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43/100

✓ Peer-reviewed alzhub usefulness score 43 out of 100. Clinical safety

Topic: Risk, prevention and care in population studies

Higher general burden was associated with female caregivers (β = −.19, p = .05), higher education (β = .16, p = .03), caring for someone with dementia (β = .36, p = .01), and greater dysphagia-related burden (β = .33, p = .01). Predictors of dysphagia-related burden included working caregivers (β = .15, p = .01), increased dysphagia symptoms (β = .77, p < .01), and caring for individuals with ALS or dementia (vs. PD; β = −.16, p = .02). Dysphagia burden varied by disease severity and diet tolerance ( p < .01). Managing dysphagia independently contributes to caregiver burden, potentially increasing burnout and nonadherence to clinical recommendations. Early, proactive inquiry about dysphagia-related care partner burden and provision of support to minimize burden should be considered early in disease management. Supplemental Material: https://doi.org/10.23641/asha.28843055

Cite this study APA, Vancouver, BibTeX · download .bib or .ris

APA 7th

Gray, L. T., Shune, S., Perry, S. E., Kosty, D. B., & Namasivayam-MacDonald, A. M. (2025). Dysphagia Symptoms Contribute to Greater Care Partner Burden in Neurodegenerative Disease. American Journal of Speech-Language Pathology. https://doi.org/10.1044/2025_ajslp-24-00529

Vancouver

Gray LT, Shune S, Perry SE, Kosty DB, Namasivayam-MacDonald AM. Dysphagia Symptoms Contribute to Greater Care Partner Burden in Neurodegenerative Disease. American Journal of Speech-Language Pathology. 2025. doi:10.1044/2025_ajslp-24-00529. PMID: 40324158.

BibTeX

@article{gray2025-40324158,
  author  = {Gray, Lauren Tabor and Shune, Samantha and Perry, Sarah E. and Kosty, Derek B. and Namasivayam-MacDonald, Ashwini M.},
  title   = {{Dysphagia Symptoms Contribute to Greater Care Partner Burden in Neurodegenerative Disease}},
  journal = {American Journal of Speech-Language Pathology},
  year    = {2025},
  doi     = {10.1044/2025_ajslp-24-00529},
  pmid    = {40324158},
  url     = {https://doi.org/10.1044/2025_ajslp-24-00529}
}

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Key findings

Higher general burden was associated with female caregivers (β = −.19, p = .05), higher education (β = .16, p = .03), caring for someone with dementia (β = .36, p = .01), and greater dysphagia-related burden (β = .33, p = .01).
Predictors of dysphagia-related burden included working caregivers (β = .15, p = .01), increased dysphagia symptoms (β = .77, p < .01), and caring for individuals with ALS or dementia (vs.
Dysphagia burden varied by disease severity and diet tolerance ( p < .01).
Managing dysphagia independently contributes to caregiver burden, potentially increasing burnout and nonadherence to clinical recommendations.
Early, proactive inquiry about dysphagia-related care partner burden and provision of support to minimize burden should be considered early in disease management.

Why it matters

In this study, greater swallowing difficulty was linked to more burden on care partners of people with neurodegenerative disease including dementia. It recommends asking about and supporting this burden early, but reports no treatment or cure for Alzheimer's disease.

Study details

Participants211
Evidence strengthLow

How this study scored 43/100

Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomized / blinded because the record does not state it.

Component	Points	Why
Journal tier	7 / 10	Tier 3 — peer-reviewed journal (American Journal of Speech-Language Pathology)
Journal's citation record	1 / 4	American Journal of Speech-Language Pathology: journal h-index 122 (OpenAlex, 2026-10-29)
Study design	0 / 12	No study design recorded — scores zero, not guessed (not stated in the record — scored 0)
Strength of evidence	1 / 5	Rated “low” in our summary
Peer-review validation	10 / 10	Peer-reviewed. Published as an article in a named peer-reviewed journal.
How recent	4 / 5	2025 — within 3 year(s) of the newest study here
Sample size	2 / 4	211 participants
Effect reported	0 / 3	No effect size reported — scores zero (not stated in the record — scored 0)
Studied in people	3 / 3	Studied in people (participant count stated)
Randomized / blinded	0 / 2	No randomization or blinding stated — scores zero (not stated in the record — scored 0)
Times cited	1 / 7	Cited 4 times (OpenAlex, 2026-10-10)
Citations per year	1 / 5	1.3 citations a year over 3 year(s) since 2025
Impact for its field and year	3 / 6	Cited 5.6× the average for papers of its field and year (OpenAlex FWCI)
Cited by studies here	0 / 6	No other study in this library cites it
Still being cited	1 / 4	Cited 4 times in 2024–2026 (2026 still in progress; OpenAlex)
Senior author's track record	2 / 4	Last-listed author Ashwini M. Namasivayam-MacDonald: h-index 21 (OpenAlex, whole career)
Institution's track record	1 / 3	McMaster University: institution h-index 1,334 (OpenAlex)
Multicenter collaboration	2 / 3	OpenAlex lists 6 institution(s) in 3 countries
Indexed in PubMed	2 / 2	Indexed in PubMed (PMID 40324158)
Free to read	2 / 2	Free to read
Total	43 / 100	—

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