Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

This page is alzhub.org's plain-English summary of a published study, not the paper itself. It is generated from the record we hold for this study, sourced and linked below — check the original for the full text and methods.

✓ Peer-reviewed alzhub usefulness score 38 out of 100. Caregiving

Topic: Risk, prevention and care in population studies

This exploratory, interpretivist, pre-implementation qualitative study used semi-structured interviews with 15 participants—four people living with dementia and 11 carers—to identify their needs, preferences, and perspectives to inform the design and implementation of an in-home respite service. The study found that carers are exhausted and want a say in the development and delivery of services. Additionally, it found that people living with dementia and carers need safety, trust in respite staff and in the organisation, consistency, additional supports, and clear, transparent communication.

Key findings

Why it matters

This exploratory qualitative study with 15 participants aimed to identify the needs, preferences, and perspectives of people living with dementia and their carers to inform design of an in-home respite service. It is preliminary and reports no findings on treating, curing or preventing Alzheimer's disease.

Study details

How this study scored 38/100
How this study's score is builtJournal tier 7 of 10; Journal's citation record 0 of 4; Study design 0 of 12; Strength of evidence 1 of 5; Peer-review validation 10 of 10; How recent 4 of 5; Sample size 1 of 4; Effect reported 0 of 3; Studied in people 3 of 3; Randomised / blinded 0 of 2; Times cited 1 of 7; Citations per year 1 of 5; Impact for its field and year 2 of 6; Cited by studies here 0 of 6; Still being cited 1 of 4; Senior author's track record 0 of 4; Institution's track record 2 of 3; Multi-centre collaboration 1 of 3; Indexed in PubMed 2 of 2; Free to read 2 of 2. Total 38 of 100.38 of 100 points earned62 not earned

Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it.

ComponentPointsWhy
Journal tier 7 / 10 Tier 3 — peer-reviewed journal (Frontiers in Health Services)
Journal's citation record 0 / 4 Frontiers in Health Services: journal h-index 27 (OpenAlex, 2026-10-29)
Study design 0 / 12 No study design recorded — scores zero, not guessed (not stated in the record — scored 0)
Strength of evidence 1 / 5 Rated “low” in our summary
Peer-review validation 10 / 10 Peer-reviewed. Published as an article in a named peer-reviewed journal.
How recent 4 / 5 2025 — within 3 year(s) of the newest study here
Sample size 1 / 4 15 participants
Effect reported 0 / 3 No effect size reported — scores zero (not stated in the record — scored 0)
Studied in people 3 / 3 Studied in people (participant count stated)
Randomised / blinded 0 / 2 No randomisation or blinding stated — scores zero (not stated in the record — scored 0)
Times cited 1 / 7 Cited 3 times (OpenAlex, 2026-10-10)
Citations per year 1 / 5 1.0 citations a year over 3 year(s) since 2025
Impact for its field and year 2 / 6 Cited 1.9× the average for papers of its field and year (OpenAlex FWCI)
Cited by studies here 0 / 6 No other study in this library cites it
Still being cited 1 / 4 Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex)
Senior author's track record 0 / 4 Last-listed author Olivia J. Fisher: h-index 4 (OpenAlex, whole career)
Institution's track record 2 / 3 The University of Queensland: institution h-index 1,516 (OpenAlex)
Multi-centre collaboration 1 / 3 OpenAlex lists 3 institution(s) in 1 country
Indexed in PubMed 2 / 2 Indexed in PubMed (PMID 40697616)
Free to read 2 / 2 Free to read
Total 38 / 100 —

What each of these 20 components measures, and what this score is not →

Read the original

Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).

Cite this study APA, Vancouver, BibTeX · download .bib or .ris

Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.

APA 7th

Grogan, C., Harriman, S., Martin, E. A., Waite, R., & Fisher, O. J. (2025). Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers. Frontiers in Health Services. https://doi.org/10.3389/frhs.2025.1550729

Vancouver

Grogan C, Harriman S, Martin EA, Waite R, Fisher OJ. Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers. Frontiers in Health Services. 2025. doi:10.3389/frhs.2025.1550729. PMID: 40697616.

BibTeX

@article{grogan2025-40697616,
  author  = {Grogan, Caroline and Harriman, Sarah and Martin, Elizabeth Anne and Waite, Rebecca and Fisher, Olivia J.},
  title   = {{Trust, consistency and transparency: in-home respite needs and preferences of people living with dementia and their carers}},
  journal = {Frontiers in Health Services},
  year    = {2025},
  doi     = {10.3389/frhs.2025.1550729},
  pmid    = {40697616},
  url     = {https://doi.org/10.3389/frhs.2025.1550729}
}

Related studies in Caregiving

Similar studies

More on Caregiving

See all studies in Caregiving →