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A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study
Fanny Monnet, Charlèss Dupont, Lara Pivodic, Tinne Smets, Aline De Vleminck, Chantal Van Audenhove, Lieve Van den Block. Digital Health, 2025-01-01
Topic: Risk, prevention and care in population studies
Website goals were: providing ACP information and facilitating ACP conversations. A 'what matters most' approach (i.e. enabling users to reflect on 'what matters most' in the present and the future) and non-linear navigation were favoured. We tested the website with 17 people with dementia and 26 family caregivers. Feedback addressed design, navigation and content. Usability scores of 76.4 for family caregivers and 81.3 for people with dementia were achieved. Family caregivers and people with dementia highlighted the value of information and interactive ACP tools, the need for language simplification and harmonised layout. People with dementia experienced challenges in using interactive tools. The user-centred development process, involving diverse stakeholders, led to the development of an ACP support website deemed usable and useful. Future evaluation should focus on acceptability, feasibility and effectiveness of the ACP support website.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Monnet, F., Dupont, C., Pivodic, L., Smets, T., De Vleminck, A., Van Audenhove, C., et al. (2025). A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study. Digital Health. https://doi.org/10.1177/20552076241304018
Vancouver
Monnet F, Dupont C, Pivodic L, Smets T, De Vleminck A, Van Audenhove C, et al. A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study. Digital Health. 2025. doi:10.1177/20552076241304018. PMID: 39991741.
BibTeX
@article{monnet2025-39991741,
author = {Monnet, Fanny and Dupont, Charlèss and Pivodic, Lara and Smets, Tinne and De Vleminck, Aline and Van Audenhove, Chantal and Van den Block, Lieve},
title = {{A user-centred website to support advance care planning for people with dementia and their family caregivers: Development and usability study}},
journal = {Digital Health},
year = {2025},
doi = {10.1177/20552076241304018},
pmid = {39991741},
url = {https://doi.org/10.1177/20552076241304018}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
Key findings
- Website goals were: providing ACP information and facilitating ACP conversations.
- A 'what matters most' approach (i.e. enabling users to reflect on 'what matters most' in the present and the future) and non-linear navigation were favoured.
- We tested the website with 17 people with dementia and 26 family caregivers.
- Feedback addressed design, navigation and content.
- Usability scores of 76.4 for family caregivers and 81.3 for people with dementia were achieved.
Why it matters
This usability study developed a website to support advance care planning for people with dementia and their family caregivers, and it was rated as usable by participants. It addresses care planning support and does not test any treatment, cure, or prevention for Alzheimer's disease.
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Study details
- Participants17
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Digital Health) |
| Journal's citation record | 1 / 4 | Digital Health: journal h-index 77 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 17 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 2 / 6 | Cited 2.5× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Lieve Van den Block: h-index 56 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | KU Leuven: institution h-index 1,386 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39991741) |
| Free to read | 2 / 2 | Free to read |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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