% alzhub.org topic: planning % Source: https://alzhub.org/topic/planning % 1013 entries, in the order the page lists them. Built from alzhub.org's own records. % 0 entries have no readable author in the source record and carry no author field. @article{oh2026-8b5f6fe0, author = {Oh, Oonjee and Oliver, Debra Parker and Washington, Karla and Demiris, George}, title = {{Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff}}, journal = {Innovation in Aging}, year = {2026}, doi = {10.1093/geroni/igag105}, url = {https://doi.org/10.1093/geroni/igag105} } @article{ni2026-03da5c94, author = {Ni, C. and Xia, L. and Song, L. and Chen, Q. and Huang, S. and Malin, B. and Yin, Z.}, title = {{Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey}}, journal = {medRxiv (preprint)}, year = {2026}, doi = {10.64898/2026.09.02.26362079}, url = {https://doi.org/10.64898/2026.09.02.26362079} } @article{hwang2026-21635bc1, author = {Hwang, Y. M. and Mungle, T. and Kwan, A. A. and Pillai, M. and Sahai, M. and Ng, M. and Handler, R. and Hernandez-Boussard and others}, title = {{Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers}}, journal = {medRxiv (preprint)}, year = {2026}, doi = {10.64898/2026.08.12.26360253}, url = {https://doi.org/10.64898/2026.08.12.26360253} } @article{cho2026-42509205, author = {Cho, KyungAh and JUNGHEE, K. A. N. G. and Lee, Jung‐Ah and Baek, Sang Yi and Ko, Young and Kim, JinShil}, title = {{Attitudes and Decisional Conflict in Family Caregivers of Persons With Dementia: A Mediating Role of Perceived Benefits of Advance Care Planning}}, journal = {Journal of Applied Gerontology}, year = {2026}, doi = {10.1177/07334648261472262}, pmid = {42509205}, url = {https://doi.org/10.1177/07334648261472262} } @article{matthys2026-be747787, author = {Matthys, Adrienne and Cash, Belinda and Moorhead, Bernadette}, title = {{Voluntary assisted dying views and experiences of Australians living with dementia: a qualitative study}}, journal = {Mortality}, year = {2026}, doi = {10.1080/13576275.2026.2704548}, url = {https://doi.org/10.1080/13576275.2026.2704548} } @article{marcus2026-24c01465, author = {Marcus, Esther‐Lee and Shaulov, Adir}, title = {{End-of-life and Palliative Care in Dementia: An Overview for Clinicians}}, journal = {Current Treatment Options in Neurology}, year = {2026}, doi = {10.1007/s11940-026-00879-5}, url = {https://doi.org/10.1007/s11940-026-00879-5} } @article{howes2026-42412959, author = {Howes, Jared and Denier, Yvonne and Vandemeulebroucke, Tijs and Gastmans, Chris}, title = {{Guiding the Ethics of Locator Devices in Dementia Care: Tutorial on Developing a Question-Based Ethical Framework}}, journal = {Journal of Medical Internet Research}, year = {2026}, doi = {10.2196/91667}, pmid = {42412959}, url = {https://doi.org/10.2196/91667} } @article{yang2026-42410659, author = {Yang, C. T. and Wilkins, J. M. and Kesselheim, A. S. and Kim, D. H. and Lin, K. J.}, title = {{Clinical outcomes after antipsychotic discontinuation in nursing home residents with dementia: a nationwide cohort study}}, journal = {Alzheimer's Research \& Therapy}, year = {2026}, doi = {10.1186/s13195-026-02134-0}, pmid = {42410659}, url = {https://doi.org/10.1186/s13195-026-02134-0} } @article{han2026-42233272, author = {Han, Hae-Ra and Perrin, Nancy and Yun, Ji-Young and Min, Deborah and Kwon, Simona C and Joo, Jinhui and Cho, Ji-Young and Kim, Sara and others}, title = {{Efficacy of a language-concordant community health worker intervention to improve community-to-clinic linkage for dementia care: results of the randomized trial PLAN}}, journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association}, year = {2026}, doi = {10.1002/alz.71541}, pmid = {42233272}, url = {https://doi.org/10.1002/alz.71541} } @article{trang2026-c4f32720, author = {Trang, Nguyen Thu and Minh, Bui Thanh and Hang, Dao Thuy and Linh, Dinh Phuong and Lan, Le Thi}, title = {{Perceptions of Dementia Threats and Related Advance Care Planning among Adults in Central Vietnam}}, journal = {VNU Journal of Social Sciences and Humanities}, year = {2026}, doi = {10.33100/jossh.2026.2.1.9}, url = {https://doi.org/10.33100/jossh.2026.2.1.9} } @article{white2026-42218737, author = {White, Elizabeth M. and Gozalo, Pedro L. and Santostefano, Christopher M. and Kosar, Cyrus M. and McGarry, Brian E. and Geng, Fangli and Zorowitz, Robert A. and Grabowski, David C. and others}, title = {{Institutional Special Needs Plans and End-of-Life Outcomes for Nursing Home Residents With Dementia}}, journal = {JAMA Health Forum}, year = {2026}, doi = {10.1001/jamahealthforum.2026.1649}, pmid = {42218737}, url = {https://doi.org/10.1001/jamahealthforum.2026.1649} } @article{bloom2026-42178213, author = {Bloom, Rachel F. and Lou, Yifan and Monin, Joan K. and Fried, Terri R. and Mroz, Emily L.}, title = {{How bereaved adult-children of parents with dementia use end-of-life caregiving experiences to inform their personal advance care planning}}, journal = {The Journals of Gerontology Series B}, year = {2026}, doi = {10.1093/geronb/gbag091}, pmid = {42178213}, url = {https://doi.org/10.1093/geronb/gbag091} } @article{grudzen2026-42095683, author = {Grudzen, Corita R. and Brody, Abraham A. and Chodosh, Joshua and Goldfeld, Keith S. and Shah, Manish N.}, title = {{Emergency Departments Leading the Transformation of Alzheimer's and Dementia Care}}, journal = {Journal of the American Geriatrics Society}, year = {2026}, doi = {10.1111/jgs.70506}, pmid = {42095683}, url = {https://doi.org/10.1111/jgs.70506} } @article{beltran2026-42071314, author = {Beltran, Susanny J. and Chisholm, Latarsha and Jaijairam, Emily}, title = {{Stakeholder Perspectives on Integrating ADEPT Into End‐Of‐Life Care for Nursing Home Residents With Dementia: A Qualitative Descriptive Study}}, journal = {International Journal of Older People Nursing}, year = {2026}, doi = {10.1111/opn.70081}, pmid = {42071314}, url = {https://doi.org/10.1111/opn.70081} } @article{vandersteen2026-42069237, author = {van der Steen, Jenny Theodora and Xu, Jingyuan and Tros, Willemijn and Blom, Jeanet W.}, title = {{Optimizing Approaches in Advance Care Planning in Dementia as Perceived by General Practitioners}}, journal = {Journal of Pain and Symptom Management}, year = {2026}, doi = {10.1016/j.jpainsymman.2026.04.618}, pmid = {42069237}, url = {https://doi.org/10.1016/j.jpainsymman.2026.04.618} } @article{nishikawa2026-42366068, author = {Nishikawa, Mitsunori}, title = {{Advance care planning for people with dementia}}, journal = {Nippon Ronen Igakkai Zasshi Japanese Journal of Geriatrics}, year = {2026}, doi = {10.3143/geriatrics.63.110}, pmid = {42366068}, url = {https://doi.org/10.3143/geriatrics.63.110} } @article{lynch2026-41962917, author = {Lynch, David H. and Lynch, Molly E. and Wessell, Kathryn L. and Lin, Feng-Chang and Toles, Mark and Mitchell, Susan and Hanson, Laura C.}, title = {{Stage of Disease Among Hospitalized Persons Living With Dementia: A Multisite Study}}, journal = {Journal of the American Medical Directors Association}, year = {2026}, doi = {10.1016/j.jamda.2026.106183}, pmid = {41962917}, url = {https://doi.org/10.1016/j.jamda.2026.106183} } @article{raphael2026-42075667, author = {Raphael, Donna de Levante and Kasselman, Lora J. and Drewes, Wendy and Wolff, Isabella and Betlow, Luke and De Leon, Joshua and Reiss, Allison Bethanne}, title = {{The Impact of Dementia Caregiving on the Health of the Spousal Caregiver}}, journal = {Medicina}, year = {2026}, doi = {10.3390/medicina62040796}, pmid = {42075667}, url = {https://doi.org/10.3390/medicina62040796} } @article{yauk2026-42003218, author = {Yauk, Jessica and Dobbs, Debra and Peterson, Lindsay J. and Meng, Hongdao}, title = {{Assisted Living Staff Perspectives on End-Of-Life Care for Residents Living With Dementia: A Qualitative Study}}, journal = {American Journal of Hospice and Palliative Medicine®}, year = {2026}, doi = {10.1177/10499091261444002}, pmid = {42003218}, url = {https://doi.org/10.1177/10499091261444002} } @article{mulcahy2026-b8da6e83, author = {Mulcahy, John and Amjad, Halima and Neprash, Hannah T. and Huckfeldt, Peter J. and Gaugler, Joseph E.}, title = {{Healthcare provider adoption of cognitive assessment and care planning services associated with uptake among peers}}, journal = {Alzheimer s \& Dementia Behavior \& Socioeconomics of Aging}, year = {2026}, doi = {10.1002/bsa3.70075}, url = {https://doi.org/10.1002/bsa3.70075} } @article{rogers2026-41979943, author = {Rogers, Anita Hendrix and Roach, Ashley and Lopez, Ruth Palan}, title = {{The role of spirituality among nursing home staff caring for residents with advanced dementia: a qualitative descriptive study}}, journal = {International Journal of Palliative Nursing}, year = {2026}, doi = {10.12968/ijpn.2023.0035}, pmid = {41979943}, url = {https://doi.org/10.12968/ijpn.2023.0035} } @article{yin2026-41930886, author = {Yin, Guo and Sivaramakrishnan, Divya and Wang, Yajing and Chong, Huimin and Macaden, Leah}, title = {{Barriers and facilitators to home-based end-of-life care for people with dementia: A meta-ethnographic study}}, journal = {International Journal of Nursing Studies}, year = {2026}, doi = {10.1016/j.ijnurstu.2026.105517}, pmid = {41930886}, url = {https://doi.org/10.1016/j.ijnurstu.2026.105517} } @article{falzarano2026-42018322, author = {Falzarano, F. B. and Greenfield, A. and Saviano, S. C. and Kolla, S. and Korian, S. and Osso, F. and Miller, J. and Whitson, H. E. and Maciejewski, P. K. and Prigerson, H. G.}, title = {{Digital Reminiscence for Predeath Grief Among Family Caregivers of Patients With Dementia: A Pilot Randomized Clinical Trial}}, journal = {JAMA Network Open}, year = {2026}, doi = {10.1001/jamanetworkopen.2026.8278}, pmid = {42018322}, url = {https://doi.org/10.1001/jamanetworkopen.2026.8278} } @article{qi2026-41953933, author = {Qi, Xiang and Ko, Eunjung and Ruan, Jia and Wang, Jing and Leong, Tek and Jung, Ju Hye and Su, Jin and Pei, Yaolin and others}, title = {{Stigma, isolation, and depression in Chinese and Korean American dementia caregivers}}, journal = {Alzheimer s \& Dementia Diagnosis Assessment \& Disease Monitoring}, year = {2026}, doi = {10.1002/dad2.70272}, pmid = {41953933}, url = {https://doi.org/10.1002/dad2.70272} } @article{kiss2026-41913169, author = {Kiss, Hedvig and Balogh, Zoltán and Szabó, Attila Péter and Nyilas, Orsolya and Takács, Péter}, title = {{Burnout severity in residential dementia care: individual demands and institutional-level variation in a Hungarian cross-sectional study}}, journal = {BMC Nursing}, year = {2026}, doi = {10.1186/s12912-026-04579-y}, pmid = {41913169}, url = {https://doi.org/10.1186/s12912-026-04579-y} } @article{shi2026-a7ab09d0, author = {Shi, Jiayue Melissa and Yoo, Dong Whi and Wang, Keran and Rodriguez, Violeta J. and Karkar, Ravi and Saha, Koustuv}, title = {{Mapping Caregiver Needs to AI Chatbot Design: Strengths and Gaps in Mental Health Support for Alzheimer's and Dementia Caregivers}}, journal = {ACM Transactions on Computing for Healthcare}, year = {2026}, doi = {10.1145/3803549}, url = {https://doi.org/10.1145/3803549} } @article{hu2026-41845865, author = {Hu, Zhiwei and Raji, Mukaila A. and Shan, Yong and Tzeng, Huey‐Ming and O'Mahony, Mr Seán and Kuo, Yong‐Fang}, title = {{Annual Wellness Visits and Timing of Advance Care Planning Among Medicare Beneficiaries With Cognitive Impairment}}, journal = {Journal of the American Geriatrics Society}, year = {2026}, doi = {10.1111/jgs.70368}, pmid = {41845865}, url = {https://doi.org/10.1111/jgs.70368} } @article{zhang2026-41823305, author = {Zhang, Xi and Wang, Jing and Chen, Fangyao and Hu, Xiaohong and Qu, Yan}, title = {{Advance Care Planning Intention and Associated Factors Among People With Dementia: A Mixed‐Methods Study}}, journal = {Journal of Advanced Nursing}, year = {2026}, doi = {10.1111/jan.70521}, pmid = {41823305}, url = {https://doi.org/10.1111/jan.70521} } @article{krier2026-41819365, author = {Krier, Damien and Abouelfath, Abdelilah and Jové, Jérémy and Amieva, Hélène and Carcaillon‐Bentata, Laure and Wittwer, Jérôme}, title = {{Healthcare Utilization Among Older Adults With Dementia in France: A Comparative Analysis of a Dementia Village and Traditional Nursing Homes}}, journal = {Value in Health}, year = {2026}, doi = {10.1016/j.jval.2026.02.011}, pmid = {41819365}, url = {https://doi.org/10.1016/j.jval.2026.02.011} } @article{gonella2026-41803698, author = {Gonella, Silvia Silva Moreira and Di Giulio, Paola and Olagnero, Jacopo Maria and Quaranta, Daniele and Nagliati, Giulia and Dimonte, Valerio and Campagna, Sara}, title = {{Understanding the family caregivers’ needs in late-stage dementia: a qualitative perspective to inform policy action}}, journal = {BMC Geriatrics}, year = {2026}, doi = {10.1186/s12877-026-07201-7}, pmid = {41803698}, url = {https://doi.org/10.1186/s12877-026-07201-7} } @article{kastbom2026-138f5188, author = {Kastbom, Lisa and Lyth, Johan and Simmons, Johanna and Martinsson, Lisa and Eriksdotter, Maria and Lundström, S. and Nägga, Katarina and Segernäs, Anna}, title = {{Additional file 1 of Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31976686.v1}, url = {https://doi.org/10.6084/m9.figshare.31976686.v1} } @article{kastbom2026-72d3154c, author = {Kastbom, Lisa and Lyth, Johan and Simmons, Johanna and Martinsson, Lisa and Eriksdotter, Maria and Lundström, S. and Nägga, Katarina and Segernäs, Anna}, title = {{Additional file 1 of Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31976686}, url = {https://doi.org/10.6084/m9.figshare.31976686} } @article{kastbom2026-41794789, author = {Kastbom, Lisa and Lyth, Johan and Simmons, Johanna and Martinsson, Lisa and Eriksdotter, Maria and Lundström, Staffan and Nägga, Katarina and Segernäs, Anna}, title = {{Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study}}, journal = {BMC Palliative Care}, year = {2026}, doi = {10.1186/s12904-026-02037-9}, pmid = {41794789}, url = {https://doi.org/10.1186/s12904-026-02037-9} } @article{liougas2026-41784545, author = {Liougas, Madalena P. and Grigorovich, Alisa and Bianchi, Andria and Haslam‐Larmer, Lynn and Shum, Leia C and Iaboni, Andrea and McMurray, Josephine}, title = {{Ethical Tensions in the Use of Real-Time Location Systems in Dementia Care: Balancing Safety, Privacy, and Autonomy}}, journal = {The American Journal of Bioethics}, year = {2026}, doi = {10.1080/15265161.2026.2637089}, pmid = {41784545}, url = {https://doi.org/10.1080/15265161.2026.2637089} } @article{eaglestone2026-41782337, author = {Eaglestone, Gillian and Stoner, Charlotte R. and Pacella, Rosana and McCrone, Paul}, title = {{Cost-effectiveness of a music therapy intervention for people living with dementia: a model for a UK-based economic evaluation}}, journal = {Aging \& Mental Health}, year = {2026}, doi = {10.1080/13607863.2026.2639043}, pmid = {41782337}, url = {https://doi.org/10.1080/13607863.2026.2639043} } @article{sanchezgil2026-41859267, author = {Sánchez-Gil, Alba and Calleja-Caballero, Andrea and Robledo, Fátima Pérez and Martín-Sánchez, Carlos and Rodríguez-Lorenzo, María José and Martínez-Romo, María and Pérez, Enrique and Rodríguez-Muñoz, Pedro Manuel and others}, title = {{Mental health of caregivers for people with dementia and cerebral palsy as a key determinant of caregiver burden: a multivariable analysis}}, journal = {Frontiers in Public Health}, year = {2026}, doi = {10.3389/fpubh.2026.1757413}, pmid = {41859267}, url = {https://doi.org/10.3389/fpubh.2026.1757413} } @article{tripdatabase2026-3e7fbd62, author = {Tripdatabase}, title = {{What are the best practices for providing end-of-life care to patients with coexisting COPD, dementia, and cancer?}}, journal = {Zenodo (CERN European Organization for Nuclear Research)}, year = {2026}, doi = {10.5281/zenodo.18863644}, url = {https://doi.org/10.5281/zenodo.18863644} } @article{tripdatabase2026-d146103e, author = {Tripdatabase}, title = {{What are the best practices for providing end-of-life care to patients with coexisting COPD, dementia, and cancer?}}, journal = {Zenodo (CERN European Organization for Nuclear Research)}, year = {2026}, doi = {10.5281/zenodo.18863643}, url = {https://doi.org/10.5281/zenodo.18863643} } @article{riley2026-2621ae72, author = {Riley, Sean R. and Joshi, Shivam and Stevens, Erin and Moss, Karen O. and Hyer, J. Madison and Bose‐Brill, Seuli}, title = {{Advance care planning in Medicare beneficiaries with Alzheimer's disease and related dementias}}, journal = {Alzheimer s \& Dementia Behavior \& Socioeconomics of Aging}, year = {2026}, doi = {10.1002/bsa3.70070}, url = {https://doi.org/10.1002/bsa3.70070} } @article{sireesha2026-41766096, author = {Sireesha, Jala and Manukinda, Jayasree and Vooturi, Sudhindra and Sirisha, Sai and Somayajula, Shanmukhi and Jayalakshmi, Sita}, title = {{Effect of Mindfulness-Based Stress Reduction Activities on Family Caregiver Burden in Patients With Dementia—A Pilot Study}}, journal = {Home Healthcare Now}, year = {2026}, doi = {10.1097/nhh.0000000000001426}, pmid = {41766096}, url = {https://doi.org/10.1097/nhh.0000000000001426} } @article{jeon2026-41763155, author = {Jeon, Yun‐Hee and McKenzie, Heather A.}, title = {{A qualitative inquiry about end-of-life care for people with advanced dementia: “Planning ahead not in reality”}}, journal = {Geriatric Nursing}, year = {2026}, doi = {10.1016/j.gerinurse.2026.103975}, pmid = {41763155}, url = {https://doi.org/10.1016/j.gerinurse.2026.103975} } @article{li2026-41714582, author = {Li, Niying and Look, Kevin A. and Chou, Lin‐Na}, title = {{Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model}}, journal = {Journal of General Internal Medicine}, year = {2026}, doi = {10.1007/s11606-026-10208-w}, pmid = {41714582}, url = {https://doi.org/10.1007/s11606-026-10208-w} } @article{scheeresfeitsma2026-41689565, author = {Scheeres‐Feitsma, Trijntje M. and Schaafsma, Petruschka and van Kempen, Janneke and van der Steen, Jenny Theodora}, title = {{Bringing up the end of life and euthanasia. A mixed method study on consultations with people with dementia and their families in the hospital setting}}, journal = {Palliative Medicine}, year = {2026}, doi = {10.1177/02692163261416275}, pmid = {41689565}, url = {https://doi.org/10.1177/02692163261416275} } @article{nagata2026-41688417, author = {Nagata, Tomoyuki and Shinagawa, Shunichiro and Noto, Shinichi and Yamato, Kentaro and Mori, Naoki and Onuki, Keisuke}, title = {{Family Caregiver Burden and Neuropsychiatric Symptoms in Japanese Community‐Dwelling People With Alzheimer's Disease: A Cross‐Sectional Study Using a Web‐Based Questionnaire}}, journal = {Psychogeriatrics}, year = {2026}, doi = {10.1111/psyg.70143}, pmid = {41688417}, url = {https://doi.org/10.1111/psyg.70143} } @article{xue2026-41690252, author = {Xue, Dandan and Ye, Yifan and Chen, Zi and Hu, Yanqiu and Yuan, Changrong and Wang, Yanmei}, title = {{Effects of peer support interventions for family caregivers of persons with dementia: A systematic review and meta-analysis}}, journal = {Archives of gerontology and geriatrics}, year = {2026}, doi = {10.1016/j.archger.2026.106168}, pmid = {41690252}, url = {https://doi.org/10.1016/j.archger.2026.106168} } @article{vandernulft2026-3bf46635, author = {Van Der Nulft, Vera and Brinkman‐Stoppelenburg, Arianne and Mahieu, Liselotte A. I. and Hoffstädt, Hinke E. and van der Steen, Jenny Theodora and van Vliet, Liesbeth Mirjam and van der Linden, Yvette M.}, title = {{Additional file 1 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31724905}, url = {https://doi.org/10.6084/m9.figshare.31724905} } @article{vandernulft2026-98b0aa37, author = {Van Der Nulft, Vera and Brinkman‐Stoppelenburg, Arianne and Mahieu, Liselotte A. I. and Hoffstädt, Hinke E. and van der Steen, Jenny Theodora and van Vliet, Liesbeth Mirjam and van der Linden, Yvette M.}, title = {{Additional file 1 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31724905.v1}, url = {https://doi.org/10.6084/m9.figshare.31724905.v1} } @article{vandernulft2026-48c121d1, author = {Van Der Nulft, Vera and Brinkman‐Stoppelenburg, Arianne and Mahieu, Liselotte A. I. and Hoffstädt, Hinke E. and van der Steen, Jenny Theodora and van Vliet, Liesbeth Mirjam and van der Linden, Yvette M.}, title = {{Additional file 2 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31724908.v1}, url = {https://doi.org/10.6084/m9.figshare.31724908.v1} } @article{vandernulft2026-c12c4beb, author = {Van Der Nulft, Vera and Brinkman‐Stoppelenburg, Arianne and Mahieu, Liselotte A. I. and Hoffstädt, Hinke E. and van der Steen, Jenny Theodora and van Vliet, Liesbeth Mirjam and van der Linden, Yvette M.}, title = {{Additional file 2 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study}}, journal = {Figshare}, year = {2026}, doi = {10.6084/m9.figshare.31724908}, url = {https://doi.org/10.6084/m9.figshare.31724908} } @article{vandernulft2026-41664091, author = {Van Der Nulft, Vera and Brinkman‐Stoppelenburg, Arianne and Mahieu, Liselotte A. 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developing diversity-sensitive stories for family caregivers of Turkish individuals living with dementia}}, journal = {BMC Nursing}, year = {2025}, doi = {10.1186/s12912-025-03712-7}, pmid = {40797313}, url = {https://doi.org/10.1186/s12912-025-03712-7} } @article{wittenberg2025-40788643, author = {Wittenberg, Grace F and Serina, Peter T. and Stetten, Nichole E. and Reddy, Ann and McCreedy, Ellen M.}, title = {{Emergency Department Care Coordination Program for Assisted Living Residents With Dementia}}, journal = {JAMA Network Open}, year = {2025}, doi = {10.1001/jamanetworkopen.2025.26413}, pmid = {40788643}, url = {https://doi.org/10.1001/jamanetworkopen.2025.26413} } @article{rising2025-40788685, author = {Rising, Kristin L. and Gerolamo, Angela Marie and Sarpoulaki, Nazanin and Salcedo, Venise J. and Amadio, Grace and Casten, Robin J. and Chang, Anna Marie and Gentsch, Alexzandra T. and others}, title = {{Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment}}, journal = {Dementia}, year = {2025}, doi = {10.1177/14713012251361969}, pmid = {40788685}, url = {https://doi.org/10.1177/14713012251361969} } @article{white2025-40776848, author = {White, Elizabeth M. and Wagner, James R. and Stewart, Kate and Guyer, Heidi and Nelson, Sandi and Chiong, Winston and Muench, Ulrike and Sideman, Alissa Bernstein and others}, title = {{The National Dementia Workforce Study: Methods for Surveying Community Clinicians Who Provide Care to People With Dementia}}, journal = {Journal of the American Geriatrics Society}, year = {2025}, doi = {10.1111/jgs.70037}, pmid = {40776848}, url = {https://doi.org/10.1111/jgs.70037} } @article{bourke2025-40767121, author = {Bourke, Carolyn and Chenoweth, Lynn and Georgousopoulou, Ekavi N. and Williams, Anna}, title = {{Development and Validation of the End‐of‐Life Assessment Tool for Advanced Dementia: A Multi Method Study}}, journal = {Journal of Advanced Nursing}, year = {2025}, doi = {10.1111/jan.70129}, pmid = {40767121}, url = {https://doi.org/10.1111/jan.70129} } @article{bybee2025-40794557, author = {Bybee, Sara and Clayton, Jordana L and Aruscavage, Nancy R and Utz, Rebecca and Bigger, Sharon E. and Iacob, Eli and Dassel, Kara Bottiggi}, title = {{Engaging in the Life-planning in Early Alzheimer’s and other Dementias advance care planning intervention is associated with perceived advance care planning concordance and interpersonal connectedness}}, journal = {The Gerontologist}, year = {2025}, doi = {10.1093/geront/gnaf179}, pmid = {40794557}, url = {https://doi.org/10.1093/geront/gnaf179} } @article{white2025-40757954, author = {White, Carole L. and Choi, Byeong Yeob and Delgado, Roxana E. and Neidre, Daria B. and Peacock, Kimberly S. and Luy, Luis P. and Fernandez, Roman A. and Epps, Fayron R. and others}, title = {{Pilot Test of Aprendiendo Juntos/Learning Together Demonstrates Improved Self-Efficacy for Providing Care Among Latino Family Caregivers of Persons Living With Dementia}}, journal = {Western Journal of Nursing Research}, year = {2025}, doi = {10.1177/01939459251359209}, pmid = {40757954}, url = {https://doi.org/10.1177/01939459251359209} } @article{pokala2025-40831449, author = {Pokala, Shriya S. and Wandera, Stephen Ojiambo and Kawooya, Shafiq and Victoria, Akia Emily and Odo, Lodrick Wabwire and Nakasujja, Noeline and Diaz, Monica Maria}, title = {{Dementia knowledge and caregiver burden among carers of older adults in rural eastern Uganda}}, journal = {Alzheimer s \& Dementia}, year = {2025}, doi = {10.1002/alz.70587}, pmid = {40831449}, url = {https://doi.org/10.1002/alz.70587} } @article{su2025-40751254, author = {Su, Yung‐Yu and Wang, Wen-Fu and Jhang, Kai-Ming and Mau, Lih‐Wen and Chen, Chun‐Min}, title = {{Enhancing care service utilization and reducing burden: the role of needs assessments for dementia caregivers in long-term care}}, journal = {BMC Nursing}, year = {2025}, doi = {10.1186/s12912-025-03686-6}, pmid = {40751254}, url = {https://doi.org/10.1186/s12912-025-03686-6} } @article{sawyer2025-40904410, author = {Sawyer, Joseph M. and HIGGS, PAUL F. 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H. and Iroanyah, Ngozi and others}, title = {{Toward compassionate communication: a rapid review on facilitating the dementia disclosure process}}, journal = {Alzheimer s \& Dementia}, year = {2025}, doi = {10.1002/alz.70466}, pmid = {40779425}, url = {https://doi.org/10.1002/alz.70466} } @article{hadley2025-40742796, author = {Hadley, Jennifer M}, title = {{Communication and end-of-life care in dementia: insights from a close family member working in healthcare}}, journal = {British Journal of Community Nursing}, year = {2025}, doi = {10.12968/bjcn.2025.0015}, pmid = {40742796}, url = {https://doi.org/10.12968/bjcn.2025.0015} } @article{fortune2025-40735824, author = {Fortune, Darla and Gauthier-Gilbert, Amélie}, title = {{Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter}}, journal = {Canadian Journal on Aging / La Revue canadienne du vieillissement}, year = {2025}, doi = {10.1017/s0714980825100160}, pmid = {40735824}, url = 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Yunjin and Kim, Nayoung and Ok, Sang-Houn and Kim, Pilsu and Park, Ok-Hyun and Kim, Da-Mi and Jang, Yongwoo and others}, title = {{Beneficial effect of artificial intelligence care call on memory and depression in community dwelling individuals with dementia}}, journal = {Scientific Reports}, year = {2025}, doi = {10.1038/s41598-025-12895-7}, pmid = {40715350}, url = {https://doi.org/10.1038/s41598-025-12895-7} } @article{manzo2025-40713884, author = {Manzo, Alma A. and Segundo, Joahana and Britton, Maggie and Housten, Ashley J. and Baker, Zachary G.}, title = {{Equitable formal care access: examining processes for Hispanic/Latino family dementia caregivers’ decision-making}}, journal = {The Gerontologist}, year = {2025}, doi = {10.1093/geront/gnaf168}, pmid = {40713884}, url = {https://doi.org/10.1093/geront/gnaf168} } @article{harrison2025-40720566, author = {Harrison, Krista Lyn and Adrion, Emily and Friend, Juliana and Garrett, Sarah B. and Halim, Madina and Terranova, Michael J. and Sideman, Alissa Bernstein and Boyd, Nicole D. and others}, title = {{“It may cost you your money, it costs you your life”: a framework for financial hardship in dementia}}, journal = {The Gerontologist}, year = {2025}, doi = {10.1093/geront/gnaf170}, pmid = {40720566}, url = {https://doi.org/10.1093/geront/gnaf170} } @article{rosenberg2025-40702632, author = {Rosenberg, Karen Esther}, title = {{No improvement with palliative care in patients with moderate to severe dementia}}, journal = {AJN American Journal of Nursing}, year = {2025}, doi = {10.1097/ajn.0000000000000130a}, pmid = {40702632}, url = {https://doi.org/10.1097/ajn.0000000000000130a} } @article{smith2025-40696953, author = {Smith, Michael S. and Dickinson, Natalie and Sculthorpe, Nicholas F. and Ritchie, Louise and Kimble, Rachel}, title = {{Having Their Cake and Eating it Too: An Exploratory Mixed-Methods Study on the Dietary Behaviours of Family Carers of Persons With Dementia}}, journal = {Dementia}, year = {2025}, doi = {10.1177/14713012251355832}, pmid = {40696953}, url = {https://doi.org/10.1177/14713012251355832} } @article{li2025-40693770, author = {Li, Weiying and Wu, Yifan and Song, Dongpo and Zhi, Shengze and Gao, Shizheng and Fang, Shuyan and Zhong, Qiqing and Li, Jiaxin and others}, title = {{How to Implement Advance Care Planning for People With Dementia: A Scoping Review}}, journal = {Journal of Advanced Nursing}, year = {2025}, doi = {10.1111/jan.70083}, pmid = {40693770}, url = {https://doi.org/10.1111/jan.70083} } @article{chen2025-40705542, author = {Chen, Linbing and Ouyang, Yadan and Cheng, Chunyu and Chen, Zhenfei and Wang, Liping}, title = {{Validity and Reliability of a Chinese-Tailored Scale for the Evaluation of End-of-Life Care in Dementia Patients}}, journal = {British Journal of Hospital Medicine}, year = {2025}, doi = {10.12968/hmed.2025.0129}, pmid = {40705542}, url = {https://doi.org/10.12968/hmed.2025.0129} } @article{manee2025-40724791, author = {Manee, Fahad and 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dementia and family caregivers’ experiences from diagnosis to follow-up in Swedish primary care: a qualitative study}}, journal = {Scandinavian Journal of Primary Health Care}, year = {2025}, doi = {10.1080/02813432.2025.2529414}, pmid = {40650945}, url = {https://doi.org/10.1080/02813432.2025.2529414} } @article{ong2025-40650992, author = {Ong, Xin Wen and Le Couteur, David George and Waite, Louise M. and Thillainadesan, Janani}, title = {{End-of-life care in hospitalized patients with dementia}}, journal = {The Journals of Gerontology Series A}, year = {2025}, doi = {10.1093/gerona/glaf120}, pmid = {40650992}, url = {https://doi.org/10.1093/gerona/glaf120} } @article{price2025-41022373, author = {Price, Mollie Louise and Surr, Claire and Gough, Brendan and Howe, David M. and Ashley, Laura}, title = {{The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study}}, journal = {JMIR Cancer}, year = {2025}, 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Models and Economic Sustainability in The Elderly Care Market for Disabled and Dementia Patients in Urban China Under Population Aging}}, journal = {Journal of Education Humanities and Social Sciences}, year = {2025}, doi = {10.54097/xvam3a66}, url = {https://doi.org/10.54097/xvam3a66} } @article{nguyen2025-40625201, author = {Nguyen, Tran To Tran and Than, The Ha Ngoc and Nguyen, Tuan Chau and Vu, Lan Duong Tuyet and Truong, Khoa Tri and Thai, Truc Thanh and others}, title = {{Challenges, knowledge, and skills required for family caregivers of older adults with dementia: a qualitative study in Vietnam}}, journal = {Global Health Action}, year = {2025}, doi = {10.1080/16549716.2025.2526929}, pmid = {40625201}, url = {https://doi.org/10.1080/16549716.2025.2526929} } @article{grogan2025-40697616, author = {Grogan, Caroline and Harriman, Sarah and Martin, Elizabeth Anne and Waite, Rebecca and Fisher, Olivia J.}, title = {{Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers}}, journal = {Frontiers in Health Services}, year = {2025}, doi = {10.3389/frhs.2025.1550729}, pmid = {40697616}, url = {https://doi.org/10.3389/frhs.2025.1550729} } @article{healy2025-40616413, author = {Healy, T. M. and Thompson, Genevieve N. and Archibald, Mandy M.}, title = {{The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review}}, journal = {Dementia}, year = {2025}, doi = {10.1177/14713012251355292}, pmid = {40616413}, url = {https://doi.org/10.1177/14713012251355292} } @article{lim2025-40605056, author = {Lim, Xin Min and Chew, Esther Yin Hui and Glass, George Frederick and Chan, Ee‐Yuee}, title = {{Caregiver-involved reminiscence for persons with dementia: a scoping review protocol}}, journal = {Systematic Reviews}, year = {2025}, doi = {10.1186/s13643-025-02865-5}, pmid = {40605056}, url = {https://doi.org/10.1186/s13643-025-02865-5} } @article{umpimai2025-40648607, author = {Umpimai, Nantiya and Sangon, Sopin and Nintachan, Patcharin}, title = {{Factors Influencing Psychological Distress in Caregivers of People with Dementia}}, journal = {Healthcare}, year = {2025}, doi = {10.3390/healthcare13131582}, pmid = {40648607}, url = {https://doi.org/10.3390/healthcare13131582} } @article{biesmans2025-40604780, author = {Biesmans, Jesper M A and Bolt, Sascha and Hameleers, Niels and Schols, Jos M. G. A. and van der Steen, Jenny Theodora and Zwakhalen, Sandra M.G. and Janssen, Daisy J.A. and Meijers, Judith M M}, title = {{Impact of the DEDICATED approach to optimizing palliative care for people with dementia: a multi-method study}}, journal = {BMC Health Services Research}, year = {2025}, doi = {10.1186/s12913-025-13063-3}, pmid = {40604780}, url = {https://doi.org/10.1186/s12913-025-13063-3} } @article{molnar2025-40730438, author = {Molnar, Frank and Frank, Chris and Murphy, Rebekah and Kobewka, Daniel M. and Munene, Peter}, title = {{Advance care planning and goals of care discussions with patients living with dementia}}, journal = {Canadian Family Physician}, year = {2025}, doi = {10.46747/cfp.710708494}, pmid = {40730438}, url = {https://doi.org/10.46747/cfp.710708494} } @article{ancidoni2025-40832647, author = {Ancidoni, Antonio and Salemme, Simone and Marconi, Domitilla and Bellomo, Guido and Pani, Sara Maria and Locuratolo, Nicoletta and Lacorte, Eleonora and Lombardo, Flavia Lucia and others}, title = {{Advancing dementia care: a review of Italy’s public health response within the WHO Global Action Plan and European strategies}}, journal = {BMJ Public Health}, year = {2025}, doi = {10.1136/bmjph-2024-002250}, pmid = {40832647}, url = {https://doi.org/10.1136/bmjph-2024-002250} } @article{rhodus2025-40621818, author = {Rhodus, Elizabeth K. and Kryscio, Richard and Jicha, Gregory A. and Baum, Carolyn Manville and Henley, Laura and Fairchild, Vickie and Roberts, Celeste and Gibson, Allison}, title = {{Creating harmony at home via environmental cueing: A feasibility trial of a non‐pharmacological intervention for rural caregivers of persons with dementia}}, journal = {Alzheimer s \& Dementia}, year = {2025}, doi = {10.1002/alz.70405}, pmid = {40621818}, url = {https://doi.org/10.1002/alz.70405} } @article{jing2025-40594636, author = {Jing, Mei and He, Yi and Li, Jia and Chen, Fang and Pan, Shihua and Yang, Xu and Sun, Huimin}, title = {{Empathy and mental health distress in informal caregivers of dementia and stroke patients: a cross-sectional study}}, journal = {Scientific Reports}, year = {2025}, doi = {10.1038/s41598-025-07024-3}, pmid = {40594636}, url = {https://doi.org/10.1038/s41598-025-07024-3} } @article{ouyang2025-40598442, author = {Ouyang, Yadan and Cheng, Chunyu and Sun, Qing Yuan and Chen, Linbing and Wang, Liping}, title = {{Formal caregivers’ knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home}}, journal = {BMC Nursing}, year = {2025}, doi = {10.1186/s12912-025-03424-y}, pmid = {40598442}, url = {https://doi.org/10.1186/s12912-025-03424-y} } @article{smaling2025-40684251, author = {Smaling, Hanneke J. 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planning service visits: moving toward a palliative‐informed approach for ambulatory care of community‐dwelling persons with dementia and their caregivers}}, journal = {Alzheimer s \& Dementia}, year = {2025}, doi = {10.1002/alz.70074}, pmid = {40189832}, url = {https://doi.org/10.1002/alz.70074} } @article{christian2025-40162167, author = {Christian, Wrede and Annemarie, Braakman-Jansen and Lisette, van Gemert-Pijnen}, title = {{Smart monitoring technology to support home-based dementia care: Market-specific business model development and implementation considerations in the Netherlands}}, journal = {Digital health}, year = {2025}, doi = {10.1177/20552076251331825}, pmid = {40162167}, url = {https://doi.org/10.1177/20552076251331825} } @article{han2025-40163859, author = {Han, Areum and Oster, Robert A. and Yuen, Hon K. and Jenkins, Jeremy and Hawkins, Jessica and Edwards, Lauren}, title = {{Videoconference-Delivered Acceptance and Commitment Therapy for Family Caregivers of People 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A. and Walters, K. and Lang, I. A. and Rapaport, P. and Orgeta, V. and Rockwood, K. and Butler, L. T. and Lord, K. and Livingston, G. and others}, title = {{Cost-utility of a new psychosocial goal-setting and manualised support intervention for independence in dementia (NIDUS-Family) versus goal setting and routine care: an economic evaluation embedded within a randomised controlled trial}}, journal = {The Lancet Healthy Longevity}, year = {2025}, doi = {10.1016/j.lanhl.2024.100676}, pmid = {39978389}, url = {https://doi.org/10.1016/j.lanhl.2024.100676} } @article{calasanti2025-39955264, author = {Calasanti, Toni and Snow, Sadie and De Vries, Brian D. and Geng, Jing}, title = {{Gay Men as Caregivers for Spouses with Dementia: Intersections of Gender and Sexual Orientation}}, journal = {The Journals of Gerontology Series B}, year = {2025}, doi = {10.1093/geronb/gbaf026}, pmid = {39955264}, url = {https://doi.org/10.1093/geronb/gbaf026} } @article{gibbs2025-39956970, author = {Gibbs, Heather and Taylor, Matthew K. and Gibson, Cheryl and Mount, Rebecca R. and Sullivan, Austin M. and 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People with Dementia}}, journal = {Clinical Gerontologist}, year = {2025}, doi = {10.1080/07317115.2025.2464868}, pmid = {39924726}, url = {https://doi.org/10.1080/07317115.2025.2464868} } @article{pfaff2025-39922302, author = {Pfaff, M. and Hoffmann, W. and Boekholt, M. and Biernetzky, O. and Blotenberg, I. and Afrin, D. and Platen, M. and Teipel, S. and Thyrian, JR. and Kilimann, I. and Michalowsky, B.}, title = {{Cost-Effectiveness of a Digitally Supported Care Management Program for Caregivers of People With Dementia}}, journal = {Value in Health}, year = {2025}, doi = {10.1016/j.jval.2025.01.011}, pmid = {39922302}, url = {https://doi.org/10.1016/j.jval.2025.01.011} } @article{wang2025-39915709, author = {Wang, Shanshan and Luo, Yuqian and Shan, Qiuju and Liu, Minhui and Wang, Peng and Huang, Caihui and Leung, Isaac Sze Him}, title = {{Unraveling the subjective well-being of formal and informal caregivers for people with dementia: a comparative analysis}}, journal = {BMC 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Adults Increased From 18 Million To 24 Million, 2011–22}}, journal = {Health Affairs}, year = {2025}, doi = {10.1377/hlthaff.2024.00978}, pmid = {39899774}, url = {https://doi.org/10.1377/hlthaff.2024.00978} } @article{meng2025-39916411, author = {Meng, Christine and Lachapelle, Safira and Adekoya, Adebusola and Kervin, Lucy M. and Seetharaman, Kishore and Khan, Koushambhi Basu and Baumbusch, Jennifer}, title = {{Using a Trauma-Informed Care Approach to Understand Family Caregivers’ Experiences of Accessing Formal Supports in Dementia Care}}, journal = {Journal of Family Nursing}, year = {2025}, doi = {10.1177/10748407251314549}, pmid = {39916411}, url = {https://doi.org/10.1177/10748407251314549} } @article{zhang2025-39878947, author = {Zhang, Yuchen and Sereika, Susan M. and Seaman, Jennifer Burgher and Pettigrew, Corinne A. and Albert, Marilyn and Lingler, Jennifer Hagerty}, title = {{Caregivers’ Perspectives on Discussions of Medical Treatment Preferences for People Living With Dementia Are Associated With Their Dementia Health Literacy and the Caregiving Relationship}}, journal = {The Gerontologist}, year = {2025}, doi = {10.1093/geront/gnaf033}, pmid = {39878947}, url = {https://doi.org/10.1093/geront/gnaf033} } @article{rivers2025-39874544, author = {Rivers, Caroline and Gomez, Liliana Ramirez and Hanson, Laura C. and Ritchie, Christine Seel and Fischer, Stacy M. and Mino, Ilian and others}, title = {{Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care}}, journal = {Journal of Palliative Medicine}, year = {2025}, doi = {10.1089/jpm.2024.0335}, pmid = {39874544}, url = {https://doi.org/10.1089/jpm.2024.0335} } @article{mikhaylovaoconnell2025-39869120, author = {Mikhaylova-O’Connell, Yelena and Griffiths, Alys Wyn and da Cunha, Iria and Devi, Reena and Spilsbury, Karen and Cherry, Mary Gemma}, title = {{“There is always a reason why someone is doing something”: The importance of life history and personhood when 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