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Advocacy and Palliative Care as a Framework for Dignified Dementia Care in African Settings
Zipporah Vunoro Ali. Alzheimer s & Dementia, 2025-12-01
Topic: Risk, prevention and care in population studies
Palliative care offers specialized care /support to persons with advanced disease, including Older Persons living with dementia related problems. The focus of care is on comfort, dignity and improving the quality of life through an approach that aims to prevent and relieve distressful symptoms and ill being through early planning, identifying and providing practical, emotional, psychological and spiritual care to both the patient and their family, carers and other loved ones. Additionally, palliative care guarantees the older person's dignity and respect for their final choices, aids in advanced care planning, and should be included into dementia care by beginning early to ensure the older person's participation in decision-making. Currently, most of the palliative care in Africa focuses on patients with oncological problems. Unfortunately, there are no frameworks, policies or guidelines on providing palliative care for older persons with Dementia and neurodegenerative conditions. The main barriers to accessing palliative care for older patients with neurodegenerative conditions include lack of awareness among policy-makers, health professionals on the benefits of palliative care. Other barriers are cultural and social around death and dying & misconceptions including that palliative care is only for dying patients, or only for cancer patients. To improve the quality of life for older patients (their families/carers) affected with neurodegenerative conditions there is an urgent need for advocacy at all levels of care to incorporate palliative care, including end-of-life care. Even though the person we knew and loved is no longer with us, the person we currently know and love is still important and deserving of a respectable existence. Therefore, we must advocate for quality palliative and End of Life services, policies and guidelines/frameworks that ensure our vulnerable elder populations are not left behind. Patients and family members/caregivers who have lived the experience should be included in advocacy efforts. It is also essential to engage the community. This session will discuss how we may collaborate with stakeholders to ensure access to high-quality palliative care for older persons with neurodegenerative conditions.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Ali, Z. V. (2025). Advocacy and Palliative Care as a Framework for Dignified Dementia Care in African Settings. Alzheimer s & Dementia. https://doi.org/10.1002/alz70860_102718
Vancouver
Ali ZV. Advocacy and Palliative Care as a Framework for Dignified Dementia Care in African Settings. Alzheimer s & Dementia. 2025. doi:10.1002/alz70860_102718. PMID: 41435032.
BibTeX
@article{ali2025-41435032,
author = {Ali, Zipporah Vunoro},
title = {{Advocacy and Palliative Care as a Framework for Dignified Dementia Care in African Settings}},
journal = {Alzheimer s \& Dementia},
year = {2025},
doi = {10.1002/alz70860_102718},
pmid = {41435032},
url = {https://doi.org/10.1002/alz70860_102718}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Even though the person we knew and loved is no longer with us, the person we currently know and love is still important and deserving of a respectable existence.
- Therefore, we must advocate for quality palliative and End of Life services, policies and guidelines/frameworks that ensure our vulnerable elder populations are not left behind.
- Patients and family members/caregivers who have lived the experience should be included in advocacy efforts.
- It is also essential to engage the community.
- This session will discuss how we may collaborate with stakeholders to ensure access to high-quality palliative care for older persons with neurodegenerative conditions.
Why it matters
This paper argues that palliative care, which focuses on comfort, dignity, and quality of life, should be integrated into dementia care in African settings, where no frameworks or guidelines currently exist for older persons with dementia. It is an advocacy and framework paper and does not report testing of any treatment, cure, or prevention for Alzheimer's disease.
Study details
- Evidence strengthLow
How this study scored 31/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it. We have no data on institution's track record, so that was left out: it earned 30 of the 97 points we could judge it on, which is 31 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Zipporah Vunoro Ali: h-index 20 (OpenAlex, whole career) |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multicenter collaboration | 0 / 3 | OpenAlex lists 0 institution(s) in 0 countries — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41435032) |
| Free to read | 2 / 2 | Free to read |
| Points | 30 / 97 | Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 30 of the 97 points we could judge it on is 31 out of 100. |
| Total | 31 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1002/alz70860_102718
- PubMed: 41435032
- Original source →
- Free full text: Alzheimer s & Dementia →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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