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Development and Co‐Production of POST‐ID: A Post‐Diagnostic Behaviourally Informed Psychosocial Dementia Intervention for Adults With Intellectual Disabilities
Danny Acton, Robert Waites. British Journal of Learning Disabilities, 2026-06-15
Topic: Risk, prevention and care in population studies
ABSTRACT Background Adults with intellectual disabilities experience higher rates and earlier onset of dementia, however post‐diagnostic support within community intellectual disabilities services remains inconsistently structured. Existing approaches often emphasise information provision or ad hoc advice, with limited availability of clearly specified, manualised psychosocial interventions tailored to this population. Methods POST‐ID was developed through a staged, iterative and co‐produced intervention development process aligned with Medical Research Council guidance. Qualitative findings from caregivers and wider stakeholder engagement informed intervention design. Six caregivers, family and paid participated in structured review cycles to refine session content, materials, and delivery within routine community intellectual disabilities services. The final intervention was fully specified using the Template for Intervention Description and Replication (TIDieR) checklist. Findings Stakeholder feedback led to substantive refinements, including delivery across six structured sessions, prioritisation of emotional safety and identity preservation, and explicit focus on carer‐mediated behaviour change. A central intervention output is a co‐produced Dementia Support Plan, designed to translate facilitated discussions into consistent, day‐to‐day caregiving practices across settings. These processes resulted in a structured, manualised, behaviourally informed psychosocial intervention deliverable by existing community intellectual disabilities clinicians. Conclusion POST‐ID provides a clearly specified, behaviourally informed post‐diagnostic psychosocial intervention designed for implementation within routine intellectual disabilities services and is ready for feasibility and implementation testing.
Key findings
- The final intervention was fully specified using the Template for Intervention Description and Replication (TIDieR) checklist.
- Findings Stakeholder feedback led to substantive refinements, including delivery across six structured sessions, prioritisation of emotional safety and identity preservation, and explicit focus on carer‐mediated behaviour change.
- A central intervention output is a co‐produced Dementia Support Plan, designed to translate facilitated discussions into consistent, day‐to‐day caregiving practices across settings.
- These processes resulted in a structured, manualised, behaviourally informed psychosocial intervention deliverable by existing community intellectual disabilities clinicians.
- Conclusion POST‐ID provides a clearly specified, behaviourally informed post‐diagnostic psychosocial intervention designed for implementation within routine intellectual disabilities services and is ready for feasibility and implementation testing.
Why it matters
This study describes the development of a psychosocial intervention called POST-ID for adults with intellectual disabilities after a dementia diagnosis, refined through caregiver feedback into six structured sessions and a co-produced support plan. It is an intervention development study and does not yet report outcomes on treating, curing, or preventing Alzheimer's disease.
Study details
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, still being cited, senior author's track record, institution's track record and multi-centre collaboration, so those were left out: it earned 26 of the 64 points we could judge it on, which is 41 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (British Journal of Learning Disabilities) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Points | 26 / 64 | Scored on 12 of 20 parts. We have no data for the rest, so they are left out: 26 of the 64 points we could judge it on is 41 out of 100. |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
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Cite this study APA, Vancouver, BibTeX · download .bib or .ris
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APA 7th
Acton, D., & Waites, R. (2026). Development and Co‐Production of POST‐ID: A Post‐Diagnostic Behaviourally Informed Psychosocial Dementia Intervention for Adults With Intellectual Disabilities. British Journal of Learning Disabilities. https://doi.org/10.1111/bld.70060
Vancouver
Acton D, Waites R. Development and Co‐Production of POST‐ID: A Post‐Diagnostic Behaviourally Informed Psychosocial Dementia Intervention for Adults With Intellectual Disabilities. British Journal of Learning Disabilities. 2026. doi:10.1111/bld.70060.
BibTeX
@article{acton2026-32f10d06,
author = {Acton, Danny and Waites, Robert},
title = {{Development and Co‐Production of POST‐ID: A Post‐Diagnostic Behaviourally Informed Psychosocial Dementia Intervention for Adults With Intellectual Disabilities}},
journal = {British Journal of Learning Disabilities},
year = {2026},
doi = {10.1111/bld.70060},
url = {https://doi.org/10.1111/bld.70060}
}
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