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35/100

✓ Peer-reviewed alzhub usefulness score 35 out of 100. End-of-life care

Topic: Risk, prevention and care in population studies

Plain-language summary

Forty studies were included. Key stakeholders included healthcare professionals (HCPs); family members and caregivers; PWD; dyads (PWD and their caregivers); the broader public; policymakers; and researchers. Prominent findings included: the role and training of HCPs; educational and decision-support needs; early and ongoing engagement of PWD; development and evaluation of dementia-specific tools; ethical and procedural challenges in end-of-life decision-making; and the importance of outreach and cultural sensitivity. Promising interventions include structured communication models, psychoeducational programs and tools, although few have been fully adapted for dementia. Dementia-specific ACP/AD require a relational, flexible and ethically grounded approach that evolves with the individual’s condition. While ACP/AD should reflect the autonomous preferences of the PWD, during late-stage dementia, shared decision-making becomes central to providing care that aligns with the person’s goals and preferences. Future research should focus on inclusive tools and training; timing and process facilitation; and public health strategies to improve access and equity.

Cite this study APA, Vancouver, BibTeX · download .bib or .ris

APA 7th

Vinay, R., Ferrario, A., Gloeckler, S., & Biller‐Andorno, N. (2025). Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review. BMC Geriatrics. https://doi.org/10.1186/s12877-025-06514-3

Vancouver

Vinay R, Ferrario A, Gloeckler S, Biller‐Andorno N. Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review. BMC Geriatrics. 2025. doi:10.1186/s12877-025-06514-3. PMID: 41214585.

BibTeX

@article{vinay2025-41214585,
  author  = {Vinay, Rasita and Ferrario, Andrea and Gloeckler, Sophie and Biller‐Andorno, Nikola},
  title   = {{Needs of key stakeholders to make advance care plans and advance directives for people with dementia: a scoping review}},
  journal = {BMC Geriatrics},
  year    = {2025},
  doi     = {10.1186/s12877-025-06514-3},
  pmid    = {41214585},
  url     = {https://doi.org/10.1186/s12877-025-06514-3}
}

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How to read this study

Design: our record does not state a study design, so check the methods section of the original before weighing the result.
Size: the record gives no participant count. Look for one in the original before trusting a pattern.
Effect: the record gives no effect size, so the summary above cannot say how large any difference was.

What the evidence grade means here

This page is graded low. alzhub.org assigns the grade automatically from keywords in the abstract, not from reading the paper. Low means the abstract matched neither pattern. It is the default label, and it does not mean the work is poor; many sound lab and imaging papers land here. It can add at most 5 of the 100 points in the study score, and it is a label about design, not a verdict on whether the findings are true.

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Key findings

Key stakeholders included healthcare professionals (HCPs); family members and caregivers; PWD; dyads (PWD and their caregivers); the broader public; policymakers; and researchers.
Prominent findings included: the role and training of HCPs; educational and decision-support needs; early and ongoing engagement of PWD; development and evaluation of dementia-specific tools; ethical and procedural challenges in end-of-life decision-making; and the importance of outreach and cultural sensitivity.
Promising interventions include structured communication models, psychoeducational programs and tools, although few have been fully adapted for dementia.
Dementia-specific ACP/AD require a relational, flexible and ethically grounded approach that evolves with the individual’s condition.
While ACP/AD should reflect the autonomous preferences of the PWD, during late-stage dementia, shared decision-making becomes central to providing care that aligns with the person’s goals and preferences.

Why it matters

This review of 40 studies describes the needs of stakeholders involved in making advance care plans and directives for people with dementia. It does not test any treatment, cure or prevention.

Study details

Evidence strengthLow

How this study scored 35/100

Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.

Component	Points	Why
Journal tier	7 / 10	Tier 3 — peer-reviewed journal (BMC Geriatrics)
Journal's citation record	2 / 4	BMC Geriatrics: journal h-index 153 (OpenAlex, 2026-10-29)
Study design	0 / 12	No study design recorded — scores zero, not guessed (not stated in the record — scored 0)
Strength of evidence	1 / 5	Rated “low” in our summary
Peer-review validation	10 / 10	Peer-reviewed. Published as an article in a named peer-reviewed journal.
How recent	4 / 5	2025 — within 3 year(s) of the newest study here
Sample size	0 / 4	Participant count not stated — scores zero (not stated in the record — scored 0)
Effect reported	0 / 3	No effect size reported — scores zero (not stated in the record — scored 0)
Studied in people	0 / 3	Not stated whether this was studied in people — scores zero (not stated in the record — scored 0)
Randomized / blinded	0 / 2	No randomization or blinding stated — scores zero (not stated in the record — scored 0)
Times cited	1 / 7	Cited 1 times (OpenAlex, 2026-10-10)
Citations per year	0 / 5	0.3 citations a year over 3 year(s) since 2025
Impact for its field and year	1 / 6	Cited 0.8× the average for papers of its field and year (OpenAlex FWCI)
Cited by studies here	0 / 6	No other study in this library cites it
Still being cited	0 / 4	Cited 1 times in 2024–2026 (2026 still in progress; OpenAlex)
Senior author's track record	2 / 4	Last-listed author Nikola Biller‐Andorno: h-index 46 (OpenAlex, whole career)
Institution's track record	1 / 3	ETH Zurich: institution h-index 1,286 (OpenAlex)
Multicenter collaboration	2 / 3	OpenAlex lists 4 institution(s) in 1 country
Indexed in PubMed	2 / 2	Indexed in PubMed (PMID 41214585)
Free to read	2 / 2	Free to read
Total	35 / 100	—

What each of these 20 components measures, and what this score is not →

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