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family
1,013 studies tagged family, dated 1986-10-01 to 2026-09-17 (1 undated). Bibliography: BibTeX (.bib) · RIS (.ris)
Newest in this topic
- Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
- Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
- Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17
Studies
1,013 studies carry this tag; 1,012 of them have a date.
Date range
1986 to 2026
Top journals
- Journal of the American Geriatrics Society 63
- The Gerontologist 48
- Alzheimer s & Dementia 28
- International psychogeriatrics 28
- Journal of the American Medical Directors Association 26
339 journals in all.
Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.
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In this study, a preliminary reliability assessment on the Chinese version of the EOLD scale was conducted, revealing that the three subscales exhibit strong internal consistency in reliability and structural validity.
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This study included 180 (65%) caregivers for the elderly with dementia and 98 (35%) without dementia.
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Significant improvements were observed after 1 month of VR intervention in both caregiver burden (Z=-3.095, P=.002, r=0.34) and neuropsychiatric symptoms (Z=-2.929, P=.003, r=0.32).
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This study explores how older people with dementia and their family caregivers experience the process from diagnosis to follow-up in primary care, what support is needed, what works well and what could be improved.
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The study cohort comprised patients with a mean age of 87.2 ± 7.2 years (n = 100), 63% of whom had lived in nursing homes.
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A total of 258 usernames posted on the forum since its inception.
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Caregivers whose care recipients were female ( B = −0.29, p = 0.006), had more chronic conditions ( B = 0.31, p = 0.011), and had lower Mini-Mental State Exam scores ( B = −0.20, p = 0.015) reported higher task time burdens.
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From an initial cohort of 18 605 participants, 10 058 were included (5062 men [50.3%]; 4996 women [49.7%]; mean [SD] age, 60.9 [7.2] years).
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In the context of an aging population, China’s elderly care market is experiencing a period of significant transformation.
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Six key themes emerged: (1) challenges in daily care; (2) strain from behavioral and sleep disruptions; (3) difficulties in seeking help; (4) personal sacrifices of caregivers; (5) emotional burdens associated with caregiving, including comorbidity concerns of PwD; (6) limited dementia knowledge and essential caregiving skills.
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This exploratory, interpretivist, pre-implementation qualitative study used semi-structured interviews with 15 participants—four people living with dementia and 11 carers—to identify their needs, preferences, and perspectives to inform the design and implementation of an in-home respite service.
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1508 articles were retrieved and screened using pre-established inclusion criteria; 21 empirical articles were retained.
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This protocol will outline the scoping review of current literature on caregiver-involved reminiscence for persons with dementia.
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The research findings revealed that 26.2% of the sample experienced psychological distress.
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The DEDICATED approach was implemented across 28 wards in three healthcare organizations.
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How should I approach advance care planning (ACP) and goals of care (GOC) discussions with patients living with dementia?
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IFAD activities led to substantial progress in dementia care services, with memory clinics, residential care facilities and daycare centres mapped, revealing regional disparities in service provision.
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Twenty-eight caregivers completed the intervention, which increased caregiver mastery and decreased stress and burden.
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Informal caregivers of patients with neurodegenerative diseases are confronted with significant psychological distress.
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Various negative and positive aspects, along with specific needs, were identified.
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The intervention group showed less discomfort (-1.06; 95% confidence interval [CI] = -1.88 to -0.23) and fewer sentinel events (-0.40; 95% CI = -0.64 to -0.16), specifically pneumonia (-0.08; 95% CI = -0.14, -0.02).
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Emerging themes include (1) receptive to ACP, (2) mixed emotions, (3) barriers to ACP, (4) family consensus in decision-making, and (5) benefits of ACP.
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Palliative care is essential for patients with serious illness, including those with dementia.
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32/100
Caregiving interventions can reduce caregiver burden and promote caregiver competence, yet caregiving is rooted in culture, with differing impacts of the caregiving role.
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Of the 127 participants, one-third died during their stay.
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These findings highlight the importance of tailoring interventions to caregiver characteristics and outcome type.
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Thirty-one articles were included. This conceptual analysis revealed the evolution of in-home respite care service content over time and summarized three key attributes.
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This study constitutes both a scoping review and a concept analysis, as it systematically examines digital literacy across settings (home, assisted living facilities, and other long-term care facilities) in the context of persons with dementia and their caregivers.
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A preliminary search yielded 4772 studies, of which 12 (0.25%) met the criteria.
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Most people with dementia (PwD) live with the support of their caregiver.
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Personal support workers (PSWs) in long-term care (LTC) homes provide the most care to people living with dementia, yet receive the least education compared to other healthcare professionals.
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We identified three main themes of palliative hope in late-stage dementia: 1) Life is good and there is still time, 2) Agency and identity are not lost, and 3) Death will be good and professional support is available.
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The carers aged 56.2 (SD = 12.2); about two-thirds being female and adult-child caregivers.
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Number of patients on the unit with an ACP increased between May 2024 and January 2025, from a low of 0% on 03/06/24 to a high of 53% on 12/12/24.
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The training significantly improved caregivers' dementia knowledge and self-efficacy but did not reduce caregivers' distress and depression, nor decrease care recipients' emergency room visits and hospitalizations.
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The caregiver burden was found at a moderate to severe level with the average score of 58.14(12.84).
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A total of 31 studies were selected for this review, revealing six distinct categories of social support interventions for caregivers of older adults with dementia.
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Four themes were identified, along with eleven sub-themes associated with them: cognitive-behavioral shift (transitioning family roles, recognizing disease characteristics, focusing on health management, and responding positively and effectively); personal strength enhancement (enhancing coping capacity, increased psychological resilience and increased responsibility); improved relationships with others (harmonizing in family relations and benefiting from social interactions); and changes in life perceptions (reshaping of values, and reconstructing the meaning of life).
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Current annual replacement cost of unpaid family care is between $96 and $182 billion, 44% of which is accounted for by dementia caregiving.
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Data point to cultural, socioeconomic and systemic barriers to accessing quality EOL care for PLWD.
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The findings revealed three core areas: (a) types of digital tools used, including online platforms, video conferencing, mobile applications and SMS services; (b) educational domains addressed, such as knowledge and skills, psychological support, communication and social interaction, and environmental and technological adaptation; and (c) implementation strategies and outcomes, highlighting personalisation, cultural sensitivity and technological adaptability, which improved knowledge, emotional well-being and carer self-efficacy.
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We synthesized caregivers' multiple challenges under five themes - (1) lack of information and awareness limit perceived need for services, (2) cultural norms and values influence decision to seek services, (3) complex processes and long waiting times hinder ability to reach services, (4) financial constraints and high costs force alternate care arrangements, and (5) inability to meet expectations and lack of family support limit engagement with services.
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Primary care is the ideal setting for early detection of mild cognitive impairment (MCI) and Alzheimer's disease and related dementias (ADRD), as it serves as the primary point of care for most older adults.
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The logic model and summary results explain in detail how this dementia palliative care service undertook activities relating to person-centred care, carer support, end-of-life care, accessible care, timely care, and integrated care.
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The proposed protocol for the CAREFIT programme represents an innovative and multidisciplinary initiative that leverages a digital platform to promote the well-being of informal caregivers of people with dementia.
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• Caregiver training helps dementia caregivers understand the disease and learn about caregiving skills. • Overall, about one in twelve informal dementia caregivers had taken any caregiving training. • Factors associated with the receipt of training included caregivers’ race, relationship, working status, and payer status, and care recipients’ level of assistance.
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We describe the complex care needs faced by families in dementia care and specialized multidisciplinary palliative care delivered through home visits as a feasible way to support advancing stages of dementia.
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We aimed to conduct a cost-utility analysis of DREAMS START compared with treatment as usual (TAU).
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Caregivers in the control conditions reported significantly worsening sleep efficiency whereas in comparison, those in the active conditions reported improving sleep efficiency.
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Caregiving for persons living with dementia has long been conceived as a series of tasks that sustain the body.
From across this tag
9 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.
- Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers
- Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia
- Scales for evaluation of End-of-Life Care in Dementia
- Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
- A population-based assessment of the impact and burden of caregiving for long-term stroke survivors
- Vital conversations with family in the nursing home: preparation for end-stage dementia care
- Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development
- White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care
- Patients dying with dementia: experience at the end of life and impact of hospice care