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Enhancing participation of historically minoritized groups in Alzheimer disease and related dementias research: National Conference Report
Jessica T. Mozersky, Araya Dimtsu Assfaw, Joyce E. Balls Berry, Krista L. Moulder, Andrea Denny, María Aranda, Sanjay Asthana, Ganesh Muneshwar Babulal et al.. Alzheimer s & Dementia, 2025-05-01
Topic: Risk, prevention and care in population studies
This paper reports on a Conference organized by the Washington University School of Medicine's (WUSM) Knight Alzheimer Disease Research Center (Knight ADRC), entitled "Enhancing Participation by Minoritized Groups in Alzheimer Disease and Related Dementia (ADRD) Research." It builds on recommendations from a 2018 Workshop. Representatives from all 37 federally funded ADRCs described strategies to enhance the recruitment and engagement of participants from historically minoritized groups. St. Louis community members attended and provided input. The Conference was guided by the 2015 National Institute on Aging (NIA) Health Disparities Research Framework, which delineates that "fundamental life-course factors such as race, ethnicity, and socioeconomic status interact with behavioral and biological characteristics to determine health and disease." The multiple ways of engaging participants described at the Conference provide guidance and strategies that can be adapted and utilized across the ADRC network and other research programs nationally to enhance inclusion of minoritized groups in ADRD research. Highlights Increasing representation in Alzheimer disease and related dementias (ADRD) research is a national priority. The National Conference described strategies to diversify participation in AD research. All Alzheimer's Disease Research Centers (ADRCs) were represented. Local community members attended and participated in breakout sessions. Many community-engaged strategies are being used to enhance recruitment and retention. Approaches can be adapted for local needs and utilized by ADRCs.
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APA 7th
Mozersky, J. T., Assfaw, A. D., Berry, J. E. B., Moulder, K. L., Denny, A., Aranda, M., et al. (2025). Enhancing participation of historically minoritized groups in Alzheimer disease and related dementias research: National Conference Report. Alzheimer s & Dementia. https://doi.org/10.1002/alz.70168
Vancouver
Mozersky JT, Assfaw AD, Berry JEB, Moulder KL, Denny A, Aranda M, et al. Enhancing participation of historically minoritized groups in Alzheimer disease and related dementias research: National Conference Report. Alzheimer s & Dementia. 2025. doi:10.1002/alz.70168. PMID: 40342234.
BibTeX
@article{mozersky2025-40342234,
author = {Mozersky, Jessica T. and Assfaw, Araya Dimtsu and Berry, Joyce E. Balls and Moulder, Krista L. and Denny, Andrea and Aranda, María and Asthana, Sanjay and Babulal, Ganesh Muneshwar and others},
title = {{Enhancing participation of historically minoritized groups in Alzheimer disease and related dementias research: National Conference Report}},
journal = {Alzheimer s \& Dementia},
year = {2025},
doi = {10.1002/alz.70168},
pmid = {40342234},
url = {https://doi.org/10.1002/alz.70168}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record's author list ends in “et al.”, so not every author is named. Check the citation against the original before you use it.
Key findings
- The National Conference described strategies to diversify participation in AD research.
- All Alzheimer's Disease Research Centers (ADRCs) were represented.
- Local community members attended and participated in breakout sessions.
- Many community-engaged strategies are being used to enhance recruitment and retention.
- Approaches can be adapted for local needs and utilized by ADRCs.
Why it matters
This conference report describes strategies to enhance participation of historically minoritized groups in Alzheimer's disease and related dementias research. It addresses research inclusion, not treating, curing, or preventing the disease.
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Study details
- Evidence strengthLow
How this study scored 45/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 6 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 2.0 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 5.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 6 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 4 / 4 | Last-listed author John C. Morris: h-index 209 (OpenAlex, whole career) |
| Institution's track record | 3 / 3 | University of Washington: institution h-index 3,540 (OpenAlex) |
| Multi-centre collaboration | 3 / 3 | OpenAlex lists 18 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40342234) |
| Free to read | 2 / 2 | Free to read |
| Total | 45 / 100 | — |
What each of these 20 components measures, and what this score is not →
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