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Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers
Slađana Pavković, Lynette Ruth Goldberg, Maree Farrow, Jane Alty, Melissa Abela, Lee‐Fay Low. Dementia, 2025-04-14
Topic: Risk, prevention and care in population studies
Current Care and Support: Four themes emerged: Communication with empathy; Written information valuable but could be overwhelming; Referrals provided but not necessarily followed; A focus on prescribed anti-dementia medications. Under the topic of Barriers, three themes were derived: Dementia stigma restricts life after diagnosis; Disapointment in Health and Aged Care systems; Limited insight into and/or difficulty expressing own needs. Under the topic of Facilitators, comments focused on Support from family and friends is crucial. Under the topic of Desirable Care and Support, three themes emerged: A single person guiding ongoing post-diagnostic support; Support with driving concerns; Engaging and tailored information. Perspectives of people recently diagnosed with dementia and their carers identified the need to ensure that post-diagnostic support addressed their individual needs, was clear, ongoing and involved the support of family and friends to reduce barriers and facilitate access. The importance of guidance by a trusted professional support person was considered key in facilitating more effective post-diagnostic dementia care.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Pavković, S., Goldberg, L. R., Farrow, M., Alty, J., Abela, M., & Low, L. (2025). Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers. Dementia. https://doi.org/10.1177/14713012251333880
Vancouver
Pavković S, Goldberg LR, Farrow M, Alty J, Abela M, Low L. Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers. Dementia. 2025. doi:10.1177/14713012251333880. PMID: 40223560.
BibTeX
@article{pavkovic2025-40223560,
author = {Pavković, Slađana and Goldberg, Lynette Ruth and Farrow, Maree and Alty, Jane and Abela, Melissa and Low, Lee‐Fay},
title = {{Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers}},
journal = {Dementia},
year = {2025},
doi = {10.1177/14713012251333880},
pmid = {40223560},
url = {https://doi.org/10.1177/14713012251333880}
}
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Key findings
- Current Care and Support: Four themes emerged: Communication with empathy; Written information valuable but could be overwhelming; Referrals provided but not necessarily followed; A focus on prescribed anti-dementia medications.
- Under the topic of Barriers, three themes were derived: Dementia stigma restricts life after diagnosis; Disapointment in Health and Aged Care systems; Limited insight into and/or difficulty expressing own needs.
- Under the topic of Facilitators, comments focused on Support from family and friends is crucial.
- Under the topic of Desirable Care and Support, three themes emerged: A single person guiding ongoing post-diagnostic support; Support with driving concerns; Engaging and tailored information.
- Perspectives of people recently diagnosed with dementia and their carers identified the need to ensure that post-diagnostic support addressed their individual needs, was clear, ongoing and involved the support of family and friends to reduce barriers and facilitate access.
Why it matters
This study gathered perspectives of people recently diagnosed with dementia and their carers in Australia, identifying needs for clear, ongoing, individualized post-diagnostic support and guidance by a trusted professional. It concerns post-diagnostic support and does not test any treatment, cure, or prevention for Alzheimer's disease.
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Study details
- Study designcross-sectional
- Participants13
- Evidence strengthLow
How this study scored 46/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for effect reported and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Dementia) |
| Journal's citation record | 1 / 4 | Dementia: journal h-index 92 (OpenAlex, 2026-10-29) |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 13 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 8 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 2.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 5.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 8 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Lee‐Fay Low: h-index 46 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | The University of Sydney: institution h-index 1,466 (OpenAlex) |
| Multicenter collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40223560) |
| Free to read | 2 / 2 | Free to read |
| Total | 46 / 100 | — |
What each of these 20 components measures, and what this score is not →
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