Topic: Risk, prevention and care in population studies
The Shifting Expectations narrative indicated that PwD's needs shifted to co-constructed needs with their family as PwD's independence declined. This was reflected in the Relational interdependency narrative where PwD almost always co-created and revised their ACPs with trusted key persons who provided relational support. The Trigger points narrative indicated various points in time when PwD can effectively initiate and revise their ACPs, ranging from before the diagnosis to years afterwards, challenging the current suggestion of an early ACP initiation. This study highlighted the changing co-constructed needs between PwD and their families that influence how PwD initiate and revise their ACP. The identification of ACP trigger points - the pivotal events throughout the dementia journey - that prompt PwD and family members to discuss their ACPs were suggested, indicating that PwD can initiate and revise their ACPs throughout the disease trajectory provided relational support is available whereby key persons involved in their care are involved and agree with the decisions being made. Therefore, an alternative, relational approach to ACP with and for PwD is recommended.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Phenwan, T., Sixsmith, J., McSwiggan, L. C., & Buchanan, D. (2025). A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study. BMC Palliative Care. https://doi.org/10.1186/s12904-024-01632-y
Vancouver
Phenwan T, Sixsmith J, McSwiggan LC, Buchanan D. A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study. BMC Palliative Care. 2025. doi:10.1186/s12904-024-01632-y. PMID: 39780211.
BibTeX
@article{phenwan2025-39780211,
author = {Phenwan, Tharin and Sixsmith, Judith and McSwiggan, Linda C. and Buchanan, Deans},
title = {{A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study}},
journal = {BMC Palliative Care},
year = {2025},
doi = {10.1186/s12904-024-01632-y},
pmid = {39780211},
url = {https://doi.org/10.1186/s12904-024-01632-y}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- The Shifting Expectations narrative indicated that PwD's needs shifted to co-constructed needs with their family as PwD's independence declined.
- This was reflected in the Relational interdependency narrative where PwD almost always co-created and revised their ACPs with trusted key persons who provided relational support.
- The Trigger points narrative indicated various points in time when PwD can effectively initiate and revise their ACPs, ranging from before the diagnosis to years afterwards, challenging the current suggestion of an early ACP initiation.
- This study highlighted the changing co-constructed needs between PwD and their families that influence how PwD initiate and revise their ACP.
- The identification of ACP trigger points - the pivotal events throughout the dementia journey - that prompt PwD and family members to discuss their ACPs were suggested, indicating that PwD can initiate and revise their ACPs throughout the disease trajectory provided relational support is available whereby key persons involved in their care are involved and agree with the decisions being made.
Why it matters
This narrative study suggests that people with dementia can initiate and revise advance care planning throughout the disease trajectory when relational support from trusted key persons is available. It addresses care planning rather than treating, curing, or preventing Alzheimer's disease.
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Study details
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (BMC Palliative Care) |
| Journal's citation record | 1 / 4 | BMC Palliative Care: journal h-index 88 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 11 times (OpenAlex, 2026-10-10) |
| Citations per year | 2 / 5 | 3.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 4 / 6 | Cited 9.3× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 2 / 6 | Cited by 3 other studies in this library |
| Still being cited | 1 / 4 | Cited 11 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 1 / 4 | Last-listed author Deans Buchanan: h-index 11 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | University of Dundee: institution h-index 819 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 2 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39780211) |
| Free to read | 2 / 2 | Free to read |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1186/s12904-024-01632-y
- PubMed: 39780211
- Original source →
- Free full text: BMC Palliative Care →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Later studies that cite this one
3 studies in the alzhub library list this one in their references.
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