Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. [The Social Costs of Dementia in Japan: Focusing on the Informal Care Cost]

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Brain and nerve = Shinkei kenkyu no shinpo 2016-08 Caregiving

    Due to the rapid increase of the number in people with dementia, social costs of dementia are also expected to rise.

  2. Cost of Dementia and Its Correlation With Dependence

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of aging and health 2016-07-09 Costs and economics

    Average annual cost among patients diagnosed with dementia was €43,259, primarily incurred by accommodation.

  3. Analgesic prescribing in care home residents: how epidemiological studies may inform clinical practice

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Pain management 2016-07-07 Health systems and care delivery

    Care home residents are often frail with multiple comorbidities and cognitive impairment, most commonly caused by dementia.

  4. Palliative and end-of-life care for people living with dementia in care homes: part 2

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Nursing standard (Royal College of Nursing (Great Britain) : 1987) 2016-06-29 End-of-life care

    This article, the second of two, provides healthcare practitioners with an overview of best practice in palliative and end-of-life care, including nutrition, hydration, oral hygiene and pain management.

  5. Defining Safety in the Nursing Home Setting: Implications for Future Research

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of the American Medical Directors Association 2016-06-01 Health systems and care delivery

    Currently, the Agency for Healthcare Research and Quality (AHRQ) Common Format for nursing homes (NHs) accommodates voluntary reporting for 4 adverse events: falls with injury, pressure ulcers, medication errors, and infections.

  6. End-of-life care in a psychiatric hospital

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. BJPsych bulletin 2016-06 End-of-life care

    Since the Liverpool Care Pathway has been withdrawn in the UK, clinicians supporting the palliative needs of patients have faced further challenges, particularly for patients with dementia who are unable to go to a hospice owing to challenging behaviours.

  7. Palliative and end of life care for people with dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Nursing standard (Royal College of Nursing (Great Britain) : 1987) 2016-02-03 End-of-life care

    Dementia is a life-limiting condition that is largely a disease of ageing.

  8. Factors Associated with Unmet Needs among African-American Dementia Care Providers

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of gerontology & geriatric research 2016-01-22 Disparities

    Racial and ethnic minorities currently comprise 20% of the U.S. population; in 2050, this figure is expected to rise to 42%.

  9. Hallucinations, loneliness, and social isolation in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Cognitive neuropsychiatry 2016-01-06 Risk factors

    More hallucinatory experiences, social isolation, and loneliness were found in the AD group than in the healthy control group.

  10. End-of-Life Care and Psychiatry: Current Trends and Future Directions in India

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Mens sana monographs 2016 End-of-life care

    Although 80% of the deaths worldwide occur in middle- and low-income countries such as India, there is less awareness of end-of-life care (EOLC) for people with chronic, serious, progressive, or advanced life-limiting illnesses, including dementia.

  11. Hospice Use, Hospitalization, and Medicare Spending at the End of Life

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. The journals of gerontology. Series B, Psychological sciences and social sciences 2015-12-11 End-of-life care

    Hospice use over 2 weeks was associated with decreased hospital days (1-5 days overall, with greater decreases for longer hospice use) for all beneficiaries; spending was $900-$5,000 less for hospice use of 31-90 days for most beneficiaries not in nursing homes, except beneficiaries with Alzheimer's. Overall spending decreased with hospice use for beneficiaries in nursing homes with lung cancer only, with a $3,500 reduction.

  12. Palliative and end-of-life decision-making in dementia care

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. International journal of palliative nursing 2015-11 End-of-life care

    This paper will highlight some of the pertinent issues associated with palliative and end-of-life decision-making in relation to dementia.

  13. Family caregivers of patients with frontotemporal dementia: An integrative review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. International journal of nursing studies 2015-10-31 Caregiving

    Family caregivers of patients with frontotemporal dementia identify behavioral disturbances as most troubling.

  14. Advance care planning in dementia

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Nursing standard (Royal College of Nursing (Great Britain) : 1987) 2015-08-19 End-of-life care

    Advance care planning is the basis for delivering person-centred end of life care that accords with the wishes of the individual.

  15. Models of home care services for persons with dementia: a narrative review

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. International psychogeriatrics 2015-02-12 Health systems and care delivery

    Case management for persons with dementia may increase use of community-based services and delay nursing home admission.

  16. Confusion: delirium and dementia - a smartphone app to improve cognitive assessment

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. BMJ quality improvement reports 2015-01-21 Cognitive tests and assessment

    Older patients with dementia and delirium are more prone to adverse events in hospital, but formal cognitive assessment to identify these vulnerable patients on admission is often not carried out by junior doctors.

  17. [Hearing impairment and dementia]

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Zeitschrift fur Gerontologie und Geriatrie 2014-09-13 Risk factors

    The World Health Organization (WHO) burden of disease study identified dementia and hearing problems as leading causes of loss of quality of life in the industrial world.

  18. Concept Analysis: Alzheimer's Caregiver Stress

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Nursing forum 2014-05-01 Caregiving

    A theoretical definition of caregiver stress is provided, and the defining attributes, related concepts, antecedents, and consequences of caregiver stress are proposed, and case studies are presented.

  19. Alzheimer's disease and nursing homes

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Health affairs (Project Hope) 2014-04 Health systems and care delivery

    Close to two-thirds of all US nursing home residents have some type of cognitive impairment such as Alzheimer's disease, and the quality of care and quality of life of these people has long been called into question.

  20. Healthy Aging Brain Center improved care coordination and produced net savings

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Health affairs (Project Hope) 2014-04 Health systems and care delivery

    Over the past two decades the collaborative care model within primary care has proved to be effective in improving care quality, efficiency, and outcomes for older adults suffering from dementia and depression.

  21. Dementia in relation to family caregiver involvement and burden in long-term care

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of applied gerontology : the official journal of the Southern Gerontological Society 2013-10-16 Health systems and care delivery

    To better understand the process and outcomes of family involvement for long-term care residents with varying stages of dementia, we analyzed family and staff data for 467 residents of 24 residential care/assisted living and nursing-home settings.

  22. Sexuality in nursing homes: practice and policy

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Journal of gerontological nursing 2013-04-26 Health systems and care delivery

    Older adults' sexuality and sexual expression are often overlooked in nursing home and residential care settings.

  23. Cultural shift

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Nursing older people 2011-10-26 Health systems and care delivery

    IT WAS the 'gradual realisation' that what he had been taught about dementiain his nurse and social work training was simply 'not helpful' that prompted Colm Cunningham's interest in dementia research, he says.

  24. Caregiver burden, health utilities, and institutional service use in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. International journal of geriatric psychiatry 2011-05-10 Caregiving

    Random effects results suggest that caregiver burden weakens the inverse relationship between health utilities and institutional service use, leading to greater likelihood of institutional use than would be expected at a given level of health.

  25. Late-life depression with comorbid cognitive impairment and disability: nonpharmacological interventions

    ✓ Peer-reviewed alzhub usefulness score 38 out of 100. Clinical interventions in aging 2010-11-15 Risk factors

    Less than half of older adults with depression achieve remission with antidepressant medications, and rates of remission are even poorer for those with comorbid conditions.

From across this topic

9 of the 1,022 studies in this topic, picked by a fixed rule (a hash of each study's address), not by score or date; each page of this list shows a different 9. The same 9 appear here every time.

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