuclear Research) 2026-03-04 End-of-life care

    Providing end-of-life care for patients with COPD, dementia, and cancer involves a focus on symptom management, integration of palliative care, and respecting patient preferences, while engaging families in the care process.

  39. Advance care planning in Medicare beneficiaries with Alzheimer's disease and related dementias

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Alzheimer s & Dementia Behavior & Socioeconomics of Aging 2026-03-01 End-of-life care

    ACP is linked to lower EOL spending and a shift from inpatient to outpatient ADRD care; structured ACP delivery should be considered.

  40. Effect of Mindfulness-Based Stress Reduction Activities on Family Caregiver Burden in Patients With Dementia—A Pilot Study

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Home Healthcare Now 2026-03-01 Caregiving

    Progressive functional decline and behavioral disturbances in people with dementia place sustained emotional and practical demands on family caregivers, often resulting in chronic stress, anxiety, depression, and a high perceived caregiving burden.

  41. A qualitative inquiry about end-of-life care for people with advanced dementia: “Planning ahead not in reality”

    ✓ Peer-reviewed alzhub usefulness score 30 out of 100. Geriatric Nursing 2026-02-27 End-of-life care

    Six key themes were identified: Inadequate preparation, guidance and access to appropriate resources; Taboo and misunderstanding: talking about death; Dementia as a terminal illness and the role of palliative care; Key time points, critical events and decisions; Planning ahead not in reality; Family issues and dynamics.

  42. Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of General Internal Medicine 2026-02-19 Caregiving

    Our study included 467 caregivers. Most (92.5%) caregivers performed at least one health care interaction task.

  43. Bringing up the end of life and euthanasia. A mixed method study on consultations with people with dementia and their families in the hospital setting

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Palliative Medicine 2026-02-14 End-of-life care

    End-of-life topics were discussed in 36% of consultations (in regional hospitals, 53%; in academic settings, 27%), and predominantly during diagnostic consultations (54%).

  44. Family caregivers (n = 705) had a mean ± standard deviation (SD) age of 54.6 ± 11.5 years, 56.9% were male, and 84.0% cared for a parent or in-law with AD.

  45. Effects of peer support interventions for family caregivers of persons with dementia: A systematic review and meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Archives of gerontology and geriatrics 2026-02-10 Caregiving

    Peer support interventions suggest beneficial short-term effects on specific caregiver outcomes but lack long-term sustainability.

  46. Additional file 1 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. Figshare 2026-02-09 End-of-life care

    Appendix A. Interview guides on experiences with advance care planning, factors influencing readiness for advance care planning, and the use of conversation aids among people with dementia, family caregivers, and healthcare professionals.

  47. Additional file 1 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Figshare 2026-02-09 End-of-life care

    Appendix A. Interview guides on experiences with advance care planning, factors influencing readiness for advance care planning, and the use of conversation aids among people with dementia, family caregivers, and healthcare professionals.

  48. Additional file 2 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Figshare 2026-02-09 End-of-life care

    Appendix B. Coding tree of main categories and specific sub categories describing factors influencing readiness for advance care planning among people with dementia, family caregivers, and healthcare professionals.

  49. Additional file 2 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. Figshare 2026-02-09 End-of-life care

    Appendix B. Coding tree of main categories and specific sub categories describing factors influencing readiness for advance care planning among people with dementia, family caregivers, and healthcare professionals.

  50. Factors influencing readiness for advance care planning in dementia: a qualitative interview study

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. BMC Palliative Care 2026-02-09 End-of-life care

    For people with dementia (n = 6), readiness was facilitated by a desire for autonomy.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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