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Current practices by Alzheimer's Disease Research Centers to remunerate research participants
Gabel Matthew, Bekena Semere, O'Meara Mitch, Denny Andrea, Solomon Erin D, Moulder Krista L, Morris John C, Mozersky Jessica. Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025-01-27
Topic: Amyloid, tau and blood-test diagnosis
Recent guidance from the National Alzheimer's Coordinating Center (NACC) recommends remuneration for all Alzheimer's disease (AD) research participants. Given AD research recruitment challenges, we assessed the remuneration practices at Alzheimer's Disease Research Centers (ADRCs). We surveyed 37 ADRCs about remuneration for longitudinal research participants. This included type of remuneration (i.e., compensation, reimbursement) and which study procedures are remunerated. We had a 100% response rate. Most ADRCs (32/37) provide some remuneration but amounts and types varied. Most ADRCs reimburse for travel or food (n = 29), compensate for some study procedures (n = 32), but most do not remunerate study partners (n = 12) or offer financial incentives (n = 8). Few (n = 6) ADRCs pay for all procedures. Two areas for potential change are compensating for annual clinical and cognitive assessments that are compulsory, and for study partners. Evaluation of the impact of remuneration on recruitment and retention is needed, including for underrepresented groups. Recent guidance recommends remuneration for Alzheimer's disease research participants. We surveyed all Alzheimer's Disease Research Centers about their remuneration practices. Most centers provide some form of remuneration to participants but this is variable. Potential areas for change are remuneration for study partners and annual study visits. Evaluating the impact of remuneration on recruitment and retention is needed.
Key findings
- Recent guidance recommends remuneration for Alzheimer's disease research participants.
- We surveyed all Alzheimer's Disease Research Centers about their remuneration practices.
- Most centers provide some form of remuneration to participants but this is variable.
- Potential areas for change are remuneration for study partners and annual study visits.
- Evaluating the impact of remuneration on recruitment and retention is needed.
Why it matters
This survey describes how Alzheimer's Disease Research Centers remunerate research participants. It does not test any treatment, cure, or prevention for Alzheimer's disease.
Study details
- Study designlongitudinal study
- Participants29
- Evidence strengthModerate
How this study scored 52/100
Published in a leading specialty journal, and it is a longitudinal study following the same people over time. Scored zero for effect reported and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 9 / 10 | Tier 2 — leading specialty journal (Alzheimer's & dementia : the journal of the Alzheimer's Association) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 7 / 12 | A longitudinal study following the same people over time |
| Strength of evidence | 3 / 5 | Rated “moderate” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 1 / 4 | 29 participants |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 7 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 2.3 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 5.9× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 1 / 6 | Cited by 1 other studies in this library |
| Still being cited | 1 / 4 | Cited 7 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 1 / 4 | Last-listed author Jessica T. Mozersky: h-index 18 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | Washington University in St. Louis: institution h-index 1,962 (OpenAlex) |
| Multi-centre collaboration | 0 / 3 | OpenAlex lists 1 institution(s) in 1 country — scores zero (affiliation lists can be incomplete) |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 39868808) |
| Free to read | 0 / 2 | Behind a paywall — scores zero |
| Total | 52 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 8 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Matthew, G., Semere, B., Mitch, O., Andrea, D., Solomon Erin, D., Moulder Krista, L., et al. (2025). Current practices by Alzheimer's Disease Research Centers to remunerate research participants. Alzheimer's & dementia : the journal of the Alzheimer's Association. https://doi.org/10.1002/alz.14542
Vancouver
Matthew G, Semere B, Mitch O, Andrea D, Solomon Erin D, Moulder Krista L, et al. Current practices by Alzheimer's Disease Research Centers to remunerate research participants. Alzheimer's & dementia : the journal of the Alzheimer's Association. 2025. doi:10.1002/alz.14542. PMID: 39868808.
BibTeX
@article{matthew2025-39868808,
author = {Matthew, Gabel and Semere, Bekena and Mitch, O'Meara and Andrea, Denny and Solomon Erin, D. and Moulder Krista, L. and Morris John, C. and Jessica, Mozersky},
title = {{Current practices by Alzheimer's Disease Research Centers to remunerate research participants}},
journal = {Alzheimer's \& dementia : the journal of the Alzheimer's Association},
year = {2025},
doi = {10.1002/alz.14542},
pmid = {39868808},
url = {https://doi.org/10.1002/alz.14542}
}
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