alzhub.org
Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Research

31,380 Alzheimer's and dementia studies in plain English, each scored out of 100.

Find studies

Showing 101–125 of 142 studies in End-of-life care · free to read (page 5 of 6) · 31,380 in the whole library · How the 0–100 score works

Download bibliography of these 142 studies, in this order: BibTeX (.bib) · RIS (.ris)

Browse by subject, author or institution

Each number is how many studies that link shows, with your other filters kept.

Other subjects

Authors

Names as each record prints them; the same person can appear under two spellings.

Institutions

From OpenAlex; 16,851 studies have no institution on record and are not counted here.

What “End-of-life care” covers

End-of-life care — Hospice, palliative care and end-of-life decision-making for people living with dementia.

A note on reading research. One study is rarely the final word.

We try to note the size of a study, whether it was in humans or animals, and how early-stage the finding is. If a summary here doesn't make that clear, treat it with extra caution and check the original source.

‘It should be my choice’: voluntary assisted dying needs and preferences of Australians living with dementia

✓ Peer-reviewed alzhub usefulness score 33 out of 100. Ageing and Society 2025-09-24

Voluntary assisted dying (VAD) is an end-of-life care option available to eligible Australians living with a terminal condition, though people living with dementia are typically ineligible to choose VAD as part of their end-of-life care. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

The meaning of “total pain” in the context of living and dying with dementia

✓ Peer-reviewed alzhub usefulness score 33 out of 100. Frontiers in Sociology 2025-04-09

A balanced understanding of dementia’s impact (acknowledging both continuity and loss, alternatives and socially constructed aspects) better reflects the realities of dementia and creates new possibilities for supportive care practices to improve pain management and quality of life. 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Rapidly Progressive Dementia After Platelet-Rich Plasma Therapy: A Case of Sporadic Creutzfeldt-Jakob Disease in the Context of Chronic Ehrlichiosis

✓ Peer-reviewed alzhub usefulness score 33 out of 100. Cureus 2025-08-27

Prion diseases are fatal neurological disorders characterized by the accumulation of abnormal proteins in the central nervous system, leading to rapid neurodegeneration. 1 key finding →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Co-designing a model of palliative care for people with advanced dementia

✓ Peer-reviewed alzhub usefulness score 33 out of 100. International Journal of Integrated Care 2025-04-09

These inputs and activities were shown in the logic model to result in short, medium, and long-term outcomes, including reduced healthcare resource use and increased quality of life for people with dementia at the end of life. 2 key findings →

Participants: 18 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Describing the elements of an effective dementia palliative care service

✓ Peer-reviewed alzhub usefulness score 32 out of 100. BMC Palliative Care 2025-05-22

The logic model and summary results explain in detail how this dementia palliative care service undertook activities relating to person-centred care, carer support, end-of-life care, accessible care, timely care, and integrated care. 3 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Designing and delivering palliative and end of life care research with people living with HIV: reflections from a co-produced study

✓ Peer-reviewed alzhub usefulness score 32 out of 100. Research Involvement and Engagement 2025-09-30

This has meant that fewer people are dying as a direct result of HIV, and the life expectancy for people living with HIV is almost the same as the general population in many countries. 2 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Ambiguities About Discussing End of Life in the Context of Advance Care Planning in Dementia

✓ Peer-reviewed alzhub usefulness score 32 out of 100. Innovation in Aging 2025-12-01

Advance care planning (ACP) in dementia has been defined as a communication process adapted to the person’s capacity, which includes, and is continued with family, in our European Association for Palliative Care Delphi study Delphi study with an expert panel from 33 countries. 2 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Additional file 2 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

✓ Peer-reviewed alzhub usefulness score 32 out of 100. Figshare 2026-02-09

Appendix B. Coding tree of main categories and specific sub categories describing factors influencing readiness for advance care planning among people with dementia, family caregivers, and healthcare professionals. 2 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Additional file 1 of Factors influencing readiness for advance care planning in dementia: a qualitative interview study

✓ Peer-reviewed alzhub usefulness score 32 out of 100. Figshare 2026-02-09

Appendix A. Interview guides on experiences with advance care planning, factors influencing readiness for advance care planning, and the use of conversation aids among people with dementia, family caregivers, and healthcare professionals. 2 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Palliative Care for Community-Dwelling Persons Living With Dementia: A Concept Analysis

✓ Peer-reviewed alzhub usefulness score 32 out of 100. Innovation in Aging 2025-12-01

Antecedents of acute care use and poor prognosis may suggest late utilization of palliative care among PLWD and lack of palliative care needs screening. 1 key finding →

Participants: 16 Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

End-of-life care of people with dementia in Latin America: A qualitative analysis

✓ Peer-reviewed alzhub usefulness score 31 out of 100. Palliative Care and Social Practice 2025-12-01

Although there were differences between and within the countries, end-of-life care was often affected by the socioeconomic contexts, which represent barriers for access to healthcare services; under-tapped informal caregivers' potential; societal norms and cultural expectations around care and informal caregiving; the dementia-trajectory itself; and an inadequate assurance of policies, skilled workforce, and services. 3 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

Assisted Living Staff Perspectives on End-Of-Life Care for Residents Living With Dementia: A Qualitative Study

✓ Peer-reviewed alzhub usefulness score 31 out of 100. American Journal of Hospice and Palliative Medicine® 2026-04-19

BackgroundAlzheimer's disease and related dementia (ADRD) affect nearly half of assisted living (AL) residents, the majority of whom have palliative care (PC) needs at the end of life (EOL). 5 key findings →

Evidence: low

Full summary, score breakdown and related studies → Original source Free full text

The Inaugural Voyage of the South Asian Journal of Geriatric Medicine, Surgery, Palliative Care, and Hospice

✓ Peer-reviewed alzhub usefulness score 31 out of 100. South Asian Journal of Geriatric Medicine Surgery Palliative Care & Hospice 2026-01-01

This Journal is not only a new publication but also the culmination of a shared vision and a timely response to one of the most significant demographic shifts in human history: the rapid aging of the South Asian population. 5 key findings →

Evidence: high

Full summary, score breakdown and related studies → Original source Free full text

↑ Change the filters

Where “Free full text” comes from

Free full text links and the Full text may need a subscription label come from Unpaywall, Europe PMC and OpenAlex records of free copies, checked 10 Oct 2026. A study with neither is unknown, not paywalled.

How the 0–100 score works — and why some entries are capped

This is alzhub's own score. It is not an official metric, not an impact factor, and no journal, publisher or ranking body endorses it. We built it so that a reader who is not a scientist can tell a landmark trial from a conference abstract without having to already know the difference. Every point comes from one of 20 components, all of them printed on the study itself, so you can disagree with our arithmetic rather than having to trust the total.

  • Journal tier up to 10 pts
  • Journal's citation record up to 4 pts
  • Study design up to 12 pts
  • Strength of evidence up to 5 pts
  • Peer-review validation up to 10 pts
  • How recent up to 5 pts
  • Sample size up to 4 pts
  • Effect reported up to 3 pts
  • Studied in people up to 3 pts
  • Randomised / blinded up to 2 pts
  • Times cited up to 7 pts
  • Citations per year up to 5 pts
  • Impact for its field and year up to 6 pts
  • Cited by studies here up to 6 pts
  • Still being cited up to 4 pts
  • Senior author's track record up to 4 pts
  • Institution's track record up to 3 pts
  • Multi-centre collaboration up to 3 pts
  • Indexed in PubMed up to 2 pts
  • Free to read up to 2 pts

Journals are placed in ordered tiers, never given a numeric impact factor — we could not verify current impact factors from a source we control, and an invented one would be worse than none. Tier 1 is the top-tier general journals (NEJM, The Lancet, JAMA, Nature, Science, Nature Medicine); tier 2 is the leading specialty journals; tier 3 is every other peer-reviewed journal. A separate part scores how much the journal's own papers are cited, which tells the tier-3 journals apart.

Two rules we don't bend. First, we never fill in a missing value: if a record does not state a sample size or a design, that component scores zero, and if we simply have no data for a part, such as a citation count, that part is left out and the study is scored on the parts we could check. The study card says which. Second, anything that is not a peer-reviewed article is capped at 16/100 and carries a warning chip — so a conference abstract or a company press release can never outrank a peer-reviewed paper, no matter how good it looks.

We rank a rigorous null result — a good trial showing that something does not work — above an early positive finding. Someone deciding whether to buy a supplement is served by that, and the rigour is already counted by the design and journal components.

The score is computed from the published data alone and is reproducible: the same file always yields the same numbers.

See the whole rubric drawn out → — four charts covering all 31,380 studies: how the scores are spread and where the cap bites, which of the 20 components the library is strong and weak on, which subjects rest on stronger evidence, and what kinds of study each subject is actually built from.

What this library is — and isn't

This is a large sample of the Alzheimer's literature, not an exhaustive index of it. It holds 31,380 records, built mostly from automated pulls of Europe PMC (65.6% of the library) and OpenAlex (16.2%), plus smaller pulls from PubMed, Crossref and medRxiv. If a study, a drug, or a finding isn't here, that is not evidence it doesn't exist in the literature — it may simply not have been pulled in yet.

1,048 records (3.3% of the library) are not peer-reviewed — 973 of those are preprints posted before any journal review, and the rest are conference abstracts, regulatory notices and reports. Every study card on this page states its status plainly, and the score above is capped for anything that isn't a peer-reviewed article.

See the full, machine-readable breakdown of this library's coverage →

Newest studies, as a dated timeline →    Atom feed    Where this research is being discussed: events