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Formal caregivers’ knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home
Yadan Ouyang, Chunyu Cheng, Qing Yuan Sun, Linbing Chen, Liping Wang. BMC Nursing, 2025-07-01
Topic: Risk, prevention and care in population studies
Plain-language summary
Various negative and positive aspects, along with specific needs, were identified. Four key themes emerged from the interview analysis: (a) Comprehensive knowledge and attitudes of formal caregivers towards end-of-life care for dementia, (b) perceived occupational challenges, (c) motivational factors facilitating care delivery, and (d) specific needs related to caregiving. Formal carers of individuals with advanced dementia experience multiple pressures and challenges in their caregiving roles. Amid these difficulties, they develop self-coping strategies aligned with their role perceptions. Providing adequate care and support at all levels of the elderly end-of-life care system can alleviate caregiver stress and significantly enhance the overall quality of end of life care. CLINICAL TRIAL NUMBER: Not applicable.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Ouyang, Y., Cheng, C., Sun, Q. Y., Chen, L., & Wang, L. (2025). Formal caregivers’ knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home. BMC Nursing. https://doi.org/10.1186/s12912-025-03424-y
Vancouver
Ouyang Y, Cheng C, Sun QY, Chen L, Wang L. Formal caregivers’ knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home. BMC Nursing. 2025. doi:10.1186/s12912-025-03424-y. PMID: 40598442.
BibTeX
@article{ouyang2025-40598442,
author = {Ouyang, Yadan and Cheng, Chunyu and Sun, Qing Yuan and Chen, Linbing and Wang, Liping},
title = {{Formal caregivers’ knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home}},
journal = {BMC Nursing},
year = {2025},
doi = {10.1186/s12912-025-03424-y},
pmid = {40598442},
url = {https://doi.org/10.1186/s12912-025-03424-y}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Various negative and positive aspects, along with specific needs, were identified.
- Four key themes emerged from the interview analysis: (a) Comprehensive knowledge and attitudes of formal caregivers towards end-of-life care for dementia, (b) perceived occupational challenges, (c) motivational factors facilitating care delivery, and (d) specific needs related to caregiving.
- Formal carers of individuals with advanced dementia experience multiple pressures and challenges in their caregiving roles.
- Amid these difficulties, they develop self-coping strategies aligned with their role perceptions.
- Providing adequate care and support at all levels of the elderly end-of-life care system can alleviate caregiver stress and significantly enhance the overall quality of end of life care.
Why it matters
Interviews with formal caregivers in Chinese nursing homes found they face multiple pressures and challenges in end-of-life care for people with advanced dementia. It does not test any treatment, cure or prevention.
Study details
- Evidence strengthLow
How this study scored 33/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (BMC Nursing) |
| Journal's citation record | 1 / 4 | BMC Nursing: journal h-index 100 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 2 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 2 / 6 | Cited 1.7× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 2 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Liping Wang: h-index 69 (OpenAlex, whole career) |
| Institution's track record | 0 / 3 | Guangdong Medical College: institution h-index 266 (OpenAlex) |
| Multicenter collaboration | 0 / 3 | OpenAlex lists 1 institution(s) in 1 country — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40598442) |
| Free to read | 2 / 2 | Free to read |
| Total | 33 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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