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Feasibility and acceptability of a web-based advance care plan for dementia
Liza L Behrens, Brianna Morgan, Emily Summerhayes, Sonia Talwar, Vanessa L Burshnic-Neal, Mary Ersek, Nancy Hodgson. Geriatric nursing (New York, N.Y.), 2022-03-05
Topic: Health services, long-term care and technology
While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP. Web-based decision aids are a readily available tool to engage PLWD in ACP, but none are designed for the unique needs of PLWD, particularly those residing in nursing homes. Our Memory Care Wishes (OMCW) was adapted from a publicly available web-based ACP tool in collaboration with dementia care experts. This study aimed to explore the acceptability of OMCW. We used a convergent, mixed methods design to describe PLWD and surrogates' experiences using the OMCW website. Participants described ease of use, comfort with viewing, helpfulness for planning, and likelihood to recommend. Overall, OMCW is acceptable, however, PLWD continue to have difficulties understanding and engaging with some website content. Modifications were incorporated based on these findings, setting the stage for implementation and effectiveness testing.
Key findings
- While advance care planning (ACP) can help elicit preferences and is associated with improved end-of-life outcomes, persons living with dementia (PLWD) in nursing homes are rarely included in ACP.
- Overall, OMCW is acceptable, however, PLWD continue to have difficulties understanding and engaging with some website content.
- Modifications were incorporated based on these findings, setting the stage for implementation and effectiveness testing.
Study details
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record, multi-centre collaboration and free to read, so those were left out: it earned 23 of the 56 points we could judge it on, which is 41 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Geriatric nursing (New York, N.Y.)) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 3 / 5 | 2022 — within 6 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 35259603) |
| Free to read | — / 2 | Access not recorded — left out of this score |
| Points | 23 / 56 | Scored on 10 of 20 parts. We have no data for the rest, so they are left out: 23 of the 56 points we could judge it on is 41 out of 100. |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
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Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Behrens, L. L., Morgan, B., Summerhayes, E., Talwar, S., Burshnic-Neal, V. L., Ersek, M., et al. (2022). Feasibility and acceptability of a web-based advance care plan for dementia. Geriatric nursing (New York, N.Y.). https://doi.org/10.1016/j.gerinurse.2022.02.022
Vancouver
Behrens LL, Morgan B, Summerhayes E, Talwar S, Burshnic-Neal VL, Ersek M, et al. Feasibility and acceptability of a web-based advance care plan for dementia. Geriatric nursing (New York, N.Y.). 2022. doi:10.1016/j.gerinurse.2022.02.022. PMID: 35259603.
BibTeX
@article{behrens2022-35259603,
author = {Behrens, Liza L and Morgan, Brianna and Summerhayes, Emily and Talwar, Sonia and Burshnic-Neal, Vanessa L and Ersek, Mary and Hodgson, Nancy},
title = {{Feasibility and acceptability of a web-based advance care plan for dementia}},
journal = {Geriatric nursing (New York, N.Y.)},
year = {2022},
doi = {10.1016/j.gerinurse.2022.02.022},
pmid = {35259603},
url = {https://doi.org/10.1016/j.gerinurse.2022.02.022}
}
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