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The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study
Mollie Louise Price, Claire Surr, Brendan Gough, David M. Howe, Laura Ashley. JMIR Cancer, 2025-07-10
Topic: Risk, prevention and care in population studies
Plain-language summary
A total of 258 usernames posted on the forum since its inception. There were 893 posts; 583 (65.3%) were coded as providing social support. All 5 Social Support Behavior Code categories were present in the forum posts. Informational support was the most common type of social support provided on the forum, which mostly involved providing suggestions for caregiving and coping strategies and sharing personal experiences that provide CDC-specific knowledge or insight. This was followed by emotional support, which consisted mostly of expressing shared understanding and empathy for caregivers in their unique situation of CDC and providing expressions of care for the recipient's well-being. Esteem, network, and tangible support were less common, though they included providing validation and relief of blame to other caregivers, typically in decision-making regarding cancer treatment; reminding caregivers that others were available on the forum for support; and expressing willingness to answer questions about their CDC caregiving experience. This study demonstrates the use and value of a CDC-specific online forum as a source of social support for carers of people with CDC, facilitating users' access to CDC-specific information and peer support. The relatively new forum shows promise as a free and accessible resource that can contribute to addressing carers' informational and peer support needs.
What this study adds
Evidence grade: Low
The record lists 893 participants. This content analysis of an online forum for caregivers of people with both dementia and cancer found that most posts provided social support, most commonly informational support. Reported effect size: 65.3%.
Taken from this record’s own fields, not from reading the paper. The grade is assigned from the abstract’s wording; what that means.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Price, M. L., Surr, C., Gough, B., Howe, D. M., & Ashley, L. (2025). The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study. JMIR Cancer. https://doi.org/10.2196/72217
Vancouver
Price ML, Surr C, Gough B, Howe DM, Ashley L. The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study. JMIR Cancer. 2025. doi:10.2196/72217. PMID: 41022373.
BibTeX
@article{price2025-41022373,
author = {Price, Mollie Louise and Surr, Claire and Gough, Brendan and Howe, David M. and Ashley, Laura},
title = {{The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study}},
journal = {JMIR Cancer},
year = {2025},
doi = {10.2196/72217},
pmid = {41022373},
url = {https://doi.org/10.2196/72217}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- A total of 258 usernames posted on the forum since its inception.
- There were 893 posts; 583 (65.3%) were coded as providing social support.
- All 5 Social Support Behavior Code categories were present in the forum posts.
- Informational support was the most common type of social support provided on the forum, which mostly involved providing suggestions for caregiving and coping strategies and sharing personal experiences that provide CDC-specific knowledge or insight.
- This was followed by emotional support, which consisted mostly of expressing shared understanding and empathy for caregivers in their unique situation of CDC and providing expressions of care for the recipient's well-being.
Why it matters
This content analysis of an online forum for caregivers of people with both dementia and cancer found that most posts provided social support, most commonly informational support. It describes peer support use and does not test any treatment, cure, or prevention.
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Study details
- Participants893
- Effect size65.3%
- Evidence strengthLow
How this study scored 42/100
Published in a peer-reviewed journal. Scored zero for study design and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (JMIR Cancer) |
| Journal's citation record | 0 / 4 | JMIR Cancer: journal h-index 40 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 2 / 4 | 893 participants |
| Effect reported | 2 / 3 | Effect reported as a number, without an interval or test |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 5 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 5.2× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 5 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Laura Ashley: h-index 20 (OpenAlex, whole career) |
| Institution's track record | 0 / 3 | Leeds Beckett University: institution h-index 220 (OpenAlex) |
| Multicenter collaboration | 0 / 3 | OpenAlex lists 1 institution(s) in 1 country — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41022373) |
| Free to read | 2 / 2 | Free to read |
| Total | 42 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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