Home › Research › Health systems and care delivery
Palliative Care for Patients with Dementia: A National Survey
Alexia M. Torke, Laura R. Holtz, Siu Hui, Peter Castelluccio, Stephen R. Connor, Matthew A. Eaton, Greg A. Sachs. Journal of the American Geriatrics Society, 2010-11-01
Topic: Risk, prevention and care in population studies
Ninety-four percent of hospices and 72% of PC programs had served at least one patient with a primary diagnosis of dementia within the past year. Based on 80 responses to the online survey, the most highly rated barriers to providing PC were lack of awareness of PC by families and referring providers, need for respite services, and reimbursement policies. Highly rated needs were family information, assistance with caregiver burden, and behavioral symptoms. Strategies critical for success were an interdisciplinary team, collaboration with community organizations, and alternatives to aggressive end-of-life care. Almost all hospices and a majority of nonhospice PC programs serve patients with dementia. Education and policy efforts should focus on education for families and providers, support for caregivers, and reforming reimbursement structures to provide coverage for interdisciplinary PC earlier in the disease, when patients have high needs but are not hospice eligible.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Torke, A. M., Holtz, L. R., Hui, S., Castelluccio, P., Connor, S. R., Eaton, M. A., et al. (2010). Palliative Care for Patients with Dementia: A National Survey. Journal of the American Geriatrics Society. https://doi.org/10.1111/j.1532-5415.2010.03141.x
Vancouver
Torke AM, Holtz LR, Hui S, Castelluccio P, Connor SR, Eaton MA, et al. Palliative Care for Patients with Dementia: A National Survey. Journal of the American Geriatrics Society. 2010. doi:10.1111/j.1532-5415.2010.03141.x. PMID: 21054292.
BibTeX
@article{torke2010-21054292,
author = {Torke, Alexia M. and Holtz, Laura R. and Hui, Siu and Castelluccio, Peter and Connor, Stephen R. and Eaton, Matthew A. and Sachs, Greg A.},
title = {{Palliative Care for Patients with Dementia: A National Survey}},
journal = {Journal of the American Geriatrics Society},
year = {2010},
doi = {10.1111/j.1532-5415.2010.03141.x},
pmid = {21054292},
url = {https://doi.org/10.1111/j.1532-5415.2010.03141.x}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
Key findings
- Ninety-four percent of hospices and 72% of PC programs had served at least one patient with a primary diagnosis of dementia within the past year.
- Based on 80 responses to the online survey, the most highly rated barriers to providing PC were lack of awareness of PC by families and referring providers, need for respite services, and reimbursement policies.
- Highly rated needs were family information, assistance with caregiver burden, and behavioral symptoms.
- Strategies critical for success were an interdisciplinary team, collaboration with community organizations, and alternatives to aggressive end-of-life care.
- Almost all hospices and a majority of nonhospice PC programs serve patients with dementia.
Why it matters
This survey found that most hospices and many palliative care programs serve patients with dementia, and it identifies barriers such as lack of awareness and reimbursement policies. It does not test any treatment, cure, or prevention for Alzheimer's disease, and it suggests education and policy changes to improve palliative care.
Study details
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomized / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of the American Geriatrics Society) |
| Journal's citation record | 3 / 4 | Journal of the American Geriatrics Society: journal h-index 344 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 1 / 5 | 2010 — within 20 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomized / blinded | 0 / 2 | No randomization or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 4 / 7 | Cited 59 times (OpenAlex, 2026-10-10) |
| Citations per year | 2 / 5 | 3.3 citations a year over 18 year(s) since 2010 |
| Impact for its field and year | 3 / 6 | Cited 4.5× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 2 / 4 | Last-listed author Greg A. Sachs: h-index 43 (OpenAlex, whole career) |
| Institution's track record | 1 / 3 | Indiana University: institution h-index 926 (OpenAlex) |
| Multicenter collaboration | 2 / 3 | OpenAlex lists 6 institution(s) in 2 countries |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 21054292) |
| Free to read | 2 / 2 | Free to read |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1111/j.1532-5415.2010.03141.x
- PubMed: 21054292
- Original source →
- Free full text: IUScholarWorks (Indiana University) →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Related
Studies in the library that share something with this one. The line above each title says what.
Studies this one cites
Referenced by this study and also in the alzhub library, so you can read them here.
Related studies in Health systems and care delivery
Also tagged “nursing”
995 studies in the library carry the topic tag “nursing”; these are this study's neighbours in a fixed, alphabetical-by-hash tour of them, not the closest in content. All 995 tagged studies.