Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Caregiver burden related to feeding process in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Dementia & neuropsychologia 2023-07-24 Caregiving

    We included 60 AD individuals-caregivers dyads.

  2. Multiple morbidity across the lifespan in people with Down syndrome or intellectual disabilities: a population-based cohort study using electronic health records

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. The Lancet. Public health 2023-04-26 Digital health tools

    We comprehensively estimated the risk of multiple morbidity across the lifespan in people with Down syndrome compared with the general population and controls with other forms of intellectual disability.

  3. Documenting the need for teaching resourcefulness skills to family caregivers

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Applied nursing research : ANR 2022-08-27 Caregiving

    Caregivers differed significantly on caregiver burden (F = 2.46; p = .014) and resourcefulness (F = 2.08; p = .038).

  4. Alzheimer's disease medication use and adherence patterns by race and ethnicity

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2022-08-08 Disparities

    Among newly diagnosed ADRD patients (n = 1299), 26% filled an ADRD prescription ≤90 days and 36% ≤365 days after diagnosis.

  5. Medicare spending associated with a dementia diagnosis among older adults

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2022-05-18 Costs and economics

    Among the diagnosis cohort, mean (SD) overall spending was $4773 ($9774) per quarter - 43% of which was spending on hospital care ($2048).

  6. Medical and nursing home costs: From cognitively unimpaired through dementia

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2021-09-05 Costs and economics

    Costs/follow-up day distributions differed significantly across cognitive categories.

  7. Pain Management in Home Health Care: Relationship With Dementia and Facility Admissions

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Pain management nursing : official journal of the American Society of Pain Management Nurses 2020-07-14 Costs and economics

    Patients with ADRD (n = 1,525, 24.8%) were less likely to have recorded severe pain than others (16.4% vs. 23.6%, p < .001).

  8. Patient and caregiver outcomes at the integrated memory care clinic

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Geriatric nursing (New York, N.Y.) 2020-06-05 Health systems and care delivery

    The purpose of this longitudinal cohort study was to explore the outcomes of persons living with dementia (PLWD) and their caregivers during their first 9 months at the Integrated Memory Care Clinic (IMCC).

  9. Dependence Clusters in Alzheimer Disease and Medicare Expenditures: A Longitudinal Analysis From the Predictors Study

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer disease and associated disorders 2020 Costs and economics

    KmL identified 2 distinct Dependence Scale clusters: (A) high initial dependence, faster decline, and (B) low initial dependence, slower decline.

  10. Palliative Care for Dementia: 2020 Update

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Clinics in geriatric medicine 2019-11-15 End-of-life care

    Dementia management is complicated by neuropsychiatric symptoms such that the longitudinal care of a psychiatrist or other mental health provider is often an essential part of patient care and a major source of family support.

  11. High-Need Phenotypes in Medicare Beneficiaries: Drivers of Variation in Utilization and Outcomes

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2019-08-27 Costs and economics

    Five phenotypes were identified: (1) comorbid ischemic heart disease with hospitalization and skilled nursing facility use (22% of the HN sample), (2) comorbid ischemic heart disease with home care use (23%), (3) home care use (12%), (4) high comorbidity with hospitalization (32%), and (5) Alzheimer's disease/related dementias with functional dependency and nursing home use (11%).

  12. Nursing homes underreport antipsychotic prescribing

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Aging & mental health 2019-02-06 Costs and economics

    Nursing homes underreport their antipsychotic prescribing levels, on average, by 1 percentage point per quarter relative to Medicare Part D claims (0.013, 95% confidence interval (CI), 0.012-0.015; p<.001).

  13. Examining the Roles of Technology in Aging and Quality of Life

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. The Journals of Gerontology Series B 2017-07-14 Cognitive tests and assessment

    Although a small-scale study (n = 60), it suggests that older adults operate in larger geographic spaces than in the areas where they reside.

  14. Patterns of health service use in community living older adults with dementia and comorbid conditions: a population-based retrospective cohort study in Ontario, Canada

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. BMC geriatrics 2016-10-26 Digital health tools

    Comorbidities in community-living older adults with dementia are common and account for a substantial proportion of health service use and costs in this population.

  15. Predicting dementia in primary care patients with a cardiovascular health metric: a prospective population-based study

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. BMC neurology 2016-07-26 Digital health tools

    Due to complex relationships of body-mass index and blood pressure with dementia individual components cancelled each other out and rendered the sum-scores meaningless for the prediction of dementia.

  16. Beyond comorbidity: expanding the definition and measurement of complexity among older adults using administrative claims data

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Medical care 2014-03-01 Digital health tools

    Claims data studies that include indicators of potentially diminished patient functional status better capture heterogeneity of patients with multiple chronic conditions.

  17. Precipitating and predisposing events and symptoms for admission to assisted living or nursing home care

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Canadian geriatrics journal : CGJ 2013-03-05 Health systems and care delivery

    Of 353 people admitted during the enrolment period, 174 (49%) took part in the survey.

  18. Contribution of individual diseases to death in older adults with multiple diseases

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2012-06-26 Digital health tools

    The use of methods that focus on determining a single underlying cause may lead to underestimation of the extent of the contribution of some diseases such as dementia and respiratory disease to death in older adults and overestimation of the contribution of other diseases.

  19. 2011 Alzheimer's disease facts and figures

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2011-03-01 Health systems and care delivery

    Alzheimer's disease (AD) is the sixth leading cause of all deaths in the United States and is the fifth leading cause of death in Americans aged ≥65 years.

  20. An examination of Alzheimer's disease case definitions using Medicare claims and survey data

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer's & dementia : the journal of the Alzheimer's Association 2010-07-01 Digital health tools

    Different information sources yield widely varied prevalence and expenditure estimates.

  21. Healthcare costs and utilization for Medicare beneficiaries with Alzheimer's

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. BMC health services research 2008-05-22 Costs and economics

    Patients with AD have significantly more co-morbid medical conditions and higher healthcare costs and utilization than demographically-matched Medicare beneficiaries.

  22. The effect of emergency department crowding on the management of pain in older adults with hip fracture

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2006-02-01 Health systems and care delivery

    Older adults with hip fracture are at risk for underassessment of pain, considerable delays in analgesic administration after pain is identified, and treatment with inappropriate analgesics (e.g., meperidine) in the ED.

  23. Effects of an Automated Telephone Support System on Caregiver Burden and Anxiety: Findings From the REACH for TLC Intervention Study

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. The Gerontologist 2003-08-01 Digital health tools

    There was a significant intervention effect as hypothesized for participants with lower mastery at baseline on all three bother (p =.04), anxiety (p =.01), and depression (p =.007).

  24. How much do persons with Alzheimer's disease cost Medicare?

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2000-06-01 Digital health tools

    The average total cost to Medicare of persons with a claims-based diagnosis of AD was $6021 versus $2310 (P < .001) for persons without a diagnosis.

  25. The accuracy of substituted judgments in patients with terminal diagnoses

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Annals of internal medicine 1998-04-01 End-of-life care

    The accuracy of substituted judgments is associated with multiple clinically apparent patient and surrogate factors.

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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