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Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study
Krista L Harrison, Theresa A Allison, Sarah B Garrett, Nicole Thompson, Rebecca L Sudore, Christine S Ritchie. Journal of palliative medicine, 2020-03-04
Topic: Health services, long-term care and technology
Four themes regarding caring for PWD in hospice. (1) Dementia prevalence in hospice is increasing and some hospices are developing programs to accommodate specific needs. (2) Setting impacts discussions of preferences and care decisions. (3) Caring for PWD on hospice poses unique challenges caused by (i) perceptions that dementia is not terminal, (ii) a lack of advance care planning discussions before hospice admission, and (iii) proxy decision-makers who were inadequately prepared for their role. (4) Hospice regulatory and policy changes disproportionately impact PWD. Hospice professionals perceive increasing demand for, and multilevel challenges to, caring for PWD. Clinicians "upstream" from hospice may help by engaging patients and proxies in discussions of preferences for end-of-life care and providing anticipatory guidance.
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APA 7th
Harrison, K. L., Allison, T. A., Garrett, S. B., Thompson, N., Sudore, R. L., & Ritchie, C. S. (2020). Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study. Journal of palliative medicine. https://doi.org/10.1089/jpm.2019.0565
Vancouver
Harrison KL, Allison TA, Garrett SB, Thompson N, Sudore RL, Ritchie CS. Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study. Journal of palliative medicine. 2020. doi:10.1089/jpm.2019.0565. PMID: 32130076.
BibTeX
@article{harrison2020-32130076,
author = {Harrison, Krista L and Allison, Theresa A and Garrett, Sarah B and Thompson, Nicole and Sudore, Rebecca L and Ritchie, Christine S},
title = {{Hospice Staff Perspectives on Caring for People with Dementia: A Multisite, Multistakeholder Study}},
journal = {Journal of palliative medicine},
year = {2020},
doi = {10.1089/jpm.2019.0565},
pmid = {32130076},
url = {https://doi.org/10.1089/jpm.2019.0565}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Four themes regarding caring for PWD in hospice.
- (1) Dementia prevalence in hospice is increasing and some hospices are developing programs to accommodate specific needs.
- (2) Setting impacts discussions of preferences and care decisions.
- (3) Caring for PWD on hospice poses unique challenges caused by (i) perceptions that dementia is not terminal, (ii) a lack of advance care planning discussions before hospice admission, and (iii) proxy decision-makers who were inadequately prepared for their role.
- (4) Hospice regulatory and policy changes disproportionately impact PWD.
Study details
- Evidence strengthLow
How this study scored 39/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record, multi-centre collaboration and free to read, so those were left out: it earned 22 of the 56 points we could judge it on, which is 39 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of palliative medicine) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 2 / 5 | 2020 — within 10 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 32130076) |
| Free to read | — / 2 | Access not recorded — left out of this score |
| Points | 22 / 56 | Scored on 10 of 20 parts. We have no data for the rest, so they are left out: 22 of the 56 points we could judge it on is 39 out of 100. |
| Total | 39 / 100 | — |
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