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Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care
Christine Meng, Safira Lachapelle, Adebusola Adekoya, Lucy M. Kervin, Kishore Seetharaman, Koushambhi Basu Khan, Jennifer Baumbusch. Journal of Family Nursing, 2025-02-01
Topic: Risk, prevention and care in population studies
Family caregivers provide essential care and support for individuals living with dementia, yet their contributions and needs are often unrecognized within formal health care systems. Over time, this marginalization can contribute to long-term trauma. Guided by a trauma-informed care (TIC) framework, we explored the experiences of 15 family caregivers in a longitudinal, qualitative study. Set in British Columbia, Canada, data were collected through semi-structured interviews and reflective diaries. Data were analyzed using inductive-deductive thematic analysis. Deductive analyses demonstrated that participants' experiences aligned with existing TIC principles. Inductive analysis identified "Uncertainty" as a novel principle, reflecting the ongoing challenges caregivers face from diagnosis to the inadequacy of in-home supports. Our study highlights the importance of recognizing trauma induced by interactions with formal health care services and the value of using a TIC approach with family caregivers of people living with dementia.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Meng, C., Lachapelle, S., Adekoya, A., Kervin, L. M., Seetharaman, K., Khan, K. B., et al. (2025). Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care. Journal of Family Nursing. https://doi.org/10.1177/10748407251314549
Vancouver
Meng C, Lachapelle S, Adekoya A, Kervin LM, Seetharaman K, Khan KB, et al. Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care. Journal of Family Nursing. 2025. doi:10.1177/10748407251314549. PMID: 39916411.
BibTeX
@article{meng2025-39916411,
author = {Meng, Christine and Lachapelle, Safira and Adekoya, Adebusola and Kervin, Lucy M. and Seetharaman, Kishore and Khan, Koushambhi Basu and Baumbusch, Jennifer},
title = {{Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care}},
journal = {Journal of Family Nursing},
year = {2025},
doi = {10.1177/10748407251314549},
pmid = {39916411},
url = {https://doi.org/10.1177/10748407251314549}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
Key findings
- Deductive analyses demonstrated that participants' experiences aligned with existing TIC principles.
Why it matters
This study found that family caregivers' experiences aligned with trauma-informed care principles and identified 'Uncertainty' as a novel principle reflecting ongoing challenges from diagnosis to inadequate in-home supports. It highlights the importance of recognizing trauma induced by interactions with formal health care services.
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Study details
- Study designlongitudinal study
- Evidence strengthModerate
How this study scored 46/100
Published in a peer-reviewed journal, and it is a longitudinal study following the same people over time. Scored zero for sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Family Nursing) |
| Journal's citation record | 0 / 4 | Journal of Family Nursing: journal h-index 66 (OpenAlex, 2026-10-29) |
| Study design | 7 / 12 | A longitudinal study following the same people over time |
| Strength of evidence | 3 / 5 | Rated “moderate” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 3.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Jennifer Baumbusch: h-index 31 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | University of British Columbia: institution h-index 1,424 (OpenAlex) |
| Multicenter collaboration | 2 / 3 | OpenAlex lists 4 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39916411) |
| Free to read | 2 / 2 | Free to read |
| Total | 46 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1177/10748407251314549
- PubMed: 39916411
- Original source →
- Free full text: Journal of Family Nursing →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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