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Leveraging data, technology, and policy to address disparities for persons living with Alzheimer's disease and Alzheimer's disease related dementias
Chanee D. Fabius, Jie Chen, Norma B. Coe, Emmanuel Fulgence Drabo, Shekinah A. Fashaw‐Walters, Maricruz Rivera‐Hernandez, Tina R. Sadarangani. Alzheimer s & Dementia, 2025-04-01
Topic: Amyloid, tau and blood-test diagnosis
Addressing disparities related to Alzheimer's disease and Alzheimer's disease related dementias (AD/ADRD) is a priority for policymakers, practitioners, and researchers. In this perspective, we highlight important gaps and opportunities presented during Session 4: Disparities in Health Care Access, Utilization, and Quality, of the 2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and Their Care Partners/Caregivers. We call attention to three areas: (1) increased data availability and linkages across local, state, and federal levels; (2) health information technology use and related care access, quality, and costs; and (3) diverse health insurance models used to enable access to medical care, long-term services and supports, and address care quality. Recommendations present considerations for future research and opportunities to strengthen policies related to the care of persons living with AD/ADRD. HIGHLIGHTS: Disparities related to AD/ADRD negatively impact diverse populations. Limited data on underrepresented groups make it difficult to assess the full scope of disparities. Increasing access to health information technology is necessary for reducing disparities. More information is needed to understand the impact of payment models on addressing disparities.
Key findings
- Recommendations present considerations for future research and opportunities to strengthen policies related to the care of persons living with AD/ADRD.
- HIGHLIGHTS: Disparities related to AD/ADRD negatively impact diverse populations.
- Limited data on underrepresented groups make it difficult to assess the full scope of disparities.
- Increasing access to health information technology is necessary for reducing disparities.
- More information is needed to understand the impact of payment models on addressing disparities.
Why it matters
This perspective paper describes gaps in data, health information technology, and insurance models that affect disparities in Alzheimer's and related dementias care. It offers recommendations for future research and policy rather than testing any treatment, cure, or prevention.
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Study details
- Evidence strengthLow
How this study scored 41/100
Published in a peer-reviewed journal. Scored zero for study design, sample size, effect reported, studied in people and randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Alzheimer s & Dementia) |
| Journal's citation record | 2 / 4 | Alzheimer s & Dementia: journal h-index 228 (OpenAlex, 2026-10-29) |
| Study design | 0 / 12 | No study design recorded — scores zero, not guessed (not stated in the record — scored 0) |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 4 / 5 | 2025 — within 3 year(s) of the newest study here |
| Sample size | 0 / 4 | Participant count not stated — scores zero (not stated in the record — scored 0) |
| Effect reported | 0 / 3 | No effect size reported — scores zero (not stated in the record — scored 0) |
| Studied in people | 0 / 3 | Not stated whether this was studied in people — scores zero (not stated in the record — scored 0) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 2 / 7 | Cited 7 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 2.3 citations a year over 3 year(s) since 2025 |
| Impact for its field and year | 3 / 6 | Cited 4.4× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 1 / 6 | Cited by 1 other studies in this library |
| Still being cited | 1 / 4 | Cited 7 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 1 / 4 | Last-listed author Tina R. Sadarangani: h-index 15 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | Johns Hopkins University: institution h-index 2,306 (OpenAlex) |
| Multi-centre collaboration | 2 / 3 | OpenAlex lists 5 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 40302029) |
| Free to read | 2 / 2 | Free to read |
| Total | 41 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. The record names 7 authors; APA and Vancouver show the first six, BibTeX and the downloads carry all of them. Check the citation against the original before you use it.
APA 7th
Fabius, C. D., Chen, J., Coe, N. B., Drabo, E. F., Fashaw‐Walters, S. A., Rivera‐Hernandez, M., et al. (2025). Leveraging data, technology, and policy to address disparities for persons living with Alzheimer's disease and Alzheimer's disease related dementias. Alzheimer s & Dementia. https://doi.org/10.1002/alz.70186
Vancouver
Fabius CD, Chen J, Coe NB, Drabo EF, Fashaw‐Walters SA, Rivera‐Hernandez M, et al. Leveraging data, technology, and policy to address disparities for persons living with Alzheimer's disease and Alzheimer's disease related dementias. Alzheimer s & Dementia. 2025. doi:10.1002/alz.70186. PMID: 40302029.
BibTeX
@article{fabius2025-40302029,
author = {Fabius, Chanee D. and Chen, Jie and Coe, Norma B. and Drabo, Emmanuel Fulgence and Fashaw‐Walters, Shekinah A. and Rivera‐Hernandez, Maricruz and Sadarangani, Tina R.},
title = {{Leveraging data, technology, and policy to address disparities for persons living with Alzheimer's disease and Alzheimer's disease related dementias}},
journal = {Alzheimer s \& Dementia},
year = {2025},
doi = {10.1002/alz.70186},
pmid = {40302029},
url = {https://doi.org/10.1002/alz.70186}
}
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