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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Role of nurses in supporting advance care planning for people living with dementia

    ✓ Peer-reviewed alzhub usefulness score 25 out of 100. Nursing Older People 2025-09-30 End-of-life care

    Dementia is a life-limiting condition and a leading cause of death in the UK and globally.

  2. Effects of a virtual iSupport Program on carers and people with dementia

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. Alzheimer s & Dementia 2025-09-29 Caregiving

    One hundred forty-nine carers enrolled in the study.

  3. ‘It should be my choice’: voluntary assisted dying needs and preferences of Australians living with dementia

    ✓ Peer-reviewed alzhub usefulness score 33 out of 100. Ageing and Society 2025-09-24 End-of-life care

    Voluntary assisted dying (VAD) is an end-of-life care option available to eligible Australians living with a terminal condition, though people living with dementia are typically ineligible to choose VAD as part of their end-of-life care.

  4. Exploring the Feasibility of the LEAD Trial: Online Dyadic Dementia Care Planning for Early Alzheimer's and Other Dementias

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. American Journal of Hospice and Palliative Medicine® 2025-09-19 End-of-life care

    Our findings suggest the LEAD intervention is feasible and demonstrates initial efficacy in promoting dementia-focused ACP.

  5. Dementia in primary care: a qualitative study with general practitioners and caregivers with and without migration backgrounds

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. BMC Family Practice 2025-09-16 Caregiving

    The analysis revealed six main themes: 'Core health care challenges,' 'communication approaches and information sharing,' 'role of GP,' 'situation of caregivers,' 'influence on caregiver-GP relationship,' and 'socio-cultural barriers and care preferences'.

  6. Exploring the unmet needs of Latino dementia caregivers: a qualitative study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. The Gerontologist 2025-09-09 Caregiving

    Four themes were derived from the data analysis as key areas of caregiving needs for Latinos: need to connect socially with others; need for resources to provide care; need to understand dementia and navigating existing resources and future care planning; and need for empathic, culturally congruent healthcare.

  7. Supporting Informal Dementia Caregivers Through an iSupport Web-Based Primary Health Care Intervention: Hybrid Effectiveness-Implementation Mixed Methods Study

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Journal of Medical Internet Research 2025-09-09 Caregiving

    The intervention revealed no substantial between-group differences in caregiver burden (β=-3.80, 95% CI -11.25 to 3.65, P=.32), quality of life (β=-1.55, 95% CI -6.59 to 3.49, P=.55), or social support (β=0.85, 95% CI -2.86 to 4.56, P=.65).

  8. Race-Specific Impact of Telehealth Advance Care Planning on Cost of Dementia: A Cost Prediction Study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. International Journal of Environmental Research and Public Health 2025-09-07 End-of-life care

    Identifying strategies to enhance patient engagement and to control healthcare costs promotes a responsive and efficient healthcare system.

  9. Socio-Demographic Factors Linked to Psychological Well-Being in Dementia Caregivers

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Healthcare 2025-09-07 Caregiving

    Caregivers reported moderate to high well-being scores, with Environmental Mastery highest (M = 38.01, SD = 8.70) and Purpose in Life lowest (M = 33.14, SD = 6.72).

  10. Caring While Moving: Case Studies on Physical Activity and Dementia Caregiver Well-Being

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Healthcare 2025-09-03 Caregiving

    While both caregivers participated in physical activity, their case studies reveal opportunities to optimize physical activity interventions to support members of the caregiving dyad: (1) targeting mitochondrial fitness—the ability of mitochondria to maintain energy homeostasis with aging—so participants can mitigate the onset of NCDs, fatigue, and overall health outcomes; (2) promoting the self-care and psychological benefits of physical activity such as improved mood and social connectedness; and (3) improving the accurate perceptions of participants’ health and physical activity with specific measurable markers of physical activity.

  11. Patient and Caregiver Outcomes of Health System, Community-Based, and Usual Dementia Care

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. JAMA Internal Medicine 2025-09-02 Caregiving

    A total of 2176 person living with dementia-caregiver dyads were enrolled; 1271 persons living with dementia (58.4%) and 1650 caregivers (75.8%) were female, and their mean (SD) age were 80.6 (8.5) years and 65.2 (12.3) years, respectively.

  12. In adjusted analyses, the rate of first ACP conversation for persons with organ failure was the lowest (IRR 0.70 (95% CI 0.68 to 0.73)).

  13. Smartphone App-Based Psychoeducation for Caregivers of People with Dementia in Vietnam: A Pilot Randomized Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 58 out of 100. Clinical Interventions in Aging 2025-09-01 Caregiving

    Of the 62 caregivers approached, 60 enrolled (96.7%), and 54 completed the study (90% retention).

  14. Supporting decision making for individuals living with dementia and their care partners with knowledge translation: An umbrella review

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. Alzheimer s & Dementia 2025-09-01 End-of-life care

    Living with dementia requires decision making about numerous topics including daily activities and advance care planning (ACP).

  15. Maintaining independence at home after a fall: a process evaluation of the MAINTAIN multicomponent intervention for people living with dementia

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Age and Ageing 2025-08-29 Clinical safety

    The MAINTAIN intervention demonstrated high fidelity in home assessments and intervention delivery, with participants receiving a mean of 15 of the 22 available sessions with a range of 5-25 sessions.

  16. Smart Room Design for Dementia Nursing Home Based on Kano-AHP-QFD Integrated Methodology

    ✓ Peer-reviewed alzhub usefulness score 33 out of 100. HERD Health Environments Research & Design Journal 2025-08-28 Clinical safety

    BackgroundWith the growing demand for dementia-friendly care environments, existing smart room designs often lack systematic methods to translate user needs into functional solutions.

  17. Deprescribing for People with Dementia: A Roadmap

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Drugs & Aging 2025-08-26 Caregiving

    People with dementia (PWD) are frequently exposed to polypharmacy and potentially inappropriate medication use, in which the risks of medication use outweigh the benefits or the medication is not aligned with treatment goals.

  18. Acceptability of Euthanasia for People With Dementia: Perspectives of Clinicians From Six Countries

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. American Journal of Geriatric Psychiatry 2025-08-21 End-of-life care

    Participants included 202 physicians and three nurse specialists who assumed similar medical responsibilities.

  19. Advance care planning with people living with dementia: ethical considerations of physicians in the United States and the Netherlands

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. The Journals of Gerontology Series B 2025-08-21 End-of-life care

    Interviews with 50 Dutch physicians and 47 American physicians and 3 nurse practitioners generated three themes of ethical considerations: (1) Respecting the autonomy of the person with dementia, (2) Rationality as the basis for decisions and subsequent actions, and (3) Minimizing burden and suffering.

  20. Management and Care for People Living With Dementia and Their Caregivers: Findings From an Italian National Survey on Caregivers and Services Use

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Psychogeriatrics 2025-08-21 Caregiving

    A total of 2369 caregivers participated in the survey.

  21. Perspectives of Hospice Medical Directors on Challenges and Solutions for Improving Care for Persons Living With Dementias (PLWD) and Their Caregivers

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. American Journal of Hospice and Palliative Medicine® 2025-08-20 End-of-life care

    BackgroundPersons living with dementia (PLWD) on hospice care face unique end-of-life (EoL) care challenges.

  22. Tailored Dementia Care across Seven Swiss Memory Clinics: The CareMENS Model Improves Patients’ Mood and Quality of Life

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Neurodegenerative Diseases 2025-08-18 Cognitive tests and assessment

    anxiety and depression symptoms (HADS), functional autonomy (DAD-6), global cognition (MoCA), and quality of life (WHOQOL).

  23. Palliative Care Needs of Older Adults With and Without Dementia During Post-Acute Care in Skilled Nursing Facilities

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. Journal of Applied Gerontology 2025-08-17 End-of-life care

    Seriously ill older adults, including those living with Alzheimer’s disease and related dementias (ADRD), often receive disease-focused rehabilitative care in skilled nursing facilities (SNF) with little consideration for their palliative care (PC) needs.

  24. Caregivers’ burden analytics: combining variables from patients with dementia and their caregivers

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. BMC Geriatrics 2025-08-14 Caregiving

    One hundred and fifty rules were found for caregivers with a moderate to severe burden, and these rules can be further summarized into twenty general rules.

  25. Dementia Caregivers’ Perspectives on Technology’s Place in Care Practices: Mixed Methods Survey

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. JMIR Formative Research 2025-08-14 Caregiving

    Respondents (N=69) identified access to resources as the most important unmet need for caregivers (53%).

  26. Surrogate Decision‐Making Practices Regarding End‐of‐Life Care for People With Dementia in Long‐Term Care Hospitals: A Qualitative Descriptive Study

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of Advanced Nursing 2025-08-14 End-of-life care

    The analysis yielded three categories and nine subcategories describing surrogate decision-making practices regarding end-of-life care for people with dementia: (a) typical circumstances of end-of-life care planning, (b) expected roles of key personnel and related challenges and (c) important considerations.

  27. Gender differences in spousal caregiver strain and paid service use among dementia caregivers in rural Appalachia

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Frontiers in Public Health 2025-08-13 Caregiving

    Spousal caregivers of persons living with dementia (PLwD) often experience high overload and loneliness due to the intensive and ongoing nature of caregiving for their partner.

  28. • A novel semi-immersive VR driving simulator (VRDS) for institutionalized older adults with advanced dementia. • The VRDS integrates realistic driving with a virtual environment to stimulate implicit memory and improve cognitive function. • Statistical analyses indicate improvements in game and mood scores over repeated sessions. • The system’s performance logging provides objective measures of implicit learning and motor adaptation in advanced dementia. • The logging system offers a practical alternative to standard cognitive assessments in advanced dementia.

  29. Storytelling in family-provided care - developing diversity-sensitive stories for family caregivers of Turkish individuals living with dementia

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. BMC Nursing 2025-08-12 Caregiving

    The study resulted in the creation of nine storytelling packs, each containing five stories tailored to specific caregiver personas.

  30. Emergency Department Care Coordination Program for Assisted Living Residents With Dementia

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. JAMA Network Open 2025-08-11 End-of-life care

    Of 22 total CCMs, 12 participated in this study (employed as a CCM for a median [IQR] of 2 [1-3] years; 12 [100%] female) and identified populations that they perceived to especially benefit from the program, including PLWD, patients in hospice, and patients living in group homes.

  31. Patient- and Caregiver-Identified Goals for Advance Care Planning in Patients With Dementia or Cognitive Impairment

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Dementia 2025-08-11 End-of-life care

    Despite an aging population and acknowledged importance of advance care planning (ACP) for persons living with cognitive impairment, few engage in ACP.

  32. The National Dementia Workforce Study: Methods for Surveying Community Clinicians Who Provide Care to People With Dementia

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of the American Geriatrics Society 2025-08-08 Caregiving

    People with dementia have complex medical, functional, and social needs and experience highly variable care quality and outcomes across the U.S. health care system.

  33. Development and Validation of the End‐of‐Life Assessment Tool for Advanced Dementia: A Multi Method Study

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Journal of Advanced Nursing 2025-08-06 End-of-life care

    The item-bank included 180 symptoms, most of which focus group nurses (n = 17) identified as occurring in advanced dementia.

  34. N = 48 community-based dyads completed the LEAD intervention, with N = 43 answering open-ended questions.

  35. Pilot Test of Aprendiendo Juntos/Learning Together Demonstrates Improved Self-Efficacy for Providing Care Among Latino Family Caregivers of Persons Living With Dementia

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Western Journal of Nursing Research 2025-08-04 Caregiving

    Caregiver self-efficacy significantly improved in the IIG compared with the WLG ( P = .042) with a moderate effect size ( d = 0.64).

  36. Dementia knowledge and caregiver burden among carers of older adults in rural eastern Uganda

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. Alzheimer s & Dementia 2025-08-01 Caregiving

    The prevalence of caregiver burden was 28.9%.

  37. Enhancing care service utilization and reducing burden: the role of needs assessments for dementia caregivers in long-term care

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. BMC Nursing 2025-08-01 Caregiving

    The implementation of needs assessments was associated with increased long-term care (LTC) service utilization.

  38. From living well to dying well with dementia: The significance of an expanded understanding of loss for end-of-life care

    ✓ Peer-reviewed alzhub usefulness score 30 out of 100. Palliative Care and Social Practice 2025-08-01 End-of-life care

    As rates of dementia increase, the need for care is clear.

  39. Physician-Related Gaps in Hospice Referral for Patients with Advanced Dementia

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Clinical Interventions in Aging 2025-08-01 End-of-life care

    A total of 200 physicians participated in the study.

  40. Toward compassionate communication: a rapid review on facilitating the dementia disclosure process

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Alzheimer s & Dementia 2025-08-01 Disparities

    Individuals with dementia and their care partners often report dissatisfaction with the disclosure process due to insufficient information and support.

  41. Communication and end-of-life care in dementia: insights from a close family member working in healthcare

    ✓ Peer-reviewed alzhub usefulness score 28 out of 100. British Journal of Community Nursing 2025-07-31 End-of-life care

    There is very little documented evidence on the experiences of healthcare professionals caring for their own family outside of their role.

  42. Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter

    ✓ Peer-reviewed alzhub usefulness score 34 out of 100. Canadian Journal on Aging / La Revue canadienne du vieillissement 2025-07-30 Caregiving

    Respite for individuals caring for family living with dementia is a common way to take personal time away from caregiving.

  43. Respite time-use among dementia caregivers

    ✓ Peer-reviewed alzhub usefulness score 32 out of 100. Frontiers in Health Services 2025-07-28 Caregiving

    Respite goal achievement on a given week predicted improvements in participants' ratings of their respite time-use outcomes one week later.

  44. Evaluating the pragmatic characteristics of advance care planning outcome measures in dementia clinical trials: A scoping review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Carolina Digital Repository (University of North Carolina at Chapel Hill) 2025-07-26 End-of-life care

    We included 21 ACP RCTs. Trials included 103 outcome measures (39 primary and 64 secondary), of which 11% measured process, 14% measured action, 49% measured healthcare, and 26% measured quality of care.

  45. Beneficial effect of artificial intelligence care call on memory and depression in community dwelling individuals with dementia

    ✓ Peer-reviewed alzhub usefulness score 39 out of 100. Scientific Reports 2025-07-25 Digital health tools

    Traditional dementia-prevention programs have limited accessibility and lack continuous monitoring, making sustained cognitive and emotional support challenging.

  46. Equitable formal care access: examining processes for Hispanic/Latino family dementia caregivers’ decision-making

    ✓ Peer-reviewed alzhub usefulness score 37 out of 100. The Gerontologist 2025-07-25 Caregiving

    Four main themes were identified: (1) reasons family caregivers may not choose formal care, (2) perceived benefits of formal care, (3) how family caregivers choose formal care, and (4) recommendations for delivering information about formal care options.

  47. “It may cost you your money, it costs you your life”: a framework for financial hardship in dementia

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. The Gerontologist 2025-07-25 End-of-life care

    Among 52 participants recruited, 27 were former caregivers, 16 were current caregivers, and nine were persons with dementia; experiences reflected Alzheimer's (n = 18), sporadic Creutzfeldt-Jakob (n = 12), Lewy body (n = 7), and other dementias (n = 15).

  48. No improvement with palliative care in patients with moderate to severe dementia

    ✓ Peer-reviewed alzhub usefulness score 29 out of 100. AJN American Journal of Nursing 2025-07-24 End-of-life care

  49. Having Their Cake and Eating it Too: An Exploratory Mixed-Methods Study on the Dietary Behaviours of Family Carers of Persons With Dementia

    ✓ Peer-reviewed alzhub usefulness score 31 out of 100. Dementia 2025-07-23 Prevention trials

    Family carers were food secure according to the FIES, and their overall diet quality was moderate, with a mean MEDAS score of 6.6 ± 2.1.

  50. How to Implement Advance Care Planning for People With Dementia: A Scoping Review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of Advanced Nursing 2025-07-22 End-of-life care

    The review included 45 studies and identified key components and processes for successfully implementing advance care planning in dementia care.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts