Get help now — free helplines

You can call any of these for free. You do not need a diagnosis, an appointment, or a crisis to call — questions and plain exhaustion are reasons enough.

  • Alzheimer's Association 24/7 Helpline 800-272-3900 24 hours a day, 365 days a year Free, confidential support and information for people with dementia, caregivers, families and the public. Master's-level clinicians. Also Spanish.
  • 988 Suicide & Crisis Lifeline 988 24/7 Call or text 988, or chat at 988lifeline.org. For anyone in emotional distress or a mental-health crisis, including caregivers.
  • Alzheimer's Foundation of America (AFA) Helpline 866-232-8484 9:00 am - 9:00 pm ET, seven days a week Licensed social workers providing support, info and referrals. Also text message and web chat. Text: 646-586-5283

In a medical emergency, call 911. More numbers, and what each line does, on the help page.

This page is alzhub.org's plain-English summary of a published study, not the paper itself. It is generated from the record we hold for this study, sourced and linked below — check the original for the full text and methods.

✓ Peer-reviewed alzhub usefulness score 33 out of 100. Disparities

Topic: Amyloid, tau and blood-test diagnosis

Community-based participatory research (CBPR) offers effective, flexible approaches well suited to conduct health research with underrepresented populations that can be tailored to unique social, cultural, and geographic contexts. For these reasons, CBPR offers the potential to address rural underrepresentation in dementia research. However, the diversity of rural America requires multi-scalar approaches to research that account for regional characteristics in the analysis of health data and the design of health system interventions. To address this issue, Memory Keepers Medical Discovery Team (MK-MDT) has developed a regional CBPR model for dementia research that incorporates multiple rural communities across northern Minnesota, which builds unique regional knowledge allowing for regional comparisons. Facilitated by numerous partnerships with community organizations, healthcare providers, and academics, the MK-MDT regional CBPR model offers a framework that is actionable and effective, especially for recruiting participants across rural regions for a range of projects. In this paper, we describe the components and approach to our regional CBPR model as well as three case studies of how this approach has been effectively applied across a variety of projects focused on dementia. Although applied to the upper Midwest, the MK-MDT regional CBPR model is applicable to other rural regions where networks of rural communities work together to address Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) and care needs. This approach demonstrates the power in leveraging multiple communities in CBPR research that better reflects the inter-related ways in which rural people and places interact with each other to provide AD/ADRD care.

Key findings

Why it matters

This paper describes a community-based participatory research model for dementia research in rural northern Minnesota, built on partnerships with community organizations, healthcare providers, and academics. The model is presented as a framework for recruiting participants across rural regions, and the authors state it may be applicable to other rural regions beyond the upper Midwest.

Study details

How this study scored 33/100
How this study's score is builtJournal tier 7 of 10; Journal's citation record 1 of 4; Study design 0 of 12; Strength of evidence 1 of 5; Peer-review validation 10 of 10; How recent 4 of 5; Sample size 0 of 4; Effect reported 0 of 3; Studied in people 0 of 3; Randomised / blinded 0 of 2; Times cited 1 of 7; Citations per year 0 of 5; Impact for its field and year 2 of 6; Cited by studies here 0 of 6; Still being cited 0 of 4; Senior author's track record 1 of 4; Institution's track record 2 of 3; Multi-centre collaboration 1 of 3; Indexed in PubMed 1 of 2; Free to read 2 of 2. Total 33 of 100.33 of 100 points earned67 not earned

Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.

ComponentPointsWhy
Journal tier 7 / 10 Tier 3 — peer-reviewed journal (International Journal of Qualitative Methods)
Journal's citation record 1 / 4 International Journal of Qualitative Methods: journal h-index 139 (OpenAlex, 2026-10-29)
Study design 0 / 12 No study design recorded — scores zero, not guessed (not stated in the record — scored 0)
Strength of evidence 1 / 5 Rated “low” in our summary
Peer-review validation 10 / 10 Peer-reviewed. Published as an article in a named peer-reviewed journal.
How recent 4 / 5 2025 — within 3 year(s) of the newest study here
Sample size 0 / 4 Participant count not stated — scores zero (not stated in the record — scored 0)
Effect reported 0 / 3 No effect size reported — scores zero (not stated in the record — scored 0)
Studied in people 0 / 3 Not stated whether this was studied in people — scores zero (not stated in the record — scored 0)
Randomised / blinded 0 / 2 No randomisation or blinding stated — scores zero (not stated in the record — scored 0)
Times cited 1 / 7 Cited 2 times (OpenAlex, 2026-10-10)
Citations per year 0 / 5 0.7 citations a year over 3 year(s) since 2025
Impact for its field and year 2 / 6 Cited 2.4× the average for papers of its field and year (OpenAlex FWCI)
Cited by studies here 0 / 6 No other study in this library cites it
Still being cited 0 / 4 Cited 2 times in 2024–2026 (2026 still in progress; OpenAlex)
Senior author's track record 1 / 4 Last-listed author Wayne Warry: h-index 17 (OpenAlex, whole career)
Institution's track record 2 / 3 University of Minnesota: institution h-index 1,568 (OpenAlex)
Multi-centre collaboration 1 / 3 OpenAlex lists 2 institution(s) in 1 country
Indexed in PubMed 1 / 2 Not in PubMed, but has a DOI
Free to read 2 / 2 Free to read
Total 33 / 100 —

What each of these 20 components measures, and what this score is not →

Read the original

Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).

Cite this study APA, Vancouver, BibTeX · download .bib or .ris

Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.

APA 7th

Jacklin, K. M., Fergen, J. T., Soderlund, P. D., Cruikshank, K. R., Larson, K., Salisbury, D. L., et al. (2025). Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities. International Journal of Qualitative Methods. https://doi.org/10.1177/16094069251346866

Vancouver

Jacklin KM, Fergen JT, Soderlund PD, Cruikshank KR, Larson K, Salisbury DL, et al. Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities. International Journal of Qualitative Methods. 2025. doi:10.1177/16094069251346866.

BibTeX

@article{jacklin2025-3206451c,
  author  = {Jacklin, Kristen M. and Fergen, Joshua T. and Soderlund, Patricia Davern and Cruikshank, Kirsten R and Larson, Kelsie and Salisbury, Dereck L. and Warry, Wayne},
  title   = {{Building a Regional Community-Based Participatory Research Model for Alzheimer’s Disease and Related Dementias for Rural Communities}},
  journal = {International Journal of Qualitative Methods},
  year    = {2025},
  doi     = {10.1177/16094069251346866},
  url     = {https://doi.org/10.1177/16094069251346866}
}

Studies this one cites

Referenced by this study and also in the alzhub library, so you can read them here.

Related studies in Disparities

Similar studies

More on Disparities

See all studies in Disparities →