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Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter
Darla Fortune, Amélie Gauthier-Gilbert. Canadian Journal on Aging / La Revue canadienne du vieillissement, 2025-07-30
Topic: Risk, prevention and care in population studies
Respite for individuals caring for family living with dementia is a common way to take personal time away from caregiving. Other than respite, there is little indication that caregivers receive adequate support from community and healthcare services. As a result, caregivers tend to experience a decline in well-being, due, in part, to a reduction in meaningful leisure experiences. The purpose of this article is to share findings from research aimed at discovering ways to enhance caregiver participation in meaningful leisure. Findings highlight how participants sacrificed their leisure time in favour of caregiving responsibilities and experienced a diminished sense of social connection. Findings also highlight how participants can have their own care needs met through leisure programming that lets them know they matter. We draw from these findings to suggest ways to direct more attention and resources to meeting caregiver needs.
Key findings
- As a result, caregivers tend to experience a decline in well-being, due, in part, to a reduction in meaningful leisure experiences.
- We draw from these findings to suggest ways to direct more attention and resources to meeting caregiver needs.
Why it matters
This article reports that caregivers sacrificed leisure time and experienced diminished social connection, contributing to a decline in well-being. It suggests directing more attention and resources to meeting caregiver needs through leisure programming.
New to this subject? Start with our plain-English guide: Caregiving →
Study details
- Evidence strengthLow
How this study scored 34/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on senior author's track record, so that was left out: it earned 33 of the 96 points we could judge it on, which is 34 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Canadian Journal on Aging / La Revue canadienne du vieillissement) |
| Journal's citation record | 1 / 4 | Canadian Journal on Aging / La Revue canadienne du vieillissement: journal h-index 77 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 3.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | — / 4 | OpenAlex's profile for last-listed author Amélie Gauthier-Gilbert holds only 1 work(s), too few to judge a track record — left out of this score |
| Institution's track record | 0 / 3 | Concordia University: institution h-index 503 (OpenAlex) |
| Multi-centre collaboration | 0 / 3 | OpenAlex lists 1 institution(s) in 1 country — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40735824) |
| Free to read | 2 / 2 | Free to read |
| Points | 33 / 96 | Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 33 of the 96 points we could judge it on is 34 out of 100. |
| Total | 34 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1017/s0714980825100160
- PubMed: 40735824
- Original source →
- Free full text: Canadian Journal on Aging / La Revue canadienne du vieillissement →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
APA 7th
Fortune, D., & Gauthier-Gilbert, A. (2025). Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter. Canadian Journal on Aging / La Revue canadienne du vieillissement. https://doi.org/10.1017/s0714980825100160
Vancouver
Fortune D, Gauthier-Gilbert A. Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter. Canadian Journal on Aging / La Revue canadienne du vieillissement. 2025. doi:10.1017/s0714980825100160. PMID: 40735824.
BibTeX
@article{fortune2025-40735824,
author = {Fortune, Darla and Gauthier-Gilbert, Amélie},
title = {{Addressing Caregivers’ Needs beyond Respite: Enhancing Social Connections and Letting Them Know They Matter}},
journal = {Canadian Journal on Aging / La Revue canadienne du vieillissement},
year = {2025},
doi = {10.1017/s0714980825100160},
pmid = {40735824},
url = {https://doi.org/10.1017/s0714980825100160}
}
Studies this one cites
Referenced by this study and also in the alzhub library, so you can read them here.