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Co-Developing a Culturally Tailored Dietary Intervention for ADRD Risk Reduction Using a Community-Based Research Approach: The MIND+SOUL Program
Ashley R. Shaw, Jaime Perales‐Puchalt, Rachel Sandoval, Crystal M. Glover, Jannette Berkley‐Patton, Eric D. Vidoni, Jeffrey Murray Burns. Journal of Participatory Research Methods, 2026-02-24
Topic: Risk, prevention and care in population studies
Alzheimer’s disease and related dementias (ADRD) disproportionately impact older Black American adults, with diet-related cardiometabolic conditions contributing to increased risk. Using a community-based research approach, we co-developed the MIND+SOUL intervention to promote culturally tailored dietary modifications that align with traditional food practices and faith-based values. We built early partnerships with trusted community leaders and organizations to build relevance and trust. Focus groups and validated surveys explored dietary behaviors, food security, and barriers to healthy eating. Community partners guided the development of nutrition education, culturally adapted meal planning, and strategies for spiritual engagement. Feedback was continuously incorporated through shared decision-making, regular planning sessions, and co-led activities. This process highlights how a community-based research approach can adequately guide the design of a culturally tailored intervention that incorporates community values and specific needs. Preliminary findings suggest high engagement and improved dietary intake, including increased consumption of brain-healthy foods. Barriers such as affordability and food access emphasize the need for continued community support. MIND+SOUL demonstrates how participatory methods can be used to develop culturally relevant dietary interventions that support ADRD risk reduction in older Black American adults.
Key findings
- Alzheimer’s disease and related dementias (ADRD) disproportionately impact older Black American adults, with diet-related cardiometabolic conditions contributing to increased risk.
Why it matters
The MIND+SOUL program co-developed a culturally tailored dietary intervention with community partners for older Black American adults at risk of Alzheimer's disease and related dementias. Preliminary findings suggest high engagement and improved dietary intake, but this is early work and does not yet show that the program prevents dementia.
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Study details
- Evidence strengthLow
How this study scored 32/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of Participatory Research Methods) |
| Journal's citation record | 0 / 4 | Journal of Participatory Research Methods: journal h-index 17 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 3 / 4 | Last-listed author Jeffrey Murray Burns: h-index 83 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | University of California, Irvine: institution h-index 1,195 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 4 institution(s) in 1 country |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Total | 32 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.35844/001c.141305
- Original source →
- Free full text: Journal of Participatory Research Methods →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Shaw, A. R., Perales‐Puchalt, J., Sandoval, R., Glover, C. M., Berkley‐Patton, J., Vidoni, E. D., et al. (2026). Co-Developing a Culturally Tailored Dietary Intervention for ADRD Risk Reduction Using a Community-Based Research Approach: The MIND+SOUL Program. Journal of Participatory Research Methods. https://doi.org/10.35844/001c.141305
Vancouver
Shaw AR, Perales‐Puchalt J, Sandoval R, Glover CM, Berkley‐Patton J, Vidoni ED, et al. Co-Developing a Culturally Tailored Dietary Intervention for ADRD Risk Reduction Using a Community-Based Research Approach: The MIND+SOUL Program. Journal of Participatory Research Methods. 2026. doi:10.35844/001c.141305.
BibTeX
@article{shaw2026-7f993fc1,
author = {Shaw, Ashley R. and Perales‐Puchalt, Jaime and Sandoval, Rachel and Glover, Crystal M. and Berkley‐Patton, Jannette and Vidoni, Eric D. and Burns, Jeffrey Murray},
title = {{Co-Developing a Culturally Tailored Dietary Intervention for ADRD Risk Reduction Using a Community-Based Research Approach: The MIND+SOUL Program}},
journal = {Journal of Participatory Research Methods},
year = {2026},
doi = {10.35844/001c.141305},
url = {https://doi.org/10.35844/001c.141305}
}
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