Home › Research › End-of-life care
Palliative Care for Community-Dwelling Persons Living With Dementia: A Concept Analysis
Xuefan Ji. Innovation in Aging, 2025-12-01
Topic: Risk, prevention and care in population studies
Abstract Background Palliative care is underutilized by patients with neurological conditions, especially persons living with dementia (PLWD) residing in community settings in the U.S. Palliative care has not been defined for community-dwelling PLWD, and misconceptions that palliative care is only applicable when the patient is dying may have led to underutilization in this population. Aim To clarify and provide a refined definition of the concept of palliative care for community-dwelling PLWD. Method A concept analysis using Rodger’s method was completed. Three databases were searched for literature that described the antecedents, defining attributes, and consequences of palliative care in the context of community-dwelling PLWD. A model case of the concept was identified from the literature. Results A total of 16 studies were included. Palliative care differs from hospice and does not require PLWD to be near end of life. Antecedents included acute care use, poor prognosis, and primary care provider referral. Defining attributes encompassed comprehensive care, care coordination, and serious illness communication. Consequences included more home death, less hospitalization and other burdensome acute care use, and patients and caregivers electing less aggressive care option. Discussion Antecedents of acute care use and poor prognosis may suggest late utilization of palliative care among PLWD and lack of palliative care needs screening. Defining attribute of care coordination suggest primary care providers (PCPs) play a crucial role in coordinating palliative care for PLWD. Future study should investigate the concept of palliative care needs in PLWD and effectiveness of primary care based palliative care models for PLWD
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Ji, X. (2025). Palliative Care for Community-Dwelling Persons Living With Dementia: A Concept Analysis. Innovation in Aging. https://doi.org/10.1093/geroni/igaf122.1698
Vancouver
Ji X. Palliative Care for Community-Dwelling Persons Living With Dementia: A Concept Analysis. Innovation in Aging. 2025. doi:10.1093/geroni/igaf122.1698.
BibTeX
@article{ji2025-1c40afc9,
author = {Ji, Xuefan},
title = {{Palliative Care for Community-Dwelling Persons Living With Dementia: A Concept Analysis}},
journal = {Innovation in Aging},
year = {2025},
doi = {10.1093/geroni/igaf122.1698},
url = {https://doi.org/10.1093/geroni/igaf122.1698}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Results A total of 16 studies were included.
Why it matters
This concept analysis of 16 studies clarifies that palliative care for community-dwelling persons with dementia differs from hospice and does not require being near end of life, and that its consequences include more home deaths and less burdensome acute care use. It addresses care delivery and quality of life, not treating, curing, or preventing Alzheimer's disease.
Study details
- Participants16
- Evidence strengthLow
How this study scored 32/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomized / blinded because the record does not state it. We have no data on senior author's track record, so that was left out: it earned 31 of the 96 points we could judge it on, which is 32 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Innovation in Aging) |
| Journal's citation record | 0 / 4 | Innovation in Aging: journal h-index 48 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 16 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | — / 4 | OpenAlex's profile for last-listed author Xuefan Ji holds only 3 work(s), too few to judge a track record — left out of this score |
| Institution's track record | 2 / 3 | Columbia University: institution h-index 1,824 (OpenAlex) |
| Multicenter collaboration | 0 / 3 | OpenAlex lists 1 institution(s) in 1 country — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Points | 31 / 96 | Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 31 of the 96 points we could judge it on is 32 out of 100. |
| Total | 32 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Related
Studies in the library that share something with this one. The line above each title says what.
Related studies in End-of-life care
Also tagged “nursing”
995 studies in the library carry the topic tag “nursing”; these are this study's neighbours in a fixed, alphabetical-by-hash tour of them, not the closest in content. All 995 tagged studies.