Home › Research › Caregiving
Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers
Caroline Grogan, Sarah Harriman, Elizabeth Anne Martin, Rebecca Waite, Olivia J. Fisher. Frontiers in Health Services, 2025-07-08
Topic: Risk, prevention and care in population studies
This exploratory, interpretivist, pre-implementation qualitative study used semi-structured interviews with 15 participants—four people living with dementia and 11 carers—to identify their needs, preferences, and perspectives to inform the design and implementation of an in-home respite service. The study found that carers are exhausted and want a say in the development and delivery of services. Additionally, it found that people living with dementia and carers need safety, trust in respite staff and in the organisation, consistency, additional supports, and clear, transparent communication.
Key findings
- Purpose: To identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design and implementation of an in-home respite service.
- Design/Methodology: Exploratory, interpretivist, pre- implementation qualitative study using Consolidated Framework for Implementation Research.
- Participants: People living with dementia and carers.
- Data collection: Multi-person and individual semi-structured interviews.
- Findings: 15 participants: Four people living with dementia, 11 carers.
Why it matters
This exploratory qualitative study with 15 participants aimed to identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design of an in-home respite service. It is preliminary and reports no findings on treating, curing or preventing Alzheimer's disease.
New to this subject? Start with our plain-English guide: Caregiving →
Study details
- Participants15
- Evidence strengthLow
How this study scored 38/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Frontiers in Health Services) |
| Journal's citation record | 0 / 4 | Frontiers in Health Services: journal h-index 27 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 15 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 2 / 6 | Cited 1.9× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 0 / 4 | Last-listed author Olivia J. Fisher: h-index 4 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | The University of Queensland: institution h-index 1,516 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40697616) |
| Free to read | 2 / 2 | Free to read |
| Total | 38 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.3389/frhs.2025.1550729
- PubMed: 40697616
- Original source →
- Free full text: Frontiers in Health Services →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
APA 7th
Grogan, C., Harriman, S., Martin, E. A., Waite, R., & Fisher, O. J. (2025). Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers. Frontiers in Health Services. https://doi.org/10.3389/frhs.2025.1550729
Vancouver
Grogan C, Harriman S, Martin EA, Waite R, Fisher OJ. Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers. Frontiers in Health Services. 2025. doi:10.3389/frhs.2025.1550729. PMID: 40697616.
BibTeX
@article{grogan2025-40697616,
author = {Grogan, Caroline and Harriman, Sarah and Martin, Elizabeth Anne and Waite, Rebecca and Fisher, Olivia J.},
title = {{Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers}},
journal = {Frontiers in Health Services},
year = {2025},
doi = {10.3389/frhs.2025.1550729},
pmid = {40697616},
url = {https://doi.org/10.3389/frhs.2025.1550729}
}