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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. BMC geriatrics 2014-02-20 Caregiving

    All hypotheses that referred to the construct validity were supported.

  2. Physiological and functional consequences of caregiving for relatives with dementia

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. International psychogeriatrics 2014-02-10 Caregiving

    There is accumulating evidence that chronic dementia caregiver stress increases their vulnerability to disease and diminishes their ability to provide optimal care.

  3. Development and testing of a decision aid on goals of care for advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Journal of the American Medical Directors Association 2014-02-06 End-of-life care

    The decision-support intervention piloted in this study was feasible and relevant for surrogate decision-makers of persons with advanced dementia in NHs, and it improved quality of communication between SDM and NH providers.

  4. The Costs of Dementia From the Societal Perspective: Is Care Provided in the Community Really Cheaper Than Nursing Home Care?

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Medical Directors Association 2014-02 Costs and economics

    This German study challenged the common assumption that keeping a person with dementia at home is always cheaper than nursing home care.

  5. Respite Care for People With Dementia and Their Carers

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Cochrane Database of Systematic Reviews 2014-01-16 Caregiving

    This Cochrane systematic review looked for solid evidence that respite care (temporary relief for caregivers) helps caregivers or people with dementia.

  6. Initiating palliative care consults for advanced dementia patients in the emergency department

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. Journal of palliative medicine 2014-01-04 End-of-life care

    Preexisting physician attitudes, knowledge, and beliefs prevent emergency physicians from addressing PC needs for AD patients.

  7. Factors associated with initiation of advance care planning in dementia: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 65 out of 100. Journal of Alzheimer's disease : JAD 2014-01-01 Disparities

    Professional caregivers may initiate ACP early if strategies carefully consider timing and family and patient receptiveness or reluctance, and are family and patient-centered.

  8. Barriers to the provision of high-quality palliative care for people with dementia in England: a qualitative study of professionals' experiences

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Health & social care in the community 2013-12-27 End-of-life care

    Approaches to palliative care that were originally developed for people with cancer are now being adopted for people with dementia, as a response to many reports of poor-quality care for people with dementia at the end of life.

  9. Managing medications: the role of informal caregivers of older adults and people living with dementia. A review of the literature

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of clinical nursing 2013-12-20 Clinical safety

    Responsibility for managing medications for older adults and/or people living with dementia in the community often falls to informal caregivers.

  10. Preserving Identity and Planning for Advance Care (PIPAC): preliminary outcomes from a patient-centered intervention for individuals with mild dementia

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Aging & mental health 2013-12-20 Disparities

    Emotion-focused, patient-centered interventions like PIPAC hold promise for advancing treatment options in the early and mild stages of dementia.

  11. Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. Journal of the American Geriatrics Society 2013-12-01 Caregiving

    Many community-residing PWD and their caregivers have unmet dementia-related needs for care, services, and support.

  12. Reasons for institutionalization of people with dementia: informal caregiver reports from 8 European countries

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. Journal of the American Medical Directors Association 2013-11-12 Caregiving

    Multiple reasons contribute to the institutionalization for people with dementia, with several factors that may influence why there were country differences.

  13. Quality palliative care for cancer and dementia in five European countries: some common challenges

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Aging & mental health 2013-10-17 End-of-life care

    These are not problems distinct to palliative care, but they may have different origins and explanations compared to other areas of health care.

  14. Do people with dementia die at their preferred location of death? A systematic literature review and narrative synthesis

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Age and ageing 2013-10-14 End-of-life care

    The aim of this study was to undertake a systematic review and narrative synthesis of the literature concerning place of death of people with dementia and the preferences for location of death of people with dementia as well as family carers and healthcare providers preferred location of death for patients with dementia.

  15. Compassion in healthcare - lessons from a qualitative study of the end of life care of people with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of the Royal Society of Medicine 2013-10-09 End-of-life care

    The concepts of compassion, kindness and humanity in dementia care are discussed within the paper.

  16. Special Care Units and Traditional Care in Dementia: Relationship with Behavior, Cognition, Functional Status and Quality of Life - A Review

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Dementia and Geriatric Cognitive Disorders Extra 2013-10-05 Caregiving

    Our literature search resulted in 32 studies published until October 2012.

  17. Optimizing function and physical activity among nursing home residents with dementia: testing the impact of function-focused care

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. The Gerontologist 2013-10-03 Clinical safety

    Purpose of the study The purpose of this study was to test the impact of Function-Focused Care for the Cognitively Impaired Intervention on nursing home residents with dementia and the nursing assistants who care for them.

  18. What is family-centered care for nursing home residents with advanced dementia?

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. American journal of Alzheimer's disease and other dementias 2013-10-01 End-of-life care

    To understand family members' perspectives on person- and family-centered end-of-life care provided to nursing home (NH) residents with advanced dementia, we conducted a qualitative follow-up interview with 16 respondents who had participated in an earlier prospective study, Choices, Attitudes, and Strategies for Care of Advance Dementia at End of Life (CASCADE).

  19. Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International psychogeriatrics 2013-09-20 End-of-life care

    Health and social care professionals can build on people's preferences for informal planning by exploring the assumptions underlying them, providing information about the possible illness trajectory and discussing the options of care available.

  20. Dementia care in eight European countries: developing a mapping system to explore systems

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing 2013-09-11 End-of-life care

    The mapping system appears useful from a nurse manager's standpoint for exploring the dementia care pathway.

  21. A systematic review of Internet-based supportive interventions for caregivers of patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 63 out of 100. International journal of geriatric psychiatry 2013-08-20 Caregiving

    Internet interventions for informal dementia caregivers may improve caregiver well-being.

  22. Improving the end-of-life for people with dementia living in a care home: an intervention study

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International psychogeriatrics 2013-08-07 End-of-life care

    This small non-randomized study is the first end-of-life care in dementia intervention to report an increase in family satisfaction with a reduction in hospital deaths.

  23. Preferences and priorities for ongoing and end-of-life care: a qualitative study of older people with dementia resident in care homes

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of nursing studies 2013-07-16 End-of-life care

    For older people living with a diagnosis of dementia, the experience of living and dying in a care home is inextricably linked.

  24. White paper defining optimal palliative care in older people with dementia: a Delphi study and recommendations from the European Association for Palliative Care

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Palliative medicine 2013-07-04 End-of-life care

    We have provided the first definition of palliative care in dementia based on evidence and consensus, a framework to provide guidance for clinical practice, policy and research.

  25. A videophone psychosocial intervention for dementia caregivers

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2013-07-03 Disparities

    A technology-based format was feasible for delivering a multi-component intervention to minority family dementia caregivers.

  26. Caregiver health: health of caregivers of Alzheimer's and other dementia patients

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. Current psychiatry reports 2013-07-01 Caregiving

    Alzheimer's disease (AD) is the most common type of dementia and is a significant public health problem that will intensify as the population ages.

  27. Advance care planning and physician orders in nursing home residents with dementia: a nationwide retrospective study among professional caregivers and relatives

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of pain and symptom management 2013-06-21 End-of-life care

    Communication regarding care is rarely patient driven and more often professional caregiver or family driven.

  28. Understanding the needs of family caregivers of older adults dying with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Palliative & supportive care 2013-06-18 End-of-life care

    Supporting family caregivers of individuals with dementia throughout the disease trajectory requires consideration of caregivers : (1) physical, emotional, and psychological needs; (2) information and decisional support needs; and (3) instrumental support needs.

  29. Quality of end-of-life care of long-term nursing home residents with and without dementia

    ✓ Peer-reviewed alzhub usefulness score 67 out of 100. Journal of the American Geriatrics Society 2013-06-17 End-of-life care

    NHs appear to provide less-aggressive end-of-life care to decedents with dementia than to those without.

  30. The impact of early dementia diagnosis and intervention on informal caregivers

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Progress in neurobiology 2013-05-17 Caregiving

    In the absence of disease modifying therapies for dementia, the question rises what the benefits are of an early dementia diagnosis for patients and their caregivers.

  31. 'She's usually quicker than the calculator': financial management and decision-making in couples living with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Health & social care in the community 2013-05-03 End-of-life care

    This article explores how married couples managed their finances and made financial decisions when one spouse had dementia, drawing comparisons with the approaches used prior to the illness.

  32. Improving end-of-life care in nursing homes: implementation and evaluation of an intervention to sustain quality of care

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Palliative medicine 2013-04-23 End-of-life care

    A lower level of nursing support managed to sustain and build on the initial outcomes.

  33. Caregivers' understanding of dementia predicts patients' comfort at death: a prospective observational study

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. BMC medicine 2013-04-11 End-of-life care

    Awareness of the terminal nature of dementia may improve patient comfort at the end of life.

  34. Qualitative evaluation of advanced care planning in early dementia (ACP-ED)

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. PloS one 2013-04-10 End-of-life care

    This qualitative evaluation of ACP in early dementia has encouragingly positive results which support the wider application of the intervention in memory services and community mental health teams.

  35. Dying with dementia: symptom burden, quality of care, and place of death

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Deutsches Arzteblatt international 2013-03-22 End-of-life care

    These data indicate the high symptom burden of persons with dementia in Germany at the end of their lives.

  36. Nursing home residents dying with dementia in Flanders, Belgium: a nationwide postmortem study on clinical characteristics and quality of dying

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Medical Directors Association 2013-03-21 End-of-life care

    Regardless of the dementia stage, many nursing home residents develop serious clinical complications and symptoms in the last phase of life, posing major challenges to the provision of optimum end-of-life care.

  37. Pain and hospice care in nursing home residents with dementia and terminal cancer

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Geriatrics & gerontology international 2013-03-19 End-of-life care

    Preliminary results suggest that hospice enrolment might be influenced by the facility or region of this particular country.

  38. The lived experience of family caregivers who provided end-of-life care to persons with advanced dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Palliative & supportive care 2013-03-19 End-of-life care

    Further findings are organized according to the existential life worlds.

  39. Pain relief at the end of life: nurses' experiences regarding end-of-life pain relief in patients with dementia

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Pain management nursing : official journal of the American Society of Pain Management Nurses 2013-02-28 End-of-life care

    Patients with dementia receive suboptimal palliative care, and this patient group is at risk to have pain at the end of life.

  40. Moving in: adjustment of people living with dementia going into a nursing home and their families

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. International psychogeriatrics 2013-02-21 Clinical safety

    Adjustment to admission to residential care can be difficult for people with dementia and their family caregivers.

  41. Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. International journal of palliative nursing 2013-02-01 End-of-life care

    The booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.

  42. Dementia Knowledge Assessment Tool Version Two: development of a tool to inform preparation for care planning and delivery in families and care staff

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Dementia (London, England) 2013-01-16 End-of-life care

    Care for the person with dementia requires understanding of the person's perspective and preferences, integrated with knowledge of dementia's trajectory and appropriate care.

  43. Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: evidence from an integrative review?

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of nursing studies 2012-11-28 End-of-life care

    Case conferencing provides opportunities to improve care palliative care outcomes for older people with dementia by engaging family and all relevant internal and external health providers in prospective care planning.

  44. Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review

    ✓ Peer-reviewed alzhub usefulness score 60 out of 100. Palliative medicine 2012-11-22 End-of-life care

    Although the majority of studies agreed that the Functional Assessment Staging 7c criterion was not a reliable predictor of 6-month mortality, we found a lack of prognosticator concordance across the literature.

  45. A qualitative study: professionals' experiences of advance care planning in dementia and palliative care, 'a good idea in theory but ...'

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. Palliative medicine 2012-11-21 End-of-life care

    This study has identified the professional, organisational and legal factors that influence advance care planning implementation; professional training should target these specific areas.

  46. Translation and cross-cultural adaptation of a family booklet on comfort care in dementia: sensitive topics revised before implementation

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Journal of medical ethics 2012-11-10 End-of-life care

    Providing artificial feeding and fluids and discussing euthanasia may be particularly sensitive topics, and guidance on these subjects needs careful consideration of ethical aspects and possible adaptations to local standards and practice.

  47. Preferences for end-of-life care: a nominal group study of people with dementia and their family carers

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. Palliative medicine 2012-11-05 Caregiving

    Wishes and preferences of people with dementia and their family carers may differ.

  48. Influence of hospice on nursing home residents with advanced dementia who received Medicare-skilled nursing facility care near the end of life

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2012-10-30 End-of-life care

    Residents dying with advanced dementia who received SNF care in the last 90 days of life had fewer aggressive treatments and lower odds of hospital death if they also received hospice care at any point during that time.

  49. Psychosocial factors that shape patient and carer experiences of dementia diagnosis and treatment: a systematic review of qualitative studies

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. PLoS medicine 2012-10-30 Caregiving

    There is an extensive body of qualitative literature on the experiences of community-dwelling individuals with dementia on receiving and adapting to a diagnosis of dementia.

  50. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review

    ✓ Peer-reviewed alzhub usefulness score 36 out of 100. Palliative & supportive care 2012-10-23 End-of-life care

    The number of people with dementia is growing at an alarming rate.

From across this tag

8 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 8. The same 8 appear here every time.

All topic tags with their study counts