Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Community-acquired pneumonia in very elderly patients: causative organisms, clinical characteristics, and outcomes

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Medicine 2003-05-01 Health systems and care delivery

    We performed an observational analysis of prospectively collected data on 1,474 adult patients who were hospitalized for community-acquired pneumonia; 1,169 patients were under 80 years of age and 305 (21%) patients were over 80 years ("very elderly").

  2. Health care utilization and costs of Alzheimer's disease: the role of co-morbid conditions, disease stage, and pharmacotherapy

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Family medicine 2002-07-01 Digital health tools

    Utilization and costs for patients with AD were higher compared to controls and were substantially higher for patients with both AD and co-morbid diseases commonly targeted for disease management.

  3. High short-term mortality in hospitalized patients with advanced dementia: lack of benefit of tube feeding

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Archives of internal medicine 2001-02-01 End-of-life care

    In this cohort of hospitalized patients with advanced dementia, risk of receiving a new feeding tube is high, associated with African American ethnicity, and prior residence in a nursing home, and has no measurable influence on survival.

  4. The spectrum of behavioral changes in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Neurology 1996-01-01 Clinical safety

    We investigated the range of behavioral abnormalities in patients with Alzheimer's disease (AD) compared with normal age-matched control subjects.

  5. Home Health Care and Place of Death in Medicare Beneficiaries With and Without Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The Gerontologist 2024-11-01 End-of-life care

    Receiving any home health care in the last 3 years of life was associated with a lower probability of inpatient death without hospice (Pr 23.3% vs 31.5%, p < .001), and this effect was stronger when home health care began prior to versus during the last year of life (Pr 22.5% vs 24.3%, p < .001).

  6. Healthcare Resource Utilization Among Patients With Agitation in Alzheimer Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of health economics and outcomes research 2024-10-29 Costs and economics

    Of 2 684 704 Fee-for-Service patients with Alzheimer dementia, 769 141 met all inclusion criteria; among these, 281 042 (36.5%) had agitation.

  7. Inadequate insurance coverage for overweight/obesity management

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The American journal of managed care 2024-08 Disparities

    Obesity is a significant health crisis affecting more than 123 million adults and children/adolescents in the US.

  8. Promoting diverse perspectives: Addressing health disparities related to Alzheimer's and all dementias

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2024-03-09 Disparities

    Dementia research lacks appropriate representation of diverse groups who often face substantial adversity and greater risk of dementia.

  9. Post-disclosure distress among racial and ethnic groups in a preclinical AD trial

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2024-02-08 Disparities

    Reactions to disclosure did not significantly differ among participant groups based on self-reported race and ethnicity.

  10. Identification of Dementia in Medicare Claims Compared to Rigorous Clinical Assessments in African Americans

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The journals of gerontology. Series A, Biological sciences and medical sciences 2024-01-01 Costs and economics

    Among 88 African Americans with cognitive impairment (mean = 10 years follow-up), Medicare claims identified dementia <2 years from cohort diagnosis in 55%; 27% were identified 2-9.9 years after cohort diagnosis, and in 18% there was either no claims diagnosis during the study period, or claims identified dementia 10+ years after cohort diagnosis.

  11. Implementing Dementia Caregiver Programs in Real-World Settings: Fidelity Considerations

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of the American Medical Directors Association 2023-11-27 Caregiving

    Testing interventions in real-world settings requires fidelity monitoring to ensure implementation integrity.

  12. Out-of-Pocket Expenses for Long-Term Care by Dementia Status and Residential Setting among US Older Adults

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of the American Medical Directors Association 2023-10-17 Health systems and care delivery

    Among 4505 respondents aged ≥70 years, 1750 (38.8%) had possible or probable dementia and 2755 (61.2%) had no dementia.

  13. Dementia Neuropsychiatric Symptom Frequency, Severity, and Correlates in Community-Dwelling Thai Older Adults

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2022-05-13 Caregiving

    NPS frequency varied from 18% for appetite and/or eating changes to 42% for delusions.

  14. Social isolation, social support and loneliness as predictors of cardiovascular disease incidence and mortality

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. BMC geriatrics 2021-12-13 Risk factors

    Individuals with poor social health were 42 % more likely to develop CVD (p = 0.01) and twice as likely to die from CVD (p = 0.02) over a median 4.5 years follow-up.

  15. Effects of restriction of activities and social isolation on risk of dementia in the community

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. International psychogeriatrics 2021-06-28 Risk factors

    Both Restriction (HR = 2.22, 95% CI [1.42, 3.47], P < .001) and Isolation (HR = 1.78, 95% CI [1.17, 2.70], P = 0.007) were associated with episodic memory and incident dementia, controlling for age, sex, and education.

  16. Towards specialised and differentiated long-term care services: a cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. BMC health services research 2020-08-26 Health systems and care delivery

    Specialised care services were highly prevalent.

  17. At the crossroads of religion and palliative care in patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Israel journal of health policy research 2020-08-24 End-of-life care

    The timing of palliative care initiation may be more appropriately directed using a needs-based approach, instead of a prognostically driven one.

  18. The costs of dementia subtypes to California Medicare fee-for-service, 2015

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2019-06-04 Costs and economics

    3,001,987 Medicare beneficiaries were identified, of which 8.2% had a dementia diagnosis.

  19. Using Technology to Facilitate Fidelity Assessments: The Tele-STAR Caregiver Intervention

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Journal of medical Internet research 2019-05-24 Caregiving

    Tele-STAR reduced caregiver burden and retained good program and treatment fidelity to STAR-C. We found Tele-STAR reduced caregiver burden and had good fidelity to the original protocol.

  20. How Is End-of-Life Care With and Without Dementia Associated With Informal Caregivers' Outcomes?

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The American journal of hospice & palliative care 2019-04-14 Caregiving

    Dementia care, both at EOL and not at EOL, was associated with the most caregiver burden relative to regular care.

  21. Hearing interventions to prevent dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. HNO 2019-03 Risk factors

    Hearing loss is a marker of risk for cognitive decline and dementia.

  22. Social networks and loneliness in people with Alzheimer's dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. International journal of geriatric psychiatry 2019-02-28 Risk factors

    The friendship subset of social networks was significantly related to cognition (independent of age, gender, depression, loneliness, and family subset of social network): B = 0.284, P = 0.01.

  23. Who's Your Family?: African American Caregivers of Older Adults With Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Research in gerontological nursing 2019-01-01 Disparities

    The nature and outcome of family caregiving is different for various racial and ethnic groups.

  24. Do Caregiver Characteristics Affect Caregiver Burden Differently in Different Countries?

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. American journal of Alzheimer's disease and other dementias 2018-12-30 Caregiving

    The relationships between caregiver burden as measured with the Burden Scale for Family Caregivers-short form and 6 characteristics of caregivers caring for patients with dementia were investigated for caregivers from England (n = 36), Finland (n = 42), and Greece (n = 46) using survey data.

  25. Engagement and social interaction in dementia care settings. A call for occupational and social justice

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Health & social care in the community 2018-09-09 Health systems and care delivery

    As full citizens, people with dementia are entitled to engage in social and occupational activities in residential care settings.

From across this topic

9 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

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