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Home › Research › Topics › care

care

1,013 studies tagged care, dated 1986-10-01 to 2026-09-17 (1 undated). Bibliography: BibTeX (.bib) · RIS (.ris)

Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Gender differences in caregiving among family - caregivers of people with mental illnesses

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. World journal of psychiatry 2016-03-22 Caregiving

    It has been suggested that there are several societal and cultural demands on women to adopt the role of a family-caregiver.

  2. Context, mechanisms and outcomes in end of life care for people with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. BMC palliative care 2016-03-10 End-of-life care

    Contextual factors regarding the care home environment may be obdurate and tend to negatively impact on the quality of end of life dementia care.

  3. Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Palliative medicine 2016-02-04 End-of-life care

    Advance care planning can assist patients to achieve a sense of control and 'peace of mind' and facilitates important family discussion.

  4. Computer-based cognitive interventions for people living with dementia: a systematic literature review and meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Aging & mental health 2016-01-25 Disparities

    Twelve studies were identified.

  5. A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise?

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Maturitas 2016-01-04 Caregiving

    Although multi-component social support interventions may improve caregiver well-being, there is insufficient evidence to conclude whether a change in social support is the underlying mediating factor.

  6. Live Discharge from Hospice and the Grief Experience of Dementia Caregivers

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of social work in end-of-life & palliative care 2016-01-01 End-of-life care

    When an individual has dementia, family members are involved in many care transitions in their roles as caregivers.

  7. The Burden of Health Care Costs for Patients With Dementia in the Last 5 Years of Life

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. Annals of Internal Medicine 2015-11-17 Costs and economics

    This study followed a national sample of Medicare beneficiaries who died and compared total health and long-term care spending in their final five years of life.

  8. Advance care planning for nursing home residents with dementia: policy vs. practice

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of Advanced Nursing 2015-11-12 Health systems and care delivery

    Nursing homes generally met three quarters of the pre-defined criteria for advance care planning policy.

  9. Identification of the palliative phase in people with dementia: a variety of opinions between healthcare professionals

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. BMC palliative care 2015-11-04 End-of-life care

    The results of the study identified that professionals across Europe have different opinions regarding the time point when to consider a person with dementia in need of palliative care.

  10. The burden of health care costs for patients with dementia in the last 5 years of life

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Annals of internal medicine 2015-10-27 Caregiving

    Health care expenditures among persons with dementia were substantially larger than those for other diseases, and many of the expenses were uncovered (uninsured).

  11. Effects of Physical Exercise on Health and Well-Being of Individuals Living With a Dementia in Nursing Homes: A Systematic Review

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Journal of the American Medical Directors Association 2015-10-01 Prevention and risk

    There is emerging evidence that physical exercise significantly benefits individuals living with a dementia in nursing homes.

  12. End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. BMC palliative care 2015-09-17 End-of-life care

    For people with dementia living and dying in care homes, EoL interventions need to provide strategies that can accommodate or "hold" the inevitable and often unresolvable uncertainties of providing and receiving care in these settings.

  13. Health care professionals' perspectives of advance care planning for people with dementia living in long-term care settings: A narrative review of the literature

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Dementia (London, England) 2015-09-16 End-of-life care

    This paper provides an overview of the evidence on the perspective of health care professionals (HCPs) in relation to advance care planning (ACP) for people with dementia, residing in long-term care settings.

  14. Development of a model for integrated care at the end of life in advanced dementia: A whole systems UK-wide approach

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Palliative medicine 2015-09-09 End-of-life care

    Use of in-depth data, consensus methods and theoretical understanding of the intervention components produced an evidence-based intervention for further testing in end-of-life care in advanced dementia.

  15. Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of the American Medical Directors Association 2015-08-05 End-of-life care

    ACP is a multifactorial process, which may lean on professional caregivers' guidance.

  16. Palliative care in dementia: literature review of nurses' knowledge and attitudes towards pain assessment

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. International journal of palliative nursing 2015-08-01 End-of-life care

    Nurses play a key role in the effective management of pain through the use of pain assessment tools, behavioural observation, and analgesic choice.

  17. Depression of Family Caregivers Is Associated with Disagreements on Life-Sustaining Preferences for Treating Patients with Dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. PloS one 2015-07-31 End-of-life care

    The preferences of end-of-life issues differed greatly between dementia patients and their caregivers.

  18. Availability and Primary Health Care Orientation of Dementia-Related Services in Rural Saskatchewan, Canada

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Home health care services quarterly 2015-07-01 End-of-life care

    Community-based services are important for improving outcomes for individuals with dementia and their caregivers.

  19. Achieving consensus and controversy around applicability of palliative care to dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2015-06-10 End-of-life care

    Benefits of palliative care in dementia are acknowledged by experts worldwide, but there is some controversy around its early introduction.

  20. Caregiver burden for informal caregivers of patients with dementia: A systematic review

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. International nursing review 2015-06-08 Caregiving

    Factors of caregiver burden in regard to people with dementia living in the community were clarified in this review study.

  21. A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: a pilot randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Journal of medical Internet research 2015-05-12 Caregiving

    In this study, quantitative results were inconclusive owing to small sample size.

  22. General practitioners perceptions on advance care planning for patients living with dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. BMC palliative care 2015-04-23 End-of-life care

    Optimal timing of ACP discussions should be determined by the readiness of the patient and family carer to face end of life.

  23. A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. International psychogeriatrics 2015-04-14 End-of-life care

    We recommend development and testing of decision aids targeting the decisions carers report finding most distressing, including those around where people should live, accessing services, and end of life treatments.

  24. End-of-life issues in advanced dementia: Part 1: goals of care, decision-making process, and family education

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Canadian family physician Medecin de famille canadien 2015-04-01 End-of-life care

    Physicians should consider advanced dementia as a terminal disease for which there is a continuum of care that goes from palliative care with life-extending measures to symptomatic interventions only.

  25. Community-based palliative care is associated with reduced emergency department use by people with dementia in their last year of life: A retrospective cohort study

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. Palliative medicine 2015-03-17 End-of-life care

    Community-based palliative care of people who die with or of dementia is relatively infrequent but associated with significant reductions in hospital emergency department use in the last year of life.

  26. Comfort goal of care and end-of-life outcomes in dementia: A prospective study

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Palliative medicine 2015-02-17 End-of-life care

    We found that family satisfaction with care is related to a comfort care goal shortly after admission, but quality of dying did not.

  27. Translating Evidence-Based Dementia Caregiving Interventions into Practice: State-of-the-Science and Next Steps

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. The Gerontologist 2015-02-17 Caregiving

    Over the past 3 decades, more than 200 dementia caregiver interventions have been tested in randomized clinical trials and found to be efficacious.

  28. An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2015-02-13 End-of-life care

    National dementia strategies cover part of the recent definition of palliative care in dementia, although they do not frequently label these references as "palliative care."

  29. Effectiveness of an Internet intervention for family caregivers of people with dementia: results of a randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. PloS one 2015-02-13 Caregiving

    The Internet course 'Mastery over Dementia' offers an effective treatment for family caregivers of people with dementia reducing symptoms of depression and anxiety.

  30. Consensus views on advance care planning for dementia: a Delphi study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health & social care in the community 2015-02-11 End-of-life care

    The uptake of advance care planning (ACP) is particularly low among people with dementia.

  31. Palliative care and quality of life for people with dementia: medical and psychosocial interventions

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International psychogeriatrics 2015-01-09 End-of-life care

    Educating families and professionals about palliative care is important as many professionals and non-professionals believe that this approach intends to hasten death, instead of affirming life and regarding dying as a normal process.

  32. International variation in place of death of older people who died from dementia in 14 European and non-European countries

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Medical Directors Association 2014-12-18 End-of-life care

    Place of death of older people who died from a dementia-related disease differs substantially between countries, which might point to organizational differences in end-of-life care provision.

  33. Statin discontinuation in nursing home residents with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 53 out of 100. Journal of the American Geriatrics Society 2014-11-04 End-of-life care

    Most NH residents who use statins at the time of progression to advanced dementia continue use in follow-up.

  34. Shared decision-making in dementia: A review of patient and family carer involvement

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Dementia (London, England) 2014-11-03 Caregiving

    This paper reviews empirical findings concerning the decision-making process of persons with dementia and their family carers, with a particular focus on the extent and determinants of involvement of persons with dementia in the decision-making process.

  35. Use of medications of questionable benefit in advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. JAMA internal medicine 2014-11-01 End-of-life care

    Of 5406 nursing home residents with advanced dementia, 2911 (53.9%) received at least 1 medication with questionable benefit (range, 44.7% in the Mid-Atlantic census region to 65.0% in the West South Central census region).

  36. Advance care planning in people with early cognitive impairment

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. BMJ supportive & palliative care 2014-10-21 End-of-life care

    A large proportion of patients with ECI decline ACP discussions and the reasons are influenced by personal values, coping behaviours and sociocultural norms.

  37. Consensus on quality indicators to assess the organisation of palliative cancer and dementia care applicable across national healthcare systems and selected by international experts

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. BMC health services research 2014-09-17 End-of-life care

    International experts selected a set of 23 QIs for the organisation of palliative care.

  38. End of life care: The experiences of advance care planning amongst family caregivers of people with advanced dementia - A qualitative study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia (London, England) 2014-09-03 End-of-life care

    Advance care planning can be facilitated with the family caregiver in the context of everyday practice within the nursing home environment for older people with dementia.

  39. Development of a practice guideline for optimal symptom relief for patients with pneumonia and dementia in nursing homes using a Delphi study

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of geriatric psychiatry 2014-07-07 End-of-life care

    We developed a mostly consensus-based practice guideline for patients with dementia and pneumonia and mapped controversial issues for future investigation.

  40. Burdensome transitions at the end of life among long-term care residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Medical Directors Association 2014-06-07 End-of-life care

    The ongoing change in long-term care from institutional care to housing services causes major challenges to the continuity of end-of-life care.

  41. Advance directives and nursing home stays associated with less aggressive end-of-life care for patients with severe dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health affairs (Project Hope) 2014-04-01 End-of-life care

    The number of older adults with cognitive impairment is increasing, and such adults often require a surrogate to make decisions about health care.

  42. Optimizing person-centered transitions in the dementia journey: a comparison of national dementia strategies

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health affairs (Project Hope) 2014-04-01 End-of-life care

    The journey for people with Alzheimer's disease or another dementia involves the need for increasing levels of support, with transitions across care settings.

  43. Vital conversations with family in the nursing home: preparation for end-stage dementia care

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Journal of social work in end-of-life & palliative care 2014-04-01 End-of-life care

    Family members of persons with advanced dementia may be asked to make complex treatment decisions without having adequate knowledge regarding the risks and benefits.

  44. Benefit-finding intervention for Alzheimer caregivers: conceptual framework, implementation issues, and preliminary efficacy

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. The Gerontologist 2014-03-31 Treatments

    Controlling for pretest, the benefit-finding group had lower depression than the psychoeducation group at post-test, despite the fact that some caregivers found benefit-finding challenging.

  45. Multivariate models of subjective caregiver burden in dementia: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 63 out of 100. Ageing research reviews 2014-03-25 Caregiving

    We found 32 studies with burden models and 24 depression and mental health models.

  46. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Palliative medicine 2014-03-13 End-of-life care

    It is difficult to define what constitutes high-quality end-of-life care for people with dementia from the perspective of family carers.

  47. Caregiver Burden: A Clinical Review

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. JAMA 2014-03-12 Caregiving

    This JAMA clinical review synthesizes cohort studies and meta-analyses to give physicians practical guidance on recognizing, assessing, and treating caregiver burden.

  48. Caregiver burden in end-of-life care: advanced cancer and final stage of dementia

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Palliative & supportive care 2014-03-10 End-of-life care

    The percentage of psychological distress was similar between caregivers of cancer patients (77.6%) and caregivers of dementia patients (72.4%).

  49. Quality of dying in nursing home residents dying with dementia: does advanced care planning matter? A nationwide postmortem study

    ✓ Peer-reviewed alzhub usefulness score 50 out of 100. PloS one 2014-03-10 End-of-life care

    We identified 101 deaths of residents with dementia in 69 nursing homes (58% response rate).

  50. Caregiver burden: a clinical review

    ✓ Peer-reviewed alzhub usefulness score 78 out of 100. JAMA 2014-03-01 Caregiving

    Physicians have a responsibility to recognize caregiver burden.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts