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Newest in this topic

  1. Is there a role for artificial intelligence in end-of-life care for persons with dementia? Perspectives of and recommendations by caregivers and hospice staff 2026-09-17
  2. Online Peer Support Use Among Informal Caregivers of People Living With Alzheimer Disease or Related Dementias: National Cross-Sectional Web-Based Survey 2026-09-07
  3. Interconnected Challenges in Dementia Caregiving: A Co-occurrence Network Analysis of Burden, Unmet Needs, and System Failures Among Caregivers 2026-08-17

Studies

1,013 studies carry this tag; 1,012 of them have a date.

Date range

1986 to 2026

Top journals

  • Journal of the American Geriatrics Society 63
  • The Gerontologist 48
  • Alzheimer s & Dementia 28
  • International psychogeriatrics 28
  • Journal of the American Medical Directors Association 26

339 journals in all.

Newest first, then by address. Each study has a usefulness score out of 100 (rubric version 4.0); tap a score to see what makes it up. Tags were assigned automatically from each study's title and summary. The same studies as a filter in the library.

  1. Dementia caregiving across Latin America and the Caribbean and brain health diplomacy

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. The lancet. Healthy longevity 2021-03-31 Digital health tools

    The prevalence of dementia in Latin America and the Caribbean is growing rapidly, increasing the burden placed on caregivers.

  2. Racial disparity in end-of-life hospitalizations among nursing home residents with dementia

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2021-03-22 End-of-life care

    We found disparities between black and white residents with ADRD both within and across facilities.

  3. End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. BMC nursing 2021-03-20 End-of-life care

    This study highlights the need for nursing homes to employ specialist nurses who have been trained in the appropriate knowledge and skills to deal with the challenges of end-of-life care for people with advanced dementia and pain.

  4. Referral criteria to specialist palliative care for patients with dementia: A systematic review

    ✓ Peer-reviewed alzhub usefulness score 74 out of 100. Journal of the American Geriatrics Society 2021-03-02 End-of-life care

    This systematic review highlighted the lack of consensus regarding referral criteria for palliative care in patients with dementia and the need to identify timely triggers to standardize referral.

  5. Dementia Caregiving During the "Stay-at-Home" Phase of COVID-19 Pandemic

    ✓ Peer-reviewed alzhub usefulness score 49 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2021-03-01 Disparities

    Use of the transactional model of stress responses yielded important insights about families coping with dementia.

  6. Survival in hospice patients with dementia: the effect of home hospice and nurse visits

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of the American Geriatrics Society 2021-02-19 End-of-life care

    Nearly 40% of patients with dementia in our study experienced live discharge or a long length of stay.

  7. The Impact of Dementia on Cancer Treatment Decision-Making, Cancer Treatment, and Mortality: A Mixed Studies Review

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. JNCI cancer spectrum 2021-01-27 End-of-life care

    Dementia and cancer occur commonly in older adults.

  8. Facing the digital divide into a dementia clinic during COVID-19 pandemic: caregiver age matters

    ✓ Peer-reviewed alzhub usefulness score 51 out of 100. Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology 2021-01-18 Digital health tools

    The most impacting factors on digital divide in our population are the social support networks and the experience with the technology: the presence of a digital native caregiver.

  9. The perspectives of people with dementia on their future, end of life and on being cared for by others: A qualitative study

    ✓ Peer-reviewed alzhub usefulness score 44 out of 100. Journal of Clinical Nursing 2021-01-15 Health systems and care delivery

    Five overarching themes derived from the interviews were as follows: (a) My life still has value and meaning, (b) I am my own unique individual, (c) I place my trust in other people, (d) The future worries me, and (e) I accept and embrace what life brings.

  10. Caring for residents with dementia during a COVID‐19 outbreak in a long‐term care home

    ✓ Peer-reviewed alzhub usefulness score 35 out of 100. Alzheimer's & Dementia 2021 Health systems and care delivery

    The outbreaks added significant additional stress to the nursing workforce, which has historically experienced high turnover, chronic staffing shortages, and increased burnout in long‐term care settings.

  11. Key Intervention Categories to Provide Person-Centered Dementia Care: A Systematic Review of Person-Centered Interventions

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Journal of Alzheimer's disease : JAD 2021-01-01 Prevention trials

    Our findings provide a current overview of published PC-interventions in dementia, which followed heterogeneous approaches under the PCC-concept.

  12. Psychoeducational Program for the Family Member Caregivers of People with Dementia to Reduce Perceived Burden and Increase Patient's Quality of Life: A Randomized Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. Journal of primary care & community health 2021-01-01 Treatments

    Psychoeducational program is effective in reducing the family caregivers' perceived burden.

  13. The Impact of a Global Pandemic on People Living with Dementia and Their Care Partners: Analysis of 417 Lived Experience Reports

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of Alzheimer's disease : JAD 2021-01-01 End-of-life care

    Looking at the complex effects of a global pandemic through the experiences of people living with dementia and their care partners is vital to inform healthcare priorities to restore their quality of life and health and better prepare for the future.

  14. Engaging persons with dementia in advance care planning: Challenges and opportunities

    ✓ Peer-reviewed alzhub usefulness score 47 out of 100. Dementia (London, England) 2020-12-08 End-of-life care

    This study reports findings from a series of focus groups with persons with dementia and family caregivers intended to explore: (1) perceptions of and experiences with advance care planning (ACP); (2) concerns related to future care including, but not limited to, end-of-life care; and (3) practices that may support positive engagement with ACP.

  15. Enhancing shared and surrogate decision making for people living with dementia: A systematic review of the effectiveness of interventions

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Health expectations : an international journal of public participation in health care and health policy 2020-11-28 End-of-life care

    Decision-making interventions typically consist of multiple components which aim to establish preferences for future health care.

  16. Cognitively Impaired Older Persons' and Caregivers' Perspectives on Dementia-Specific Advance Care Planning

    ✓ Peer-reviewed alzhub usefulness score 40 out of 100. Journal of the American Geriatrics Society 2020-11-20 End-of-life care

    Even among patients with early cognitive impairment seen in specialty clinics and their caregivers, most were unaware of the decisions they could face, and there were many barriers to planning for these decisions.

  17. Importance and objective Conducting advance care planning (ACP) conversations with people with dementia and their relatives contributes to providing care according to their preferences.

  18. How Effective Are Dementia Caregiver Interventions? An Updated Comprehensive Meta-Analysis

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. The Gerontologist 2020-11-01 Caregiving

    Interventions had, on average, a significant, small-to-moderate effect on the improvement of ability/knowledge, subjective well-being, burden, depression, and the caregiver's anxiety as well as symptoms of the care recipient.

  19. The Psychological Impact of COVID-19 Pandemic and Lockdown on Caregivers of People With Dementia

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2020-10-22 Caregiving

    COVID-19 pandemic and the lockdown produced psychological consequences in caregivers of pwD, with an increase of levels of depression.

  20. Advance care planning information intervention for persons with mild dementia and their family caregivers: Impact on end-of-life care decision conflicts

    ✓ Peer-reviewed alzhub usefulness score 48 out of 100. PloS one 2020-10-14 End-of-life care

    Persons with dementia are at high risk for loss of decision-making ability due to increased cognitive decline as the disease progresses.

  21. Impact of dementia on informal care: a systematic review of family caregivers' perceptions

    ✓ Peer-reviewed alzhub usefulness score 68 out of 100. BMJ supportive & palliative care 2020-10-14 Caregiving

    Eighty-one studies with 3347 participants were included in this review.

  22. Shared decision-making in advance care planning for persons with dementia in nursing homes: a cross-sectional study

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. BMC geriatrics 2020-10-02 End-of-life care

    At ward level, professionals and residents rated the average achieved level of shared decision-making 71.53/100 (σ = 16.09) and 81.11/100 (σ = 19.18) respectively.

  23. Benefit-Finding Intervention Delivered Individually to Alzheimer Family Caregivers: Longer-Term Outcomes of a Randomized Double-Blind Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 58 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2020-10-01 Treatments

    Benefit-finding is an efficacious intervention for depressive symptoms in Alzheimer caregivers, with strong effects in the medium-term post-intervention and possible moderate effects in the longer-term post-intervention.

  24. Practical nursing recommendations for palliative care for people with dementia living in long-term care facilities during the COVID-19 pandemic: A rapid scoping review

    ✓ Peer-reviewed alzhub usefulness score 43 out of 100. International journal of nursing studies 2020-09-30 End-of-life care

    We found no papers that informed the 'cultural aspects of care' domain.

  25. Retracted: Internet-Based Supportive Interventions for Family Caregivers of People With Dementia: Systematic Review and Meta-Analysis

    ⚠ Retracted — do not rely on it alzhub usefulness score 16 out of 100. Journal of medical Internet research 2020-09-09 Caregiving

    Future studies are encouraged to adopt personalized internet-based supportive interventions to improve the health of family caregivers and their care recipients.

  26. Cost-effectiveness of the Namaste care family program for nursing home residents with advanced dementia in comparison with usual care: a cluster-randomized controlled trial

    ✓ Peer-reviewed alzhub usefulness score 62 out of 100. BMC health services research 2020-09-04 Treatments

    The Namaste Care Family program is dominant over usual care and, thus, cost-effective, although statistical uncertainty was considerable.

  27. Living with dementia: increased level of caregiver stress in times of COVID-19

    ✓ Peer-reviewed alzhub usefulness score 46 out of 100. International psychogeriatrics 2020-07-30 Caregiving

    COVID-19 pandemic in Argentina has affected the care of older adults with dementia deeply.

  28. Health Care Costs of Alzheimer’s and Related Dementias Within a Medicare Managed Care Provider

    ✓ Peer-reviewed alzhub usefulness score 54 out of 100. Medical Care 2020-07-23 Health systems and care delivery

    Total monthly health care costs for individuals with ADRD are statistically greater (P<0.05) than controls beginning in the third month before diagnosis and remain significantly greater through the eighth month following diagnosis.

  29. Palliative Care in Advanced Dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Frontiers in psychiatry 2020-07-21 End-of-life care

    Dementia syndrome is common and expected to increase significantly among older people and characterized by the loss of cognitive, psychological and physical functions.

  30. The presence of a caregiver is associated with patient outcomes in patients with Parkinson's disease and atypical parkinsonisms

    ✓ Peer-reviewed alzhub usefulness score 61 out of 100. Parkinsonism & related disorders 2020-07-11 Treatments

    These findings have implications for clinical practice and suggest that presence of a caregiver may be an important modifying variable on patient outcomes to examine in future research.

  31. The Effects of Dementia Care Co-Management on Acute Care, Hospice, and Long-Term Care Utilization

    ✓ Peer-reviewed alzhub usefulness score 52 out of 100. Journal of the American Geriatrics Society 2020-06-23 End-of-life care

    Comprehensive nurse practitioner dementia care co-management reduced ED visits, shortened hospital length of stay, increased hospice use, and delayed admission to long-term care.

  32. Assessment of changes in place of death of older adults who died from dementia in the United States, 2000–2014: a time-series cross-sectional analysis

    ✓ Peer-reviewed alzhub usefulness score 42 out of 100. BMC Public Health 2020-06-10 Health systems and care delivery

    Dementia decedents were more likely to die at home and other places and less likely to die at institutional settings over the study period.

  33. The use of technology in creating individualized, meaningful activities for people living with dementia: A systematic review

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. Dementia (London, England) 2020-05-31 Digital health tools

    There is a growing interest in using technology to provide meaningful activities for people living with dementia.

  34. Digital Mental Health Tools for Caregivers of Older Adults-A Scoping Review

    ✓ Peer-reviewed alzhub usefulness score 57 out of 100. Frontiers in public health 2020-04-28 Digital health tools

    Caregivers reported that digital mental health tools have an overall positive role in their health.

  35. Advance Care Planning for African American Caregivers of Relatives With Dementias: Cluster Randomized Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 76 out of 100. The American journal of hospice & palliative care 2020-04-20 End-of-life care

    Knowledge of CPR, MV, TF, and self-efficacy to make EOL treatment decisions increased significantly more in the ACT-Plan group at weeks 4 and 20.

  36. Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review

    ✓ Peer-reviewed alzhub usefulness score 73 out of 100. PloS one 2020-04-20 Caregiving

    Current evidence on sex and gender differences in caregiving burden, mental and physical health is limited.

  37. A narrative review of facilitating and inhibiting factors in advance care planning initiation in people with dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. European geriatric medicine 2020-04-02 End-of-life care

    This review highlighted the main challenges associated with optimal ACP initiation with PwD.

  38. Advance care planning for people living with dementia: An umbrella review of effectiveness and experiences

    ✓ Peer-reviewed alzhub usefulness score 59 out of 100. International journal of nursing studies 2020-03-20 End-of-life care

    Advance care planning is acceptable for people with dementia and their carers and is associated with improved outcomes.

  39. The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Psychology and aging 2020-02-01 Caregiving

    This systematic review and meta-analysis compared the effects of 131 randomized controlled trials, published between 2006 and mid-2018, for dementia caregivers with community-dwelling care-recipients.

  40. Virtual Reality for Therapeutic Recreation in Dementia Hospice Care: A Feasibility Study

    ✓ Peer-reviewed alzhub usefulness score 45 out of 100. The American journal of hospice & palliative care 2020-01-24 End-of-life care

    Virtual reality use was generally safe and enjoyable in hPLWD.

  41. Caregiver-Reported Barriers to Quality End-of-Life Care in Dementia With Lewy Bodies: A Qualitative Analysis

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The American journal of hospice & palliative care 2020-01-06 End-of-life care

    Many identified themes were consistent with published barriers to quality EOL care in dementia.

  42. A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    ⚠ Report — not peer-reviewed alzhub usefulness score 16 out of 100. Health technology assessment (Winchester, England) 2020-01-01 End-of-life care

    Phase 1 (realist review; 86 papers) identified that a key intervention component was the activities enabling the development of moments of connection.

  43. Prognostic Awareness, Disease and Palliative Understanding Among Caregivers of Patients With Dementia

    ✓ Peer-reviewed alzhub usefulness score 55 out of 100. The American journal of hospice & palliative care 2019-12-19 End-of-life care

    Prognostic discussions between caregivers of PwD and the PwD's physicians may be occurring more often; however, a high percentage of caregivers report a poor understanding about the terminal nature of dementia and the role of PC.

  44. Survival time tool to guide care planning in people with dementia

    ✓ Peer-reviewed alzhub usefulness score 64 out of 100. Neurology 2019-12-16 End-of-life care

    Three-year survival after dementia diagnosis can be predicted with good accuracy.

  45. Dementia and caregiver burden: A three-year longitudinal study

    ✓ Peer-reviewed alzhub usefulness score 66 out of 100. International journal of geriatric psychiatry 2019-12-10 Caregiving

    High levels of caregiver burden are present in a large proportion of caregivers of people with dementia and this increases over time for those without services.

  46. Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis

    ✓ Peer-reviewed alzhub usefulness score 72 out of 100. Palliative & supportive care 2019-12-01 End-of-life care

    Future research should focus on ways to involve people with dementia in decision-making through supported means.

  47. The 780 PWDs (56.3% female; mean [SD] age, 78.1 [9.9] years) and 780 caregivers (70.9% female; mean [SD] age, 64.7 [12.0] years) lived in California (n = 452), Nebraska (n = 284), or Iowa (n = 44).

  48. Improving shared decision-making in advance care planning: Implementation of a cluster randomized staff intervention in dementia care

    ✓ Peer-reviewed alzhub usefulness score 71 out of 100. Patient education and counseling 2019-11-26 End-of-life care

    Nursing home staff benefits from this training in shared decision-making.

  49. Race, Ethnicity, and Other Risks for Live Discharge Among Hospice Patients with Dementia

    ✓ Peer-reviewed alzhub usefulness score 69 out of 100. Journal of the American Geriatrics Society 2019-11-21 End-of-life care

    Policies regarding sustained hospice eligibility should account for the variable and protracted end-of-life trajectory of patients with dementia.

  50. Educating Dutch General Practitioners in Dementia Advance Care Planning: A Cluster Randomized Controlled Trial

    ✓ Peer-reviewed alzhub usefulness score 79 out of 100. Journal of the American Medical Directors Association 2019-11-20 End-of-life care

    Our educational intervention increased ACP initiation, and the number of nonmedical and medical preferences discussed.

From across this tag

10 of the 1,002 studies in this tag, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 10. The same 10 appear here every time.

All topic tags with their study counts