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Challenges for professional care of advanced dementia
Chang E, Daly J, Johnson A, Harrison K, Easterbrook S, Bidewell J, Stewart H, Noel M et al.. International journal of nursing practice, 2009-02-01
Topic: Risk, prevention and care in population studies
Qualitative methodology based on action research identified challenges when caring for persons with advanced dementia, as perceived by key professional providers. Data collection was via five focus groups (total n = 24) and 20 follow-up individual interviews. Participants included palliative care, aged care and dementia specialist nurses, medical specialists from an area health service, residential aged care staff and general medical practitioners. Responses emphasized the need for improved knowledge and skills, and clearer policy. Concerns included accurate assessment, especially of pain, owing to the inability of people with advanced dementia to communicate their symptoms. Assessment, managing physical and behavioural symptoms, and communicating with family presented as further challenges. Conclusions are that the need for a palliative approach to care in advanced dementia should be recognized. Aged care staff can deliver palliative care to people with advanced dementia only if the staff receive relevant education and training beyond their generalist competencies.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Chang, E., Daly, J., Johnson, A., Harrison, K., Easterbrook, S., Bidewell, J., et al. (2009). Challenges for professional care of advanced dementia. International journal of nursing practice. https://doi.org/10.1111/j.1440-172x.2008.01723.x
Vancouver
Chang E, Daly J, Johnson A, Harrison K, Easterbrook S, Bidewell J, et al. Challenges for professional care of advanced dementia. International journal of nursing practice. 2009. doi:10.1111/j.1440-172x.2008.01723.x. PMID: 19187168.
BibTeX
@article{chang2009-19187168,
author = {Chang, E. and Daly, J. and Johnson, A. and Harrison, K. and Easterbrook, S. and Bidewell, J. and Stewart, H. and Noel, M. and others},
title = {{Challenges for professional care of advanced dementia}},
journal = {International journal of nursing practice},
year = {2009},
doi = {10.1111/j.1440-172x.2008.01723.x},
pmid = {19187168},
url = {https://doi.org/10.1111/j.1440-172x.2008.01723.x}
}
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Key findings
- Responses emphasized the need for improved knowledge and skills, and clearer policy.
- Concerns included accurate assessment, especially of pain, owing to the inability of people with advanced dementia to communicate their symptoms.
- Assessment, managing physical and behavioural symptoms, and communicating with family presented as further challenges.
- Conclusions are that the need for a palliative approach to care in advanced dementia should be recognized.
- Aged care staff can deliver palliative care to people with advanced dementia only if the staff receive relevant education and training beyond their generalist competencies.
Study details
- Participants24
- Evidence strengthLow
How this study scored 43/100
Published in a peer-reviewed journal. Scored zero for study design, effect reported and randomised / blinded because the record does not state it. We have no data on journal's citation record, times cited, citations per year, impact for its field and year, cited by studies here, still being cited, senior author's track record, institution's track record and multi-centre collaboration, so those were left out: it earned 25 of the 58 points we could judge it on, which is 43 out of 100.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (International journal of nursing practice) |
| Journal's citation record | — / 4 | No journal record from OpenAlex — left out of this score |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 1 / 5 | 2009 — within 20 year(s) of the newest study here |
| Sample size | 1 / 4 | 24 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | — / 7 | No citation count (not found in OpenAlex) — left out of this score |
| Citations per year | — / 5 | No citation count or no year — left out of this score |
| Impact for its field and year | — / 6 | No field-weighted citation impact (OpenAlex has none yet) — left out of this score |
| Cited by studies here | — / 6 | Not yet checked against this library's citation graph — left out of this score |
| Still being cited | — / 4 | No yearly citation counts — left out of this score |
| Senior author's track record | — / 4 | Senior author's record not available — left out of this score |
| Institution's track record | — / 3 | No institution listed in OpenAlex — left out of this score |
| Multi-centre collaboration | — / 3 | Institutions not listed — left out of this score |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 19187168) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Points | 25 / 58 | Scored on 11 of 20 parts. We have no data for the rest, so they are left out: 25 of the 58 points we could judge it on is 43 out of 100. |
| Total | 43 / 100 | — |
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