- 1,644studies in the library match, of 29,380
- 725name it in the title
- 1980–2026years published
- 1,599peer-reviewed articles
The query: title or abstract mentions "caregiver" / "caregivers" / "carer", "caregiving", "family/informal caregiver" or "respite", matched case-insensitively against each record's title and abstract (its summary field) in alzhub's library of 29,380 study records, as of 2026-11-08. Every count on this page comes from that match. The matched list as JSON.
Caregiver support covers education and skills training, counselling, support groups, respite (someone else providing care for a time), case management and technology-based programmes. Studies measure their effect on caregiver burden, depression, stress and health, and sometimes on how long the person with dementia can stay at home.
The library also holds studies that measure the load itself: hours of care, financial cost and the health of caregivers compared with people of the same age who are not caregivers.
This page describes what published research in alzhub's library reports. It is not medical advice and does not apply to any one person: a doctor who knows the person's history is the only one who can say what a result or a treatment means for them.
What the studies report, in their own words
Whole sentences copied from the abstract or key findings of the highest-scoring matched studies, chosen because they mention the subject and give a figure. 8 of the 1,644 matched records are quoted; each links to its study page and from there to the paper.
“Linear mixed effect models were fit to data from 149 (81%) participants, 73 in the memantine group and 76 in the placebo group, after 11 people (eight in the memantine group and three in the placebo group) discontinued due to COVID-19 restrictions, illness of their caregiver, adverse events, or low compliance.”
“The average caregiver age was 67.17 years (SD = 9.8), 85% were women, and 70% were spousal caregivers.”
“The majority (86.29%) of this care expense was indirect cost attributed to estimated lost potential earning of unpaid family caregivers whereas direct medical cost accounted for only 13.48%.”
“Mean caregiver-reported app usability at 6 months was 72.5 (IQR 70.0-90.0) on the System Usability Scale-considered "Good to Excellent"-and user acceptance was reasonable as indicated by 85%-90% of caregivers reporting they would intend to use the app to some degree in the next 6 months, if able.”
“Only the secondary outcome of caregiver self-efficacy was significantly higher for both treatments vs usual care but not between treatments: LSMs were 15.1 for health system, 15.2 for community-based, and 14.4 for usual care.”
“More family carers were satisfied with care (overall 91% v 83%, 2% to 15%; P=0.004), and severe dissatisfaction was reduced (5% v 10%, -10% to 0%; P=0.05).”
“Assessments were done for 132 (80%) of 164 patients in the CAREFuL group and 109 (92%) of 118 in the control group by nurses, and 48 (29%) in the CAREFuL group and 23 (19%) in the control group by family carers.”
“Significant differences in favor of 160 mg/d of tacrine vs placebo were observed on the CIBI (P < or = .002) and ADAS-Cog and FCCA (P < or = .001), as well as caregiver-global and quality-of-life assessments (P < or = .05).”
What kind of evidence it is
By study design
| Design (as recorded) | Studies |
|---|---|
| Systematic review or meta-analysis | 123 |
| Randomised controlled trial | 115 |
| Other clinical trial | 24 |
| Cohort or longitudinal study | 89 |
| Case-control study | 4 |
| Cross-sectional study | 114 |
| Other recorded design | 22 |
| No design recorded | 1,153 |
The design is the one named in alzhub's record for the study; a record with none is counted as "no design recorded".
By year
| Year | Studies | Share |
|---|---|---|
| 2026 | 119 | |
| 2025 | 340 | |
| 2024 | 63 | |
| 2023 | 55 | |
| 2022 | 55 | |
| 2021 | 71 | |
| 2020 | 63 | |
| 2019 | 72 | |
| 2018 | 60 | |
| 2017 | 67 | |
| 2016 and earlier | 679 |
Other counts within the matched set
| Peer-reviewed articles | 1,599 |
| Marked open access in the record | 591 |
| Rated "high" evidence strength in alzhub's summary | 374 |
| Rated "moderate" evidence strength in alzhub's summary | 139 |
| Rated "low" evidence strength in alzhub's summary | 1,115 |
| No evidence-strength rating | 16 |
| Records stating a participant count | 563 |
| Median participants (those records) | 149 |
| Largest participant count | 905,874 |
Within the 1,644 matched studies
| Studies… | Count | Rule |
|---|---|---|
| …that are randomised trials of a caregiver intervention | 280 | the abstract also contains "randomised" or "randomized" |
| …that mention respite or adult day care | 57 | the abstract also contains "respite" or "adult day" |
| …that mention caregiver depression | 320 | the abstract also contains "depression" or "depressive" |
| …that mention cost or hours of care | 214 | the abstract also contains "cost" or "hours" |
The 10 highest-scoring matched studies
Title matches first, then by alzhub's usefulness score, which rates a study's design, journal, evidence and recency, not whether its result is good news.
- Comprehensive Older Adult and Caregiver Help (COACH): A person-centered caregiver intervention prevents elder mistreatment
- A mindfulness-based multicomponent caregiver intervention (PAACC): objectives, study design, and cohort description
- Technology caregiver intervention for Alzheimer's disease (I-CARE): Feasibility and preliminary efficacy of Brain CareNotes
- Health System, Community-Based, or Usual Dementia Care for Persons With Dementia and Caregivers: The D-CARE Randomized Clinical Trial
- Caring for Dementia Caregivers: Psychosocial Factors Related to Engagement in Self-Care Activities
- An Individual Cognitive Stimulation Therapy App for People with Dementia and Carers: Results from a Feasibility Randomized Controlled Trial (RCT)
- Caregiver burden: a clinical review
- Patient and caregiver characteristics associated with caregiver burden in Parkinson's disease: a palliative care approach
- FindMyApps compared with usual tablet use to promote social health of community-dwelling people with mild dementia and their informal caregivers: a randomised controlled trial
- Palliative Care Program for Community-Dwelling Individuals With Dementia and Caregivers: The IN-PEACE Randomized Clinical Trial
Systematic reviews and meta-analyses in the set
123 of the matched records are recorded as a systematic review, meta-analysis or umbrella review; the highest-scoring not already listed above:
- Risk factors for mortality in elderly patients with hip fractures: a meta-analysis of 18 studies
- Adoption of Telemedicine for Dementia Care in Nigeria: Scoping Review
- Dementia Incidence, Burden and Cost of Care: A Filipino Community-Based Study
- Prevalence, incidence, and factors associated with pre-stroke and post-stroke dementia: a systematic review and meta-analysis
- Palliative care interventions in advanced dementia
Newest matched studies
- Elder Caregiving in Southeast Asia: A Systematic Review of Cultural Norms, Care Burdens, Carer Support and Policy Gaps
- Neuroscience-Informed Psychoeducation for Dementia: From Network Degeneration to Compassionate and Skilled Care
- Beyond “Denial”: Understanding and Responding to Help-Refusal in Dementia
- “The conversation wouldn’t happen without us”: How interpreter involvement affects dementia service delivery for CALD clients in Australia
- The Effect of Noncontingent Monetary Incentives in Recruitment Letters on Research Enrollment of Alzheimer’s Disease and Related Dementia Caregiving Dyads: A Study Within a Trial (SWAT) Randomized Controlled Trial
Journals with the most matched studies
| Journal | Studies |
|---|---|
| The Gerontologist | 71 |
| Journal of the American Geriatrics Society | 63 |
| International journal of geriatric psychiatry | 44 |
| Alzheimer s & Dementia | 42 |
| International psychogeriatrics | 34 |
Questions
- What counts as caregiver support in these studies?
- Programmes aimed at the family member rather than the patient: education about dementia, skills for handling behaviour, counselling or support groups, respite or adult day care, case management, and phone or online versions of the same. Each study below names what it tested.
- Where can a caregiver get help today?
- alzhub's helplines page lists the staffed phone and chat lines with their hours, and the resources page lists organisations. Those pages, not this one, are the place to start.
- How many studies on caregiver support does alzhub hold?
- 1,644 of the 29,380 study records in alzhub's library match the query "title or abstract mentions "caregiver" / "caregivers" / "carer", "caregiving", "family/informal caregiver" or "respite""; 725 of them name it in the title. Counted from the records when this page was built.
- What kinds of study are they?
- 123 systematic review or meta-analysis, 115 randomised controlled trials, 24 other clinical trials, 89 cohort or longitudinal studys, 4 case-control studys, 114 cross-sectional studys; 1,153 record no design.
- What is the most recent study in the set?
- "Elder Caregiving in Southeast Asia: A Systematic Review of Cultural Norms, Care Burdens, Carer Support and Policy Gaps" (Research Square, 2026), the newest by publication date among the matched records.
- Which journals publish most on it?
- The Gerontologist (71); Journal of the American Geriatrics Society (63); International journal of geriatric psychiatry (44), counted across the matched records.
Read on
- What helps caregivers: the evidenceTrials of caregiver support, with their results.
- Caregiver health and respiteBurnout, respite care, and keeping one part of your life.
- Respite care: does it help?A sourced answer page.
- HelplinesSomeone to talk to now, with hours staffed.
- Organizations and hotlinesPractical help by organisation.