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Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model
Niying Li, Kevin A. Look, Lin‐Na Chou. Journal of General Internal Medicine, 2026-02-19
Topic: Risk, prevention and care in population studies
Our study included 467 caregivers. Most (92.5%) caregivers performed at least one health care interaction task. The most frequently performed health care interaction tasks were speaking to providers (82.2%), making appointments (79.0%), and sitting in on doctor appointments (68.4%). The tasks caregivers rated as being most difficult were transitioning care after a hospital stay (58.9%), coordinating care (43.0%), and handling insurance matters (39.8%). Over half of caregivers assisting after an overnight hospital stay received post-hospital training (58.2%). Family caregivers commonly perform health care interaction tasks, and their difficulties, particularly transitioning care after a hospital stay, should be recognized and assessed across care settings and providers in the GUIDE Model.
Cite this study APA, Vancouver, BibTeX · download .bib or .ris
APA 7th
Li, N., Look, K. A., & Chou, L. (2026). Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model. Journal of General Internal Medicine. https://doi.org/10.1007/s11606-026-10208-w
Vancouver
Li N, Look KA, Chou L. Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model. Journal of General Internal Medicine. 2026. doi:10.1007/s11606-026-10208-w. PMID: 41714582.
BibTeX
@article{li2026-41714582,
author = {Li, Niying and Look, Kevin A. and Chou, Lin‐Na},
title = {{Dementia Family Caregivers’ Involvement and Perceived Challenges in Health Care Interactions: Informing the GUIDE Model}},
journal = {Journal of General Internal Medicine},
year = {2026},
doi = {10.1007/s11606-026-10208-w},
pmid = {41714582},
url = {https://doi.org/10.1007/s11606-026-10208-w}
}
Built from the record alzhub holds for this paper, not looked up. Volume, issue and page numbers are not held in the record. Check the citation against the original before you use it.
Key findings
- Most (92.5%) caregivers performed at least one health care interaction task.
- The most frequently performed health care interaction tasks were speaking to providers (82.2%), making appointments (79.0%), and sitting in on doctor appointments (68.4%).
- The tasks caregivers rated as being most difficult were transitioning care after a hospital stay (58.9%), coordinating care (43.0%), and handling insurance matters (39.8%).
- Over half of caregivers assisting after an overnight hospital stay received post-hospital training (58.2%).
- Family caregivers commonly perform health care interaction tasks, and their difficulties, particularly transitioning care after a hospital stay, should be recognized and assessed across care settings and providers in the GUIDE Model.
Why it matters
This cross-sectional study of 467 caregivers found that most perform health care tasks such as speaking to providers and making appointments, and that transitioning care after a hospital stay was rated most difficult. It does not test a treatment or cure; it identifies caregiver difficulties that the authors say should be recognized and assessed in the GUIDE Model.
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Study details
- Study designcross-sectional
- Participants467
- Effect size92.5%; 82.2%; 79.0%
- Evidence strengthLow
How this study scored 52/100
Published in a peer-reviewed journal, and it is a snapshot of people at one point in time. Scored zero for randomised / blinded because the record does not state it.
| Component | Points | Why |
|---|---|---|
| Journal tier | 7 / 10 | Tier 3 — peer-reviewed journal (Journal of General Internal Medicine) |
| Journal's citation record | 3 / 4 | Journal of General Internal Medicine: journal h-index 283 (OpenAlex, 2026-10-29) |
| Study design | 4 / 12 | A snapshot of people at one point in time |
| Strength of evidence | 1 / 5 | Rated “low” in our summary |
| Peer-review validation | 10 / 10 | Peer-reviewed. Published as an article in a named peer-reviewed journal. |
| How recent | 5 / 5 | 2026 — within 1 year(s) of the newest study here |
| Sample size | 2 / 4 | 467 participants |
| Effect reported | 2 / 3 | Effect reported as a number, without an interval or test |
| Studied in people | 3 / 3 | Studied in people (participant count stated) |
| Randomised / blinded | 0 / 2 | No randomisation or blinding stated — scores zero (not stated in the record — scored 0) |
| Times cited | 1 / 7 | Cited 3 times (OpenAlex, 2026-10-10) |
| Citations per year | 1 / 5 | 1.5 citations a year over 2 year(s) since 2026 |
| Impact for its field and year | 4 / 6 | Cited 14.1× the average for papers of its field and year (OpenAlex FWCI) |
| Cited by studies here | 0 / 6 | No other study in this library cites it |
| Still being cited | 1 / 4 | Cited 3 times in 2024–2026 (2026 still in progress; OpenAlex) |
| Senior author's track record | 1 / 4 | Last-listed author Lin‐Na Chou: h-index 12 (OpenAlex, whole career) |
| Institution's track record | 2 / 3 | University of Wisconsin–Madison: institution h-index 1,518 (OpenAlex) |
| Multi-centre collaboration | 1 / 3 | OpenAlex lists 3 institution(s) in 1 country |
| Indexed in PubMed | 2 / 2 | Indexed in PubMed (PMID 41714582) |
| Free to read | 2 / 2 | Free to read |
| Total | 52 / 100 | — |
What each of these 20 components measures, and what this score is not →
Read the original
- DOI: 10.1007/s11606-026-10208-w
- PubMed: 41714582
- Original source →
- Free full text: Journal of General Internal Medicine →
Full text: free to read — OpenAlex lists this copy as free to read: the link above (checked 6 Feb 1020).
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