Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Neuropsychiatric symptoms in patients with Parkinson's disease and dementia: frequency, profile and associated care giver stress

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of neurology, neurosurgery, and psychiatry 2006-07-04 Treatments

    Neuropsychiatric symptoms are common in patients with PDD.

  2. The Apathy Inventory: assessment of apathy and awareness in Alzheimer's disease, Parkinson's disease and mild cognitive impairment

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. International Journal of Geriatric Psychiatry 2002-10-23 Clinical safety

    Internal consistency, item reliability, and between-rater reliability were high.

  3. The accuracy of medicare claims data in identifying Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of clinical epidemiology 2002-09-01 Costs and economics

    We linked Medicare claims data to information on 417 patients with a clinical diagnosis of Alzheimer's disease in the Consortium to Establish a Registry for Alzheimer's Disease (CERAD) to determine what proportion of them were identified as having Alzheimer's disease (AD) in Medicare claims records.

  4. Healthy centenarians do not exist, but autonomous centenarians do: a population-based study of morbidity among Danish centenarians

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of the American Geriatrics Society 2001-07-01 Biomarkers

    Because they have a high prevalence of several common diseases and chronic conditions, Danish centenarians are not healthy.

  5. Development of a minimum data set-based depression rating scale for use in nursing homes

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Age and ageing 2000-03-01 Risk factors

    There is a need for a standardized screening instrument which incorporates daily observations of nursing-home staff.

  6. Alzheimer caregiver stress: basal natural killer cell activity, pituitary-adrenal cortical function, and sympathetic tone

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Annals of behavioral medicine : a publication of the Society of Behavioral Medicine 1997 Caregiving

    The association between Alzheimer caregiving and natural killer (NK) cell activity and basal plasma levels of adrenocorticotropic hormone (ACTH), cortisol, beta-endorphin, prolactin, epinephrine, norepinephrine, and neuropeptide Y was determined in 100 spousal Alzheimer caregivers and 33 age- and gender-comparable control volunteers upon intake into a study of the psychological and physiologic impact of caregiving.

  7. The Dynamics of Caregiving for a Demented Elder Among Black and White Families

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of Gerontology 1992-07-01 Disparities

    Caregiving dynamics were studied in a sample of 157 Black caregivers of elders suffering from Alzheimer's disease and other dementias.

  8. Reliability and validity of the Apathy Evaluation Scale

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Psychiatry research 1991-08-01 Risk factors

    This article presents evidence for the reliability and construct validity of the Apathy Evaluation Scale (AES).

  9. A Two-factor Model of Caregiving Appraisal and Psychological Well-Being

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of Gerontology 1991-07-01 Risk factors

    Groups of spouse (N = 285) and adult child (N = 244) caregivers of elderly parents suffering from Alzheimer's disease were interviewed regarding their caregiving behaviors, evaluations of caregiving, and general psychological well-being.

  10. The screen for caregiver burden

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. The Gerontologist 1991-02-01 Caregiving

    The Screen for Caregiver Burden (SCB) is a measure designed to identify distressing caregiver experiences rapidly.

  11. A new rating scale for dementia syndromes

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Archives of gerontology and geriatrics 1982-12-01 Health systems and care delivery

    A new scale, the GBS-scale, is constructed for rating dementia syndromes.

  12. Receipt of Eye Care Services among Medicare Beneficiaries with and without Dementia

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Ophthalmology 2020-02-25 Brain scans and imaging

    A total of 4 451 200 beneficiaries met inclusion criteria; 3 805 718 (85.5%) received eye care during the study period, and 391 556 (8.8%) had diagnosed dementia.

  13. Research, recruitment and observational data collection in care homes: lessons from the PACE study

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. BMC research notes 2019-08-14 Health systems and care delivery

    Multiple challenges were encountered in creating a sampling framework and contacting, recruiting and retaining care homes in the PACE study.

  14. "I'll Take Any Kind of Training Anybody's Willing to Give Me" Long-Term Care Staff Perceptions on Dementia Training and Needs

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of the American Medical Directors Association 2025-11-06 Health systems and care delivery

    Training gaps in the U.S. dementia care workforce impact patient support.

  15. Exploring Interprofessional Collaboration and Patient-Centered Care for People Living With Dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Home healthcare now 2025-07-07 Caregiving

    Alzheimer's disease and other dementias are expected to affect millions of individuals in the coming decades, placing a growing burden on healthcare systems, families, and caregivers.

  16. Social Isolation, Loneliness, and Cognitive Health

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Clinics in geriatric medicine 2025-05-27 Risk factors

    Social connectedness is important for maintaining cognitive function and cognitive health in older age.

  17. Caregiver Support Program May Decrease Work-Family Conflict: An Intervention Study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Inquiry : a journal of medical care organization, provision and financing 2025-04-26 Caregiving

    The employed family caregivers juggle caregiving and work responsibilities constantly, highlighting a growing concern for their financial and professional well-being.

  18. Pathways to Racial/Ethnic Inequalities in Dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Annual review of clinical psychology 2025-01-13 Disparities

    Individuals from minoritized racial/ethnic groups face a disproportionate burden of Alzheimer's disease and related dementias.

  19. Dyadic Comparison of Pain and Stress in Alzheimer's Disease and Caregivers

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Pain management nursing : official journal of the American Society of Pain Management Nurses 2024-12-04 Caregiving

    Contrary to expectations, pain and mental health measures for PLWAD displayed a trend toward negative correlation with their hair cortisol levels.

  20. Advance Care Planning in Palliative Care in Asia: Barriers and Implications

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of hospice and palliative care 2024-12-01 End-of-life care

    Advance care planning (ACP) in palliative care is essential for patient autonomy and quality of dying.

  21. Residency in Long-Term Care Facilities: An Important Risk Factor for Respiratory Syncytial Virus Hospitalization

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. The Journal of infectious diseases 2024-11-15 Health systems and care delivery

    Older age and comorbid conditions increase risk for severe for respiratory syncytial virus (RSV).

  22. Implementing palliative and end of life care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Nursing older people 2024-11-06 End-of-life care

    Dementia is characterised by memory loss, behavioural changes and decline of cognitive, social and physical functions and is a life-limiting condition.

  23. Ascertaining Out-of-Pocket Costs of Dementia Care: Feasibility Study of a Web-Based Weekly Survey

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. JMIR formative research 2024-09-25 Costs and economics

    Out-of-pocket costs of dementia care were collected via a web-based weekly survey for up to 18 months.

  24. Adopting a 'community of practice' between palliative and dementia care nurses

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Nursing standard (Royal College of Nursing (Great Britain) : 1987) 2024-09-23 End-of-life care

    Dementia usually occurs as a result of brain disease and, while it is usually chronic or progressive in nature, it has not traditionally been conceptualised as a terminal or life-limiting syndrome.

  25. Racial and ethnic disparities in potentially inappropriate medication use in patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of the American Geriatrics Society 2024-08-21 Disparities

    Compared to White participants, Black, Hispanic, and Asian participants reported taking fewer total medications (incidence rate ratio [IRR] ± standard error[SE] = 0.903 ± 0.017, 0.875 ± 0.021, and 0.912 ± 0.041, respectively, all p < 0.01).

From across this topic

10 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

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