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Pain Assessment and Management in Dementia Care: Qualitative Perspectives of People With Dementia, Their Families, and Healthcare Professionals
Lihui Pu, Matthew Barton, Madushika Wishvanie Kodagoda Gamage, Mari Okada, Michael Todorovic, Wendy Moyle. Journal of Clinical Nursing, 2025-04-08
Topic: Risk, prevention and care in population studies
Plain-language summary
Four main themes and 10 subthemes were identified. Main themes were (1) communications to identify pain in people with dementia, (2) pain assessment in people with dementia, (3) pain management strategies, and (4) training in pain and dementia care. Healthcare professionals and family carers reported challenges in pain identification. People with dementia also mentioned their pain being unrecognised by carers. Facilitators included familiarity and communication with people with dementia and family carers. Non-verbal cues and unusual behaviours were commonly used to identify pain, and a personalised pain assessment approach was highlighted. Non-pharmacological strategies were used as the first-line therapy to manage pain. However, a lack of knowledge and training in pain and dementia care indicated the need for a training program (e.g., a self-paced online short course). Pain assessment and management in people with dementia is challenging, primarily due to communication barriers and a lack of skill training. Formal pain assessment and management training and efficient, easy-to-use pain assessment tools are needed to address this. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: Limited communication capacity in people with dementia and lack of training in carers are key challenges regarding pain assessment and management in people with dementia. Improved training in communication, pain assessment, and management skills may help to address these challenges. IMPACT: This study addressed a lack of knowledge and skills for healthcare professionals and family carers in effective pain assessment and management in people with dementia. Collaborative communication among different stakeholders and skills training may overcome the challenges and barriers. REPORTING
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Pu, L., Barton, M., Gamage, M. W. K., Okada, M., Todorovic, M., & Moyle, W. (2025). Pain Assessment and Management in Dementia Care: Qualitative Perspectives of People With Dementia, Their Families, and Healthcare Professionals. Journal of Clinical Nursing. https://doi.org/10.1111/jocn.17771
Vancouver
Pu L, Barton M, Gamage MWK, Okada M, Todorovic M, Moyle W. Pain Assessment and Management in Dementia Care: Qualitative Perspectives of People With Dementia, Their Families, and Healthcare Professionals. Journal of Clinical Nursing. 2025. doi:10.1111/jocn.17771. PMID: 40200556.
BibTeX
@article{pu2025-40200556,
author = {Pu, Lihui and Barton, Matthew and Gamage, Madushika Wishvanie Kodagoda and Okada, Mari and Todorovic, Michael and Moyle, Wendy},
title = {{Pain Assessment and Management in Dementia Care: Qualitative Perspectives of People With Dementia, Their Families, and Healthcare Professionals}},
journal = {Journal of Clinical Nursing},
year = {2025},
doi = {10.1111/jocn.17771},
pmid = {40200556},
url = {https://doi.org/10.1111/jocn.17771}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Four main themes and 10 subthemes were identified.
- Main themes were (1) communications to identify pain in people with dementia, (2) pain assessment in people with dementia, (3) pain management strategies, and (4) training in pain and dementia care.
- Healthcare professionals and family carers reported challenges in pain identification.
- People with dementia also mentioned their pain being unrecognised by carers.
- Facilitators included familiarity and communication with people with dementia and family carers.
Why it matters
In interviews with people with dementia, their families, and healthcare professionals, pain was often not recognized because of communication barriers and a lack of training in carers. The authors call for formal training and easy-to-use pain assessment tools.
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Study details
- Evidence strengthLow
How this study scored 43/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Clinical Nursing) |
| Journal's citation record | 2 / 4 | Journal of Clinical Nursing: journal h-index 174 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 10 times (OpenAlex, 2026-10-10) |
| Citations per year | 2 / 5 | 3.3 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 4 / 6 | Cited 11.4× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 10 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Wendy Moyle: h-index 62 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | Erasmus MC: institution h-index 1,321 (OpenAlex) |
| Multicenter collaboration | 2 / 3 | OpenAlex lists 4 institution(s) in 3 countries |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40200556) |
| Free to read | 2 / 2 | Free to read |
| Total | 43 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1111/jocn.17771
- PubMed: 40200556
- Original source →
- Free full text: Journal of Clinical Nursing →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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