Home › Research › Disparities
Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care
Caroline Rivers, Caroline Rivers, Liliana Ramirez Gomez, Liliana Ramirez Gomez, Laura C. Hanson, Christine Seel Ritchie, Stacy M. Fischer, Ilian Mino et al.. Journal of Palliative Medicine, 2025-01-28
Topic: Risk, prevention and care in population studies
Key reflections from advisor meetings guided cultural adaptation: lived experiences on dementia caregiving; patient, caregiver, and clinician interactions in the health care system; and limited knowledge and misconceptions of palliative care. Adaptations to the ADRD-PC study materials included specific consideration of preferred language, word choices (i.e., “palliative care” and “caregiver”), and recruitment considerations related to potential barriers to palliative care or research in general. Cultural adaptation of the ADRD-PC dementia palliative care clinical trial protocol depended on participatory methods and collaboration between Hispanic/Latino caregiver advisors and researchers, including bilingual, bicultural team members. Comparable methods may inform future culturally inclusive approaches to clinical research and thus improve representation of minoritized groups in dementia care research.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Rivers, C., Gomez, L. R., Hanson, L. C., Ritchie, C. S., Fischer, S. M., Mino, I., et al. (2025). Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care. Journal of Palliative Medicine. https://doi.org/10.1089/jpm.2024.0335
Vancouver
Rivers C, Gomez LR, Hanson LC, Ritchie CS, Fischer SM, Mino I, et al. Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care. Journal of Palliative Medicine. 2025. doi:10.1089/jpm.2024.0335. PMID: 39874544.
BibTeX
@article{rivers2025-39874544,
author = {Rivers, Caroline and Gomez, Liliana Ramirez and Hanson, Laura C. and Ritchie, Christine Seel and Fischer, Stacy M. and Mino, Ilian and others},
title = {{Convening Hispanic/Latino Caregiving Advisors for Inclusive Research in Dementia Palliative Care}},
journal = {Journal of Palliative Medicine},
year = {2025},
doi = {10.1089/jpm.2024.0335},
pmid = {39874544},
url = {https://doi.org/10.1089/jpm.2024.0335}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
Key findings
- Key reflections from advisor meetings guided cultural adaptation: lived experiences on dementia caregiving; patient, caregiver, and clinician interactions in the health care system; and limited knowledge and misconceptions of palliative care.
- Adaptations to the ADRD-PC study materials included specific consideration of preferred language, word choices (i.e., “palliative care” and “caregiver”), and recruitment considerations related to potential barriers to palliative care or research in general.
- Cultural adaptation of the ADRD-PC dementia palliative care clinical trial protocol depended on participatory methods and collaboration between Hispanic/Latino caregiver advisors and researchers, including bilingual, bicultural team members.
- Comparable methods may inform future culturally inclusive approaches to clinical research and thus improve representation of minoritized groups in dementia care research.
Why it matters
Hispanic/Latino caregiver advisors helped adapt dementia palliative care study materials for language, word choices, and recruitment. This is about making research more culturally inclusive, not about treating, curing, or preventing Alzheimer's disease.
New to this subject? Start with our plain-English guide: Disparities →
Study details
- Evidence strengthLow
How this study scored 37/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Palliative Medicine) |
| Journal's citation record | 1 / 4 | Journal of Palliative Medicine: journal h-index 134 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 2 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 2 / 6 | Cited 1.7× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 2 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Hillary D. Lum: h-index 34 (OpenAlex, whole career) |
| Institution's track record | 3 / 3 | Harvard University: institution h-index 3,235 (OpenAlex) |
| Multicenter collaboration | 2 / 3 | OpenAlex lists 5 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39874544) |
| Free to read | 2 / 2 | Free to read |
| Total | 37 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Related
Studies in the library that share something with this one. The line above each title says what.
Studies this one cites
Referenced by this study and also in the alzhub library, so you can read them here.
Related studies in Disparities
Also tagged “care”
995 studies in the library carry the topic tag “care”; these are this study's neighbours in a fixed, alphabetical-by-hash tour of them, not the closest in content. All 995 tagged studies.