Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Involvement of Hospitalized Persons With Dementia in Everyday Decisions: A Dyadic Study

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2018-07-13 Caregiving

    Both members of the dyad rated the PWD, on average, as being "somewhat involved".

  2. Self-Compassion, Coping Strategies, and Caregiver Burden in Caregivers of People with Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Clinical gerontologist 2018-05-03 Caregiving

    Self-compassion was found to be negatively related to caregiver burden and dysfunctional coping strategies and positively related to emotion-focused coping strategies.

  3. The smartphone in the memory clinic: A study of patient and care partner's utilisation habits

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Neuropsychological rehabilitation 2018-04-16 Cognitive tests and assessment

    Smartphones have potential as cognitive aids for adults with cognitive impairments.

  4. Falls and Hospitalizations Among Persons With Dementia and Associated Caregiver Emotional Difficulties

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2018-03-19 Caregiving

    Over 20% of caregivers reported high levels of care-related emotional difficulty.

  5. The Alzheimer's Disease Home Hospice Knowledge Scale: development, validity and reliability

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. International journal of palliative nursing 2018-03-02 End-of-life care

    The AD-HHK-S included 28 true/false items assessing 3 areas of knowledge: knowledge about hospice, knowledge about home hospice, and knowledge about home hospice for AD.

  6. Caregiver burden is increased in Parkinson's disease with mild cognitive impairment (PD-MCI)

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Translational neurodegeneration 2017-06-19 Caregiving

    Mean Zarit Burden Interview (ZBI) score increased significantly between carers of PD-N (M = 13.39, SD = 12.22) compared to those of PD-MCI patients (M = 22.00, SD = 10.8), and between carers of PD-MCI and PDD patients (M = 29.33, SD = 9.59).

  7. Characterization of Dementia and Alzheimer’s Disease in an Older Population: Updated Incidence and Life Expectancy With and Without Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. American Journal of Public Health 2015-02 How common it is

    Efforts to delay onset of dementia, if successful, would likely benefit older adults of all ages.

  8. Assessment and diagnosis of dementia in Hispanic and non-Hispanic white outpatients

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2013-01-23 Disparities

    When using ethnic group-specific norms, NP and functional abilities predicted diagnosis in both groups with no significant differences but BPS was only significant in Hispanics.

  9. The clinical course of advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The New England journal of medicine 2009-10-01 Health systems and care delivery

    Pneumonia, febrile episodes, and eating problems are frequent complications in patients with advanced dementia, and these complications are associated with high 6-month mortality rates.

  10. Racial differences in knowledge and beliefs about Alzheimer disease

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer disease and associated disorders 2009 Disparities

    Alzheimer disease (AD) is a growing public health problem that disproportionately affects racial and ethnic minorities, including African Americans.

  11. An ethnographic study of stigma and ageism in residential care or assisted living

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2008-08 Health systems and care delivery

    Four themes emerged that relate to stigma in RC-AL: (a) ageism in long-term care; (b) stigma as related to disease and illness; (c) sociocultural aspects of stigma; and (d) RC-AL as a stigmatizing setting.

  12. The Behavior Rating Scale for Dementia provides a standardized, reliable measure that can be administered to caregivers of demented subjects.

  13. Out of pocket expenditures by family caregivers of dementia patients residing in the community

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Home health care services quarterly 1991 Costs and economics

    Out of pocket expenditures by families (N = 182) of relatives with dementia residing in the community were examined.

  14. Dementia Knowledge and Perceived Competence in Dementia Care among Healthcare Workers in South Africa

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. F1000Res 2026-07-03 Disparities

    This study reveals a critical disconnect between moderate dementia knowledge and the application of this knowledge into perceived clinical competence.

  15. Dementia and End-of-Life Shared Decision-Making Among Older US Adults

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of the American Medical Directors Association 2026-03-30 End-of-life care

    Findingss: uggested that dementia reshaped the structure and intensity of the shared decision-making process by increasing surrogate engagement and decisional demands, underscoring the importance of early advance care planning and structured support for family caregivers to sustain goal-concordant care.

  16. Navigating Dementia Services: An International Review of Informal Caregiver Perspectives

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Dementia (London, England) 2026-03-15 Caregiving

    Dementia is a growing global concern, with informal caregivers, typically unpaid family members or friends, providing essential support to those living with the condition.

  17. Performance of ICD10 Code-Based Dementia Case Definition in the Health and Retirement Study

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2026-01-13 Costs and economics

    STRUCTURED ABSTRACT INTRODUCTION The Dementia DataHub (DDH) reports U.S. dementia prevalence and incidence from Medicare data.

  18. Updated information on the Diagnosis Procedure Combination data

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Annals of clinical epidemiology 2024-09-04 Digital health tools

    The Ministry of Health, Labor, and Welfare, Japan, launched the Diagnosis Procedure Combination system in 2002.

  19. Introduction to Large Language Models (LLMs) for dementia care and research

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Frontiers in dementia 2024-05-14 Cognitive tests and assessment

    Overall, this review corroborates the promising utilization of LLMs to positively impact dementia care by boosting cognitive abilities, enriching social interaction, and supporting caregivers.

  20. Harnessing digital health interventions to bridge the gap in prevention for older adults

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Frontiers in Public Health 2024-01-08 Cognitive tests and assessment

    The health issues associated with aging not only have a significant impact on the overall well-being of older individuals but also puts a lot of pressure of the healthcare system (3).

  21. Racial-Ethnic Disparities in Dual-Function Life Expectancy

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. The journals of gerontology. Series A, Biological sciences and medical sciences 2023-07-08 Disparities

    At ages 50-54, between 79.0% (95% CI: 73.5, 84.5) and 87.6% (95% CI: 84.0, 91.2) of (non-Hispanic) Black, foreign-born Hispanic, and U.S.-born Hispanic women and men remain dual functional as compared with 90.4% (95% CI: 89.3, 91.4) and 91.4% (95% CI: 90.2, 92.5) of (non-Hispanic) White women and men, respectively.

  22. Riding the merry-go-round of racial disparities in ADRD research

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2023-07-03 Disparities

    With the rapid expansion of the aging population, the burden of Alzheimer's disease related dementias (ADRD) is anticipated to increase in racialized and minoritized groups who are at disproportionately higher risk.

  23. Cost effectiveness of non-drug interventions that reduce nursing home admissions for people living with dementia

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2023-04-06 Costs and economics

    All four interventions cost less and are more effective (i.e., cost savings) than usual care from a societal perspective.

  24. Racial/ethnic disparities in dementia incidence, outcomes, and health-care utilization

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2022-12-05 Disparities

    Disparities in incidence of NDD between Black and White beneficiaries narrowed by 0.37 per 100 person-years from 2014 to 2017.

  25. Usability and acceptability of wearable technology in the early detection of dementia

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2022-12 Cognitive tests and assessment

    Sixteen semi-structured interviews were conducted with nine participants, at two-time points.

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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