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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. The Dementia Palliative Care Clinical Trials Training Program

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Innovation in Aging 2025-12-01 End-of-life care

    Of these, a growing number have secured funding, initiated collaborations, contributed to dementia palliative care research, and increased confidence and comfort with conducting clinical trials (p<.05).

  2. The effects of socioeconomic status on perceived self‐efficacy among caregivers of persons with Alzheimer's disease and related dementias

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Alzheimer s & Dementia 2025-12-01 Health systems and care delivery

    There were no significant differences in self-efficacy related to obtaining respite and RDPB between SES groups.

  3. The Evaluation of Telehealth's Impact on Medicare Annual Wellness Visits and Dementia Diagnosis

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Alzheimer s & Dementia 2025-12-01 Health systems and care delivery

    We found a significant increase in the likelihood of AWV uptake among telehealth adopters by 10.2 percentage points (p <0.001) than non-adopters of telehealth in traditional FFS Medicare plans.

  4. The Evaluation of Telehealth's Impact on Medicare Annual Wellness Visits and Dementia Diagnosis

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Alzheimer s & Dementia 2025-12-01 Health systems and care delivery

    We found a significant increase in the likelihood of AWV uptake among telehealth adopters by 10.2 percentage points (p <0.001) than non-adopters of telehealth in traditional FFS Medicare plans.

  5. The Evaluation of Telehealth’s Impact on Medicare Annual Wellness Visits and Dementia Diagnosis

    ✓ Peer-reviewed alzhub usefulness score 30 out of 100. Innovation in Aging 2025-12-01 Health systems and care delivery

    Our study underscores the role of telehealth in increasing AWV uptake and facilitating cognitive assessments.

  6. Trends in Hospice Use Among Older Adults With Dementia and Cancer by Race and Ethnicity 2011–2021

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Journal of the American Geriatrics Society 2025-11-28 End-of-life care

    Hospice use (2011-2021) for decedents with cancer and dementia by ethnic and racial groups.

  7. Effectiveness of Advance Care Planning for End-of-Life Outcomes in Nursing Home Residents With Dementia: A Systematic Review and Meta-Analysis

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Medical Directors Association 2025-11-27 Caregiving

    Although ACP programs in nursing homes may increase DNR directives, evidence of other EoL outcomes remains limited and inconsistent.

  8. The proposed model demonstrated a sound fit (PCMIN/DF = 2.612).

  9. Impact of assistive technologies on caregiver burden and perseverance for people with dementia at home

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Health Policy and Technology 2025-11-20 Caregiving

    • AT use was limited and AT type used varied by caregiver living arrangement. • Most used ATs: daily living support and risk prevention; risk response least used. • Daily living support ATs linked to fewer care hours. • Risk prevention ATs tied to longer PT, higher CarerQol-7D, and lower SRB scores. • Daily support and risk response ATs most likely to extend PT by over six months.

  10. Development and psychometric evaluation of a learning needs assessment tool for healthcare professionals in palliative dementia care: A cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. International Journal of Nursing Studies Advances 2025-11-19 End-of-life care

    The 29-item needs assessment showed strong internal consistency, with a mean Cronbach’s alpha of .89 and McDonald’s omega of .90.

  11. Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 28 out of 100. Repository for Publications and Research Data (ETH Zurich) 2025-11-19 End-of-life care

    Dementia-specific ACP/AD require a relational, flexible and ethically grounded approach that evolves with the individual’s condition.

  12. End-of-Life Care for Older Adults With Dementia by Race and Ethnicity and Physicians’ Role

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. JAMA Health Forum 2025-11-14 Disparities

    Among 259 945 decedents with dementia (mean [SD] age, 85.8 [8.0] years; 60.4% female), 8.3% were non-Hispanic Black, 4.4% were Hispanic, and 87.3% were non-Hispanic White.

  13. Factors associated with anxiety, stress, depression and burden among informal caregivers of patients with dementia: a cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. BMC Nursing 2025-11-11 Caregiving

    A total of 414 caregivers participated. They exhibited normal intensity of depression, anxiety, and stress symptomatology.

  14. Acceptance Factors and Barriers to the Implementation of Digital Interventions in Older People with Dementia and/or Their Caregivers: An Umbrella Review

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of Clinical Medicine 2025-11-10 Caregiving

    Frequently reported factors included self-management support, information access, and enhanced communication, although these were not consistently addressed across all reviews.

  15. Cost-consequence analysis of the partner in balance program for informal carers of persons with dementia

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Aging & mental health 2025-11-10 Health systems and care delivery

    Informal caregivers often seek additional support.

  16. Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. BMC Geriatrics 2025-11-10 End-of-life care

    Forty studies were included. Key stakeholders included healthcare professionals (HCPs); family members and caregivers; PWD; dyads (PWD and their caregivers); the broader public; policymakers; and researchers.

  17. Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review

    ✓ Peer-reviewed alzhub usefulness score 29 out of 100. Zurich Open Repository and Archive (University of Zurich) 2025-11-10 End-of-life care

    Forty studies were included. Key stakeholders included healthcare professionals (HCPs); family members and caregivers; PWD; dyads (PWD and their caregivers); the broader public; policymakers; and researchers.

  18. An Overview of Reviews on Telemedicine and Telehealth in Dementia Care: Mixed Methods Synthesis

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. JMIR Mental Health 2025-11-06 Caregiving

    Ninety-one reviews provided evidence on the impact of telemedicine in dementia care.

  19. State-of-the-Art HCI for Dementia Care: A Scoping Review of Recent Technological Advances

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of dementia and Alzheimer's disease 2025-11-06 Caregiving

    Dementia significantly impacts cognitive, behavioral, and functional abilities, creating challenges for both individuals and caregivers.

  20. The final year for community-dwelling older adults with dementia in an Asian setting: admissions, interventions, and caregiver burden

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. The Journals of Gerontology Series A 2025-11-06 Caregiving

    Nearly half (48%) of older adults experienced an inpatient admission, and nearly all (92%) experienced a potentially burdensome intervention.

  21. We have enrolled 29 clinicians and 53 FCPs and aim to have 24 clinicians matched with 96 FCPs (N = 120) to complete the intervention.

  22. Supporting Dementia Caregiving With a Mobile Care Ecosystem: Development and Mixed Methods Study

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. JMIR Aging 2025-11-03 Caregiving

    In phase 1, the mean system usability scores increased from 65.4 (SD 11.8) in round 1 to 73.8 (SD 15.9) in round 3, exceeding the benchmark of 68.

  23. Advances in Intervention Strategies for Advance Care Planning in Dementia Patients

    ✓ Peer-reviewed alzhub usefulness score 27 out of 100. DOAJ (DOAJ: Directory of Open Access Journals) 2025-11-01 End-of-life care

    Advance care planning aims to allow individuals to discuss their goals and preferences for future medical and nursing care with family members and medical personnel in advance when they still have decision-making ability, so that individuals can receive medical care that meets their preferences when they lose their decision-making ability.

  24. Clinician-Identified Health Characteristics and Palliative Care Eligibility: Is Dementia Overlooked?

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. The American Journal of Managed Care 2025-11-01 Health systems and care delivery

    Of 343 palliative care evaluations (for 322 unique patients), 38% were of patients who identified as African American/Black, 38% as White, 9% as Asian/Pacific Islander, and 15% as other races; 41% were of patients who identified as Hispanic/Latino (measured separately from race); 80% were of female patients; and the mean patient age was 88 years.

  25. GUIDE and Beyond: Strategies for Comprehensive Dementia Care Integration

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Journal of the American Geriatrics Society 2025-11 Caregiving

    Written by leaders of six established comprehensive dementia-care programs (including Care Ecosystem, MIND at Home, and BRI Care Consultation) that helped shape the CMS GUIDE model, this paper lays out a practical four-step roadmap for organizations trying to launch or sustain comprehensive dementia care programs like GUIDE.

  26. Minority Stress, Discrimination, and Health Outcomes Among LGBTQ+ Older Adult Dementia Caregivers

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. American Journal of Alzheimer s Disease & Other Dementias® 2025-11-01 Disparities

    Using LGBTQ+ Social Networks, Aging, and Policy Study Wave 3 data (N = 982), this study examines how caregiving for individuals with mild cognitive impairment, Alzheimer’s disease, and related dementias (MCI/ADRD) impacts everyday stressors, discrimination, and health outcomes among LGBTQ+ older adults in the Southern United States.

  27. Perspectives on artificial intelligence-enabled socially assistive robots in long-term care: Experiences with LOVOT among people with dementia and family caregivers

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Digital Health 2025-11-01 Digital health tools

    Three themes identified include (a) LOVOT's role in supporting engagement and stimulating conversation, (b) the irreplaceability of human touch and emotional nuances, and (c) concerns about ownership and equitable resource allocation.

  28. Predicting hospice eligibility among dementia patients using language models

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer s & Dementia 2025-11-01 End-of-life care

    Of 9872 individuals, 3563 (36%) died within 6 months.

  29. Behavioral Challenges and Adaptive Strategies in Providing Mealtime Care to Residents With Dementia: A Qualitative Study of Nursing Home Clinical and Administrative Staff

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Journal of Applied Gerontology 2025-10-31 Clinical safety

    This study examined how nursing home staff adapt to challenging mealtime behaviors in residents with dementia, such as turning away or refusing food.

  30. Psychological distress and cultural role conflict among dementia family caregivers in China: a phenomenological study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. BMC Nursing 2025-10-30 Caregiving

    Four themes emerged: layered caregiving burden, cultural strain and emotional dissonance, dual emotional experiences of caregiving, and coping strategies and unmet needs.

  31. Four GPs and eleven physicians were interviewed, and four major themes emerged: (1) knowledge of best practices of BPSD management, (2) awareness of current challenges in BPSD management, (3) non-involvement, blame shifting and rationalisation: perceived reasons for the current challenges and (4) suggested solutions.

  32. Continuity of primary care and end-of-life care costs in dementia: a retrospective cohort study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. British Journal of General Practice 2025-10-24 End-of-life care

    = 18 556) lived in care homes before death.

  33. The final models included six predictors: caregivers' social support, caregivers' employment situation, caregivers' average daily care duration, caregivers' monthly family income, caregivers' self-efficacy and PwD's chronic disease.

  34. Overall, 75.9% of the caregivers reported experiencing at least a mild burden, and the levels of depression, anxiety, and stress among the caregivers were higher than expected.

  35. Barriers and Facilitators for Implementing a Dementia Family Caregiver Support Strategy Among Latinos in Primary Care

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of applied gerontology : the official journal of the Southern Gerontological Society 2025-10-18 Health systems and care delivery

    Latino family caregivers of people with dementia face significant challenges and limited access to support.

  36. Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregivers

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Proceedings of the ACM on Human-Computer Interaction 2025-10-16 Caregiving

    Alzheimer's Disease and Related Dementias (AD/ADRD) are progressive neurodegenerative conditions that impair memory, thought processes, and functioning.

  37. Family In The Loop: Enabling Family Involvement and Person-Centered Dementia Care at Long-Term Care Facilities with Collaborative AI Tools

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Proceedings of the ACM on Human-Computer Interaction 2025-10-16 Caregiving

    Person-centered care provides a critical framework for dementia support in long-term care facilities, emphasizing attention to each resident's evolving needs, personal history, preferences, and values.

  38. A Qualitative Study to Characterize the Experiences of Patients and Caregivers With Dementia Diagnostic Disclosure Communication and Care Planning

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of Geriatric Psychiatry and Neurology 2025-10-15 Caregiving

    BackgroundClinician communication at the time of a dementia diagnosis often inadequately addresses patient and caregiver needs.

  39. A randomized trial of two online platforms for dementia family caregivers: GamePlan4Care and Resources4Care

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. Alzheimer's & Dementia 2025-10-14 Caregiving

    Improving digital technology for caregivers requires studies with larger populations and longitudinal outcomes.

  40. Impact of Specialty and Nonspecialty Palliative Care on Quality of Dying With Alzheimer's Disease or Related Dementias

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Medical Care 2025-10-13 End-of-life care

    Nineteen articles involving 142,772 participants were included.

  41. Problem-solving training to improve caregiver burden and depressive symptoms among dementia caregivers: personal and clinical factors of responders vs. non-responders

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Frontiers in Public Health 2025-10-10 Caregiving

    We previously demonstrated that PST/DSJ improved caregiver burden and depressive symptoms among caregivers of adults with Alzheimer’s Disease and related dementias (ADRD), regardless of the number of sessions or boosters received.

  42. Supporting informal caregivers of dementia patients in China: action needed

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. Frontiers in Psychology 2025-10-10 Caregiving

    Beyond these practical challenges, caregivers often endure significant physical exhaustion and sleep deprivation from the unrelenting demands of caregiving, which can lead to chronic fatigue and deteriorating health (Liu et al., 2022; Mao et al., 2024).

  43. Leaving no one behind: findings from stakeholder discussions in Maryland on supporting persons living alone with dementia

    ✓ Peer-reviewed alzhub usefulness score 26 out of 100. Planning Practice and Research 2025-10-09 Risk factors

    Individuals living alone with dementia are rising rapidly, yet this group remains largely unrecognized in dementia care planning.

  44. Latino Caregiver Experiences With Dementia Care and Healthcare Navigation

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Journal of the American Geriatrics Society 2025-10-06 Caregiving

    We identified two main themes (each with subthemes) that influence Latino dementia caregiver experiences with healthcare: (1) caregiving and understanding of dementia shaped by individual, family, and social factors (subthemes: Caregiver's own understanding of dementia; Lack of support and understanding from family; Latino cultural perspectives on dementia); and (2) navigating formal services amid gaps in cultural alignment and support (subthemes: Trial and error: education and resource gaps; Cultural tension with healthcare).

  45. Living well with dementia: a qualitative interview study on family caregivers’ call for more person- and family-centered dementia support

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. BMC Geriatrics 2025-10-06 Caregiving

    Three themes were identified: (1) Struggling with conflicting emotions and social challenges - caregivers reported experiencing stress, physical exhaustion, and emotional strain due to constant availability and the challenges of managing behavioral changes, further intensified by isolation and shrinking social networks.

  46. Benzodiazepine or Antipsychotic Use and Mortality Risk Among Patients With Dementia in Hospice Care

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. JAMA Network Open 2025-10-01 Treatments

    In this national case-control study of nursing home residents with ADRD receiving hospice care, initiation of benzodiazepine or antipsychotic use was associated with increased 180-day mortality.

  47. Beyond the Primary Caregiver: A Scoping Review of Family-Centered Dementia Caregiving Programs

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. American Journal of Alzheimer s Disease & Other Dementias® 2025-10-01 Caregiving

    Most dementia caregiver programs focus on a single caregiver, overlooking diverse caregiving networks that include family, friends, and relatives who provide care.

  48. Efficacy and cost-effectiveness of extended nursing roles in dementia care: Results of the cluster-randomized trial InDePendent

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Alzheimer's & Dementia 2025-10 Costs and economics

    The results provide evidence for the efficacy and cost-effectiveness of extended nursing roles in dementia care, demonstrating that extended nursing roles reduce unmet needs and improve quality of life.

  49. Mobile App Psychoeducation for Dementia Caregivers In Vietnam: A Randomized Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 58 out of 100. Journal of Multidisciplinary Healthcare 2025-10-01 Caregiving

    A total of 172 participants were randomized.

  50. Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. International Journal of Geriatric Psychiatry 2025-10-01 Caregiving

    All dyads had at least one unmet need. A combined model incorporating predictors from both PWD and caregivers indicated that PLWD having lower education, being male, and exhibiting more neuropsychiatric symptoms are associated with more unmet needs.

From across this tag

9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

All topic tags with their study counts