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Co-designing a model of palliative care for people with advanced dementia
Zoi Triandafilidis, Suzanne Pamela Lewis, Nick Goodwin, Mariko Leanne Carey, Andrew Montague, Cate Dingelstad, Nicolette A. Hodyl, Sarah Jeong et al.. International Journal of Integrated Care, 2025-04-09
Topic: Risk, prevention and care in population studies
These inputs and activities were shown in the logic model to result in short, medium, and long-term outcomes, including reduced healthcare resource use and increased quality of life for people with dementia at the end of life. The results of the survey were that 83% were satisfied with the model of care; 89% said there were opportunities for networking and making new connections; and 88% said they ‘always’ felt heard in the workshops. 39% of stakeholders said their awareness of dementia and palliative care services and supports increased.
Key findings
- These inputs and activities were shown in the logic model to result in short, medium, and long-term outcomes, including reduced healthcare resource use and increased quality of life for people with dementia at the end of life.
- The results of the survey were that 83% were satisfied with the model of care; 89% said there were opportunities for networking and making new connections; and 88% said they ‘always’ felt heard in the workshops. 39% of stakeholders said their awareness of dementia and palliative care services and supports increased.
Why it matters
This abstract describes co-designing a model of palliative care for people with advanced dementia, with a logic model linking inputs and activities to outcomes such as reduced healthcare resource use and increased quality of life. In a survey, 83% were satisfied with the model of care and 39% of stakeholders said their awareness of dementia and palliative care services increased.
Study details
- Participants18
- Evidence strengthLow
How this study scored 33/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it. We have no data on senior author's track record, so that was left out: it earned 32 of the 96 points we could judge it on, which is 33 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (International Journal of Integrated Care) |
| Journal's citation record | 1 / 4 | International Journal of Integrated Care: journal h-index 75 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 18 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 0 / 7 | Cited 0 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 0 / 6 | Cited 0.0× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 0 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | — / 4 | OpenAlex's profile for last-listed author Georgie Quick holds only 3 work(s), too few to judge a track record — left out of this score |
| Institution's track record | 1 / 3 | The University of Sydney: institution h-index 1,466 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Points | 32 / 96 | Scored on 19 of 20 parts. We have no data for the rest, so they are left out: 32 of the 96 points we could judge it on is 33 out of 100. |
| Total | 33 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.5334/ijic.icic24203
- Original source →
- Free full text: International Journal of Integrated Care →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
APA 7th
Triandafilidis, Z., Lewis, S. P., Goodwin, N., Carey, M. L., Montague, A., Dingelstad, C., et al. (2025). Co-designing a model of palliative care for people with advanced dementia. International Journal of Integrated Care. https://doi.org/10.5334/ijic.icic24203
Vancouver
Triandafilidis Z, Lewis SP, Goodwin N, Carey ML, Montague A, Dingelstad C, et al. Co-designing a model of palliative care for people with advanced dementia. International Journal of Integrated Care. 2025. doi:10.5334/ijic.icic24203.
BibTeX
@article{triandafilidis2025-b27bfef6,
author = {Triandafilidis, Zoi and Lewis, Suzanne Pamela and Goodwin, Nick and Carey, Mariko Leanne and Montague, Andrew and Dingelstad, Cate and Hodyl, Nicolette A. and Jeong, Sarah and others},
title = {{Co-designing a model of palliative care for people with advanced dementia}},
journal = {International Journal of Integrated Care},
year = {2025},
doi = {10.5334/ijic.icic24203},
url = {https://doi.org/10.5334/ijic.icic24203}
}
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