Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

Each study has a usefulness score out of 100 (rubric version 4.0). Tap a score to see what makes it up.

Highest usefulness score first. Studies without a score come last.

  1. Dementia and COVID-19 infection control in assisted living in seven states

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of the American Geriatrics Society 2022-06-14 Health systems and care delivery

    Less than half of administrators found it feasible to close indoor common areas, all community types reported a challenge organizing group activities for safe distancing, and more than half of residents with dementia did not wear a face covering or maintain physical distance from other residents when indicated.

  2. Promoting activity in long-term care facilities with the social robot Pepper: a pilot study

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Informatics for health & social care 2022-06-14 Health systems and care delivery

    About 40 000 individuals depend on assisted living in long-term care facilities in Norway.

  3. Providing informal care to a person living with dementia: the experiences of informal carers in Australia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Archives of gerontology and geriatrics 2022-06-01 Caregiving

    Most people with dementia live at home and rely on family and friends who provide unpaid care and support.

  4. Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Dementia (London, England) 2022-05-10 Health systems and care delivery

    A qualitative study was conducted to examine the experiences of informal caregivers of persons with dementia pertaining interprofessional collaboration with and among healthcare professionals in home care (HC), nursing homes and during home to nursing home transitions in palliative care.

  5. Tailored, Community-Based Programs for People Living With Dementia and Their Family Caregiver

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of gerontological nursing 2022-04-01 Caregiving

    People living with dementia (PLWD) have voiced a desire to remain in their home environment as long as possible; unfortunately, there is limited integrated person-and family-centered community support.

  6. Interventions to reduce loneliness in caregivers: An integrative review of the literature

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Psychiatry research 2022-03-12 Risk factors

    Older adults are at an increased risk of loneliness.

  7. Feasibility and acceptability of a web-based advance care plan for dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Geriatric nursing (New York, N.Y.) 2022-03-05 End-of-life care

    While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP.

  8. Assessments of the Value of New Interventions Should Include Health Equity Impact

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. PharmacoEconomics 2022-03-03 Disparities

    A formal evaluation of the health equity impact of a new intervention is hardly ever performed as part of a health technology assessment to understand its value.

  9. Palliative Care and Dementia: What All Advanced Practice Nurses Should Know

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Critical care nursing clinics of North America 2022-03 End-of-life care

    Dementia is a progressive, incurable condition that causes limitations in life and should be recognized as a life-limiting condition.

  10. Palliative care for older people with dementia-we need a paradigm shift in our approach

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Age and ageing 2022-03-01 End-of-life care

    Older people with dementia have multiple palliative care needs, with pain, agitation, dyspnoea, aspiration and pressure ulcers being common and persistent in advanced dementia.

  11. National General Health Screening Program in Korea: history, current status, and future direction

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Precision and Future Medicine 2022-02-23 Disparities

    Health screening is an important component of health promotion programs, and countries have promoted general health screening targeting the prevention and early management of common chronic diseases.

  12. Social Isolation and Nursing Leadership in Long-Term Care: Moving Forward After COVID-19

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. The Nursing clinics of North America 2022-02-22 Risk factors

    Nursing leaders have a responsibility to promote and facilitate social engagement and connectedness to mitigate social isolation in long-term care (LTC).

  13. Stress-Busting Program for Family Caregivers: Validation of the Spanish version using biomarkers and quality-of-life measures

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Research in nursing & health 2022-02-16 Caregiving

    Hispanic family caregivers of people with dementia experience higher levels of stress compared to non-Hispanic white caregivers.

  14. Assisted Living Residents With Dementia: Being Out in the World and Negotiating Connections

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. The Gerontologist 2022-02-09 Health systems and care delivery

    We identified the centrality of "being out in the world and negotiating connections," which characterizes residents' experiences with the outside world as a process of "working out" engagement with nature, others, and the community.

  15. Medicare Beneficiary Factors Associated with Skilled Nursing Facility Lengths of Stay

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of applied gerontology : the official journal of the Southern Gerontological Society 2022-01-27 Costs and economics

    The objectives of this study are (1) to identify beneficiary-level characteristics associated with skilled nursing facility (SNF) length of stay (LOS), and (2) to determine if significant differences in LOS exist for vulnerable populations at the individual level or among nursing homes that serve a disproportionate share of vulnerable populations.

  16. Racial/Ethnic Disparities in Length of Life after Dementia Diagnosis: an 18-Year Follow-up Study of Medicare Beneficiaries

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Lancet regional health. Americas 2022-01-08 Disparities

    Hispanics and Asians diagnosed with dementia had 40% lower mortality risk and African Americans had 13% lower mortality risk than Whites.

  17. Perceived Stress in Older Dementia Caregivers: Mediation by Loneliness and Depression

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. American journal of Alzheimer's disease and other dementias 2022 Risk factors

    Coupled with aging, chronic stress experienced by dementia caregivers often leads to deteriorating health.

  18. Exploring the Relationship between Falls in Long Term Care and Psychoactive Prescribing

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. The Journal of frailty & aging 2022 Health systems and care delivery

    Almost half of patients of nursing home residents experience one fall per year.

  19. Prognostication in dementia

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Handbook of clinical neurology 2022 End-of-life care

    Dementia is a progressive, irreversible illness and leading global cause of death defined by cognitive and subsequent functional decline.

  20. Advance care planning in neurologic illness

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Handbook of clinical neurology 2022 End-of-life care

    Advance care planning (ACP) is an essential element of neuropalliative care for persons living acquired brain injuries or progressive, neurodegenerative conditions like dementia.

  21. Toward a broader concept of societal value: family spillovers in Alzheimer's disease

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. International journal of technology assessment in health care 2021-12-20 Costs and economics

    Recognizing that the "healthcare sector perspective" can be too limited in some situations, the National Institute of Health and Care Excellence (NICE), Institute for Clinical and Economic Review (ICER), and the U.S. Second Panel on Cost-Effectiveness in Health and Medicine all recommend a "societal" perspective in "reference case" cost-effectiveness analyses (CEAs).

  22. Contribution of socioeconomic, lifestyle, and medical risk factors to disparities in dementia and mortality

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. SSM - population health 2021-12-09 Disparities

    Extensive literature in the United States documents racial/ethnic and gender disparities in the incidence and prevalence of dementia yet few studies have examined how race/ethnicity and gender intersect to shape inequalities in the risk of dementia.

  23. Evaluation of an Interprofessional Academic-Practice Partnership in End of Life Care

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Innovations in pharmacy 2021-09-22 End-of-life care

    Patients in Group 1 were on statistically significant fewer medications than Group 2 at both week 4 and weeks 7-12 following admission.

  24. Exploring Memory Care Clinics in Minnesota: A Qualitative Analysis

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. Journal of geriatric psychiatry and neurology 2021-09-14 Health systems and care delivery

    We identified 6 themes regarding financial issues, staffing, appointment logistics, care provision during and after the memory evaluation as well as features of an ideal clinic.

  25. Caring for Patients With Dementia at End of Life

    ✓ Peer-reviewed alzhub usefulness score 41 out of 100. The American journal of hospice & palliative care 2021-09-14 End-of-life care

    Care of the dementia patient continues to be challenging.

Other topics