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The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection
James R. Wagner, Laura M. Wagner, Sheryl Itkin Zimmerman, Johanna van Tyen Silbersack Hickey, Kate Stewart, Sandi Nelson, Ji Qi, Raphael Nishimura et al.. Journal of the American Geriatrics Society, 2025-09-04
Topic: Risk, prevention and care in population studies
The National Dementia Workforce Study was designed to improve our understanding of the individuals and systems who care for people with dementia, but designing and implementing such a study is challenging due to the large number of patient care organizations, clinical and direct care roles, and locations in which care is provided. Specifically, developing a probability sample of organizations and staff caring for people with dementia is a complex and difficult process. While there are national sampling frames available for federally certified nursing homes (i.e., via data from the Center for Medicare and Medicaid Services), there are no national sampling frames for assisted living communities or home care agencies. The latter frames must be developed through querying state-level regulatory agencies and through other, supplemental strategies such as working with professional organizations, large employers, and organizations that provide services (e.g., payroll services) to this sector. Further, since there are no national sampling frames that allow for direct sampling of staff working in any of these types of organizations, we opted for a two-stage design. In the first stage, organizations are identified, sampled, recruited to participate in an organizational-level survey, and asked to provide a roster of eligible staff. In the second stage, individual staff members are recruited for a staff-level survey. We describe the plan for sampling and recruitment procedures to be used in each stage and discuss limitations, including implications for coverage of the target population. Data collected through these surveys will be available to the research community.
Key findings
- Further, since there are no national sampling frames that allow for direct sampling of staff working in any of these types of organizations, we opted for a two-stage design.
- In the first stage, organizations are identified, sampled, recruited to participate in an organizational-level survey, and asked to provide a roster of eligible staff.
- In the second stage, individual staff members are recruited for a staff-level survey.
- We describe the plan for sampling and recruitment procedures to be used in each stage and discuss limitations, including implications for coverage of the target population.
- Data collected through these surveys will be available to the research community.
Why it matters
This paper describes the plan for sampling organisations and staff who care for people with dementia in the National Dementia Workforce Study. It is about research methods for studying the dementia care workforce and does not address treating, curing, or preventing the disease.
Study details
- Evidence strengthLow
How this study scored 44/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of the American Geriatrics Society) |
| Journal's citation record | 3 / 4 | Journal of the American Geriatrics Society: journal h-index 344 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 8 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 2.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 4 / 6 | Cited 9.7× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 1 / 6 | Cited by 1 other studies in this library |
| Still being cited | 1 / 4 | Cited 8 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Joanne Spetz: h-index 45 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | University of Michigan: institution h-index 2,240 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 7 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40906878) |
| Free to read | 2 / 2 | Free to read |
| Total | 44 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1111/jgs.70036
- PubMed: 40906878
- Original source →
- Free full text: Journal of the American Geriatrics Society →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
APA 7th
Wagner, J. R., Wagner, L. M., Zimmerman, S. I., Hickey, J. v. T. S., Stewart, K., Nelson, S., et al. (2025). The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection. Journal of the American Geriatrics Society. https://doi.org/10.1111/jgs.70036
Vancouver
Wagner JR, Wagner LM, Zimmerman SI, Hickey JvTS, Stewart K, Nelson S, et al. The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection. Journal of the American Geriatrics Society. 2025. doi:10.1111/jgs.70036. PMID: 40906878.
BibTeX
@article{wagner2025-40906878,
author = {Wagner, James R. and Wagner, Laura M. and Zimmerman, Sheryl Itkin and Hickey, Johanna van Tyen Silbersack and Stewart, Kate and Nelson, Sandi and Qi, Ji and Nishimura, Raphael and others},
title = {{The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection}},
journal = {Journal of the American Geriatrics Society},
year = {2025},
doi = {10.1111/jgs.70036},
pmid = {40906878},
url = {https://doi.org/10.1111/jgs.70036}
}
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