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Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities
Kristen M. Jacklin, Joshua T. Fergen, Patricia Davern Soderlund, Kirsten R Cruikshank, Kelsie Larson, Dereck L. Salisbury, Wayne Warry. International Journal of Qualitative Methods, 2025-04-01
Topic: Amyloid, tau and blood-test diagnosis
Community-based participatory research (CBPR) offers effective, flexible approaches well suited to conduct health research with underrepresented populations that can be tailored to unique social, cultural, and geographic contexts. For these reasons, CBPR offers the potential to address rural underrepresentation in dementia research. However, the diversity of rural America requires multi-scalar approaches to research that account for regional characteristics in the analysis of health data and the design of health system interventions. To address this issue, Memory Keepers Medical Discovery Team (MK-MDT) has developed a regional CBPR model for dementia research that incorporates multiple rural communities across northern Minnesota, which builds unique regional knowledge allowing for regional comparisons. Facilitated by numerous partnerships with community organizations, healthcare providers, and academics, the MK-MDT regional CBPR model offers a framework that is actionable and effective, especially for recruiting participants across rural regions for a range of projects. In this paper, we describe the components and approach to our regional CBPR model as well as three case studies of how this approach has been effectively applied across a variety of projects focused on dementia. Although applied to the upper Midwest, the MK-MDT regional CBPR model is applicable to other rural regions where networks of rural communities work together to address Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) and care needs. This approach demonstrates the power in leveraging multiple communities in CBPR research that better reflects the inter-related ways in which rural people and places interact with each other to provide AD/ADRD care.
Key findings
- To address this issue, Memory Keepers Medical Discovery Team (MK-MDT) has developed a regional CBPR model for dementia research that incorporates multiple rural communities across northern Minnesota, which builds unique regional knowledge allowing for regional comparisons.
- Facilitated by numerous partnerships with community organizations, healthcare providers, and academics, the MK-MDT regional CBPR model offers a framework that is actionable and effective, especially for recruiting participants across rural regions for a range of projects.
- In this paper, we describe the components and approach to our regional CBPR model as well as three case studies of how this approach has been effectively applied across a variety of projects focused on dementia.
- Although applied to the upper Midwest, the MK-MDT regional CBPR model is applicable to other rural regions where networks of rural communities work together to address Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) and care needs.
- This approach demonstrates the power in leveraging multiple communities in CBPR research that better reflects the inter-related ways in which rural people and places interact with each other to provide AD/ADRD care.
Why it matters
This paper describes a community-based participatory research model for dementia research in rural northern Minnesota, built on partnerships with community organizations, healthcare providers, and academics. The model is presented as a framework for recruiting participants across rural regions, and the authors state it may be applicable to other rural regions beyond the upper Midwest.
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Study details
- Evidence strengthLow
How this study scored 33/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (International Journal of Qualitative Methods) |
| Journal's citation record | 1 / 4 | International Journal of Qualitative Methods: journal h-index 139 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 2 times (OpenAlex, 2026-10-10) |
| Citations per year | 0 / 5 | 0.7 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 2 / 6 | Cited 2.4× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 0 / 4 | Cited 2 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 1 / 4 | Last-listed author Wayne Warry: h-index 17 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | University of Minnesota: institution h-index 1,568 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 2 institution(s) in 1 country |
| Indexed in PubMed | 1 / 2 | Not in PubMed, but has a DOI |
| Free to read | 2 / 2 | Free to read |
| Total | 33 / 100 | — |
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Read the original
- DOI: 10.1177/16094069251346866
- Original source →
- Free full text: International Journal of Qualitative Methods →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Jacklin, K. M., Fergen, J. T., Soderlund, P. D., Cruikshank, K. R., Larson, K., Salisbury, D. L., et al. (2025). Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities. International Journal of Qualitative Methods. https://doi.org/10.1177/16094069251346866
Vancouver
Jacklin KM, Fergen JT, Soderlund PD, Cruikshank KR, Larson K, Salisbury DL, et al. Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities. International Journal of Qualitative Methods. 2025. doi:10.1177/16094069251346866.
BibTeX
@article{jacklin2025-3206451c,
author = {Jacklin, Kristen M. and Fergen, Joshua T. and Soderlund, Patricia Davern and Cruikshank, Kirsten R and Larson, Kelsie and Salisbury, Dereck L. and Warry, Wayne},
title = {{Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities}},
journal = {International Journal of Qualitative Methods},
year = {2025},
doi = {10.1177/16094069251346866},
url = {https://doi.org/10.1177/16094069251346866}
}
Studies this one cites
Referenced by this study and also in the alzhub library, so you can read them here.